Re: I have missed you all...Joann

[Guest guest]

Joann,

Yes, we got MANY comments that said, " I don't see anything wrong "

etc. espically from family and friends. Because Sam didn't have

a 'flat' spot, once we found the sutures open, the dr. didn't even

know if Sam could be treated because he was 8 months old. We had to

change hosp. to go with a different band style. Good luck, go with

you r own feelings, Sam's head did lose the duck back and we are

hoping for even more growth in the width.

> ,

>

> I saw your Sam's photos in the Files. I was wondering how things

are

> going as my has plagio that was originally feared to be

> sagittal cs. is being cast for a helmet today, so I guess

he

> will be about 5.5 months when he gets it.

>

> I am not sure what Sam's head looks like from other directions, but

> what did people say to you when you said about the helmet/band?

Even

> though he has a long narrow head, I get a lot of 'oh I can't see

the

> problem with that', 'what is the big deal' from family/friends.

> Having said that the lactation consultant, plastic surgeon,

> paediatrican, doctor, other para-medical people in our life, all

> mention it.

>

> Were you told the consequences of not banding?

>

> Joanne

[Guest guest]

Joann,

I forgot to mention, we really had to prove that Sam might benifit

from a band. The dr's did not know what to do with him once they

found out his sutures were open. (They have mentioned that they are

sticky) They really didn't tell us what would happen if we didn't

band because they really had never treated anyone with Sam's head

shape that did not have surgery first. Wehn we went to the

orthotists office last week we had an associate look at Sams head and

when I described Sams head before treatment, he thought he had

already had the surgery, I have come to the conclusion that we must

be very fortunate that Sam'e sutures are infact open, because no-one

in the medical field can believe his head could look like it did

without having cs. (thank you GOD)

I also wanted to tell you Sams head looked kinda like a duck butt in

back. His head angled back to a rounded point in the back from the

ears. Almost like a 'V' if looking from the top. It also slopes

down from the top to the point in the back. (IE duck butt:0) We

have seen the most improvement in that area. He is loosing the point

(or as the orthotist says ...the bump) in the back which we are most

thankful for. I really believe that the dr. wants to keep him banded

so we don't loose what we have.

sorry this is so long, I hope I help to answer some of your

questions. Good luck with banding. If you have more questions you

can e-mail me directly at fyveboyz@...

agian :0)

> > ,

> >

> > I saw your Sam's photos in the Files. I was wondering how things

> are

> > going as my has plagio that was originally feared to be

> > sagittal cs. is being cast for a helmet today, so I guess

> he

> > will be about 5.5 months when he gets it.

> >

> > I am not sure what Sam's head looks like from other directions,

but

> > what did people say to you when you said about the helmet/band?

> Even

> > though he has a long narrow head, I get a lot of 'oh I can't see

> the

> > problem with that', 'what is the big deal' from family/friends.

> > Having said that the lactation consultant, plastic surgeon,

> > paediatrican, doctor, other para-medical people in our life, all

> > mention it.

> >

> > Were you told the consequences of not banding?

> >

> > Joanne