Re: Hi all, de-lurking :), and quick question

[Guest guest]

Hi and WELCOME!! glad you are de-lurking! My now 19 yo twins didn't sleep through the night until they were 2 yo. One had colic very bad and when I would Finally get him to sleep his brother would wake. They still have problems sleeping when they are going to school and they sleep terrible hours now that they are waiting to start college in the fall...nights and days completely mixed up.. which is the way they prefer it.

I understand the crying with relief, sadness, lost dreams etc.. soon you will realize that our kids are completely unique, wired totally different..not disabled so much as differently 'abled'...

welcome again, Toni

( ) Hi all, de-lurking , and quick question

Hi, from UK here, I'm single mummy to just one child, , 5yo with tentative diagnosis of Aspergers - we saw the Paediatrician today again, and she is finally saying that she's working towards a formal diagnosis and it's time to get things moving to get him some help. I feel soooooooooo relieved! Just knowing that someone is putting into words what I've known for years... I just keep crying with the relief, the sadness, the everything!Quick question too... how many of you had real sleep problems with your AS kids when they were babies? still has very disturbed sleep, but when he was a baby he had dreadful trouble sleeping - it wasn't until he was a year old and I did a week of dreadful controlled cryng that he finally stayed quiet through the night - up till then, he was waking every hour.*hugs*<><

[Guest guest]

You know, Robin, I forgot about it until you

mentioned it but Tyler

went thru a phase (actually, a very long phase) of sleeping on the couch.

Seemed to be able to go to sleep and stay asleep better there. That was when

we had a two-story house and his bedroom was up and ours down. Then when I

divorced we moved to a single story and he started sleeping in his own room.

He now lives with his dad in a single story also and sleeps in his room.

From: [mailto: ] On Behalf Of and/or Robin Lemke

Sent: Thursday, January 24, 2008

8:22 PM

Subject: Re: ( ) Hi

all, de-lurking , and quick question

Ian was like that, too.

He has never gotten to sleep too soon at night. We've had nights

of 1 am. No tv on. Nothing. Sometimes music......tried

melatonin. Tried Tylenol. Hell,,,,even tried Benadryl.

Nothing worked.

He'd even be crying that he couldn't get to sleep.

We started seeing that the less sleep he got,,,,,,,,,the better he

did the next day, actually.

Odd.

He DID do better in our bed. Don't know if anxiety played a part

in it? Hearing other breathing rhythems?

Well,,,,,,,,,one night he asked if he could sleep downstairs on

the couch all night. I told him he could. The tv was set to shut

off at 11:00 and I let him know that.

I came down to check on him at 10:30 and he was asleep.

He's slept in the living room ever since. Sometimes he chooses to

sleep upstairs.

I honestly don't have a problem with it.

I sleep better when my husband isn't hogging our bed.....ha ha.

He does have some hard nights,,,,,,,,,,,,,but for the most

part,,,,,,,,,,,,getting him out of the place where he KNEW he had to

sleep,,,,took away the pressure.

OH - Yay!!! for the diagnosis!!!!!!

Have a great night.

Robin

lisa_wench_2000

<lisamburridgegooglemail> wrote:

Hi, from UK here,

I'm single mummy to just one child, , 5yo

with tentative diagnosis of Aspergers - we saw the Paediatrician today

again, and she is finally saying that she's working towards a formal

diagnosis and it's time to get things moving to get him some help. I

feel soooooooooo relieved! Just knowing that someone is putting into

words what I've known for years... I just keep crying with the relief,

the sadness, the everything!

Quick question too... how many of you had real sleep problems with your

AS kids when they were babies? still has very disturbed sleep,

but when he was a baby he had dreadful trouble sleeping - it wasn't

until he was a year old and I did a week of dreadful controlled cryng

that he finally stayed quiet through the night - up till then, he was

waking every hour.

*hugs*

<><

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them fast with Search.

[Guest guest]

So there's hope, huh? Or,,,,,Maybe if he's ever out on his own, he won't be looking for a place with "bedrooms" at the top of his list......ha ha. <cindyelgamal@...> wrote: You know, Robin, I forgot about it until you mentioned it but Tyler went thru a phase (actually, a very long phase) of sleeping on the couch. Seemed to be able to go to

sleep and stay asleep better there. That was when we had a two-story house and his bedroom was up and ours down. Then when I divorced we moved to a single story and he started sleeping in his own room. He now lives with his dad in a single story also and sleeps in his room. From:

[mailto: ] On Behalf Of and/or Robin LemkeSent: Thursday, January 24, 2008 8:22 PM Subject: Re: ( ) Hi all, de-lurking , and quick question Ian was like that, too. He has never gotten to sleep too soon at night. We've had

nights of 1 am. No tv on. Nothing. Sometimes music......tried melatonin. Tried Tylenol. Hell,,,,even tried Benadryl. Nothing worked. He'd even be crying that he couldn't get to sleep. We started seeing that the less sleep he got,,,,,,,,,the better he did the next day, actually. Odd. He DID do better in our bed. Don't know if anxiety played a part in it? Hearing other breathing

rhythems? Well,,,,,,,,,one night he asked if he could sleep downstairs on the couch all night. I told him he could. The tv was set to shut off at 11:00 and I let him know that. I came down to check on him at 10:30 and he was asleep. He's slept in the living room ever since. Sometimes he chooses to sleep upstairs. I honestly don't have a problem with it. I sleep better when my husband isn't hogging our bed.....ha ha. He does have some hard nights,,,,,,,,,,,,,but for the most part,,,,,,,,,,,,getting him out of the place where he KNEW he had to sleep,,,,took away the pressure. OH - Yay!!! for the diagnosis!!!!!!Have a great night. Robinlisa_wench_2000 <lisamburridgegooglemail> wrote: Hi, from UK here, I'm single mummy to just one child, , 5yo with tentative diagnosis of Aspergers - we saw the Paediatrician today again, and she is finally saying that she's working towards a formal diagnosis and it's time to get things moving to get him some help. I feel soooooooooo relieved! Just knowing that someone is putting into words what I've known for years... I just keep crying with the relief, the sadness, the everything!Quick question too... how many of you had real sleep problems with your AS kids when they were babies? still has very disturbed sleep, but when he was a baby he had dreadful trouble sleeping - it wasn't until he was a year old and I did a week of dreadful controlled cryng that he finally stayed quiet through the night - up till then, he was waking every

hour.*hugs*<>< Looking for last minute shopping deals? Find them fast with Search.

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[Guest guest]

Robin, I can't believe every time you post anything about your son, you described my son as well. My son would also love to sleep with me. I can't sleep with him, because he pulls my hair. but for the days, that he can't sleep, he will ask if he can sleep on the couch. If I tell him he has to sleep in his bed, he will be up all night, and so will I. On those nights that he can't sleep, and I give in and let him sleep on the couch, it seems like 'that's his best sleep'. I don't understand why, it just is. Rose and/or Robin Lemke <jrisjs@...> wrote: Ian was like that, too. He has never gotten to sleep too soon at night. We've had nights of 1 am. No tv on. Nothing. Sometimes music......tried melatonin. Tried Tylenol. Hell,,,,even tried Benadryl. Nothing worked. He'd even be crying that he couldn't get to sleep. We started seeing that the less sleep he got,,,,,,,,,the better he did the next day, actually. Odd. He DID do better in our bed. Don't know if anxiety played a part in it? Hearing other breathing rhythems? Well,,,,,,,,,one night he asked if he could sleep downstairs on the couch all night. I told him he could. The tv was set to shut off at 11:00 and I let him know that. I came down to check on him at 10:30 and he was asleep. He's slept in

the living room ever since. Sometimes he chooses to sleep upstairs. I honestly don't have a problem with it. I sleep better when my husband isn't hogging our bed.....ha ha. He does have some hard nights,,,,,,,,,,,,,but for the most part,,,,,,,,,,,,getting him out of the place where he KNEW he had to sleep,,,,took away the pressure. OH - Yay!!! for the diagnosis!!!!!!Have a great night. Robinlisa_wench_2000 <lisamburridgegooglemail> wrote: Hi, from UK here, I'm single mummy to just one child, , 5yo with tentative diagnosis of Aspergers - we saw the Paediatrician today again, and she is finally saying that she's working towards a formal diagnosis and it's time to get things moving to get him some help. I feel soooooooooo

relieved! Just knowing that someone is putting into words what I've known for years... I just keep crying with the relief, the sadness, the everything!Quick question too... how many of you had real sleep problems with your AS kids when they were babies? still has very disturbed sleep, but when he was a baby he had dreadful trouble sleeping - it wasn't until he was a year old and I did a week of dreadful controlled cryng that he finally stayed quiet through the night - up till then, he was waking every hour.*hugs*<>< Looking for last minute shopping deals? Find them fast with Search.

Never miss a thing. Make your homepage.

[Guest guest]

Someone one asked if maybe he "feels" better on the couch because it's more "enclosed". He can snuggle and arrange the pillows, etc. Ya know,,,,,I thought about it, and I think it definitely makes sense. Our couch is really deep and has squishy cushions that you lay back on. So,,,,,he usually gets rid of them...ha ha.......and has this huge area that he rearranges littler pillows on. The big cushion he removes,,,he puts on the floor almost like a "fence" at the adge of the couch. Who knows..........I'm just glad he's sleeping....(and me,too).....ha ha. *** It IS amazing how much some of our kids resemble eachother. I'm SOOOOO grateful for that,,,,,,,,,cause, honestly,,,,,when I first joined this group, I not only thought I was crazy,,,,,,but feared my son was. Have a super day, woman. RobinRose

<beachbodytan2002@...> wrote: Robin, I can't believe every time you post anything about your son, you described my son as well. My son would also love to sleep with me. I can't sleep with him, because he pulls my hair. but for the days, that he can't sleep, he will ask if he can sleep on the couch. If I tell him he has to sleep in his bed, he will be up all night, and so will I. On those nights that he can't sleep, and I give in and let him sleep on the couch, it seems like 'that's his best

sleep'. I don't understand why, it just is. Rose and/or Robin Lemke <jrisjs > wrote: Ian was like that, too. He has never gotten to sleep too soon at night. We've had nights of 1 am. No tv on. Nothing. Sometimes music......tried melatonin. Tried Tylenol. Hell,,,,even tried Benadryl. Nothing worked. He'd even be crying that he couldn't get to sleep. We started seeing that the less sleep he got,,,,,,,,,the better he did the next day, actually. Odd. He DID do better in our bed. Don't know if anxiety played a part in it? Hearing other breathing rhythems? Well,,,,,,,,,one night he asked if he could sleep downstairs on the couch all night. I told him he

could. The tv was set to shut off at 11:00 and I let him know that. I came down to check on him at 10:30 and he was asleep. He's slept in the living room ever since. Sometimes he chooses to sleep upstairs. I honestly don't have a problem with it. I sleep better when my husband isn't hogging our bed.....ha ha. He does have some hard nights,,,,,,,,,,,,,but for the most part,,,,,,,,,,,,getting him out of the place where he KNEW he had to sleep,,,,took away the pressure. OH - Yay!!! for the diagnosis!!!!!!Have a great night. Robinlisa_wench_2000 <lisamburridgegooglemail> wrote: Hi, from UK here, I'm single mummy to just one child, , 5yo with tentative diagnosis of Aspergers - we saw the Paediatrician today

again, and she is finally saying that she's working towards a formal diagnosis and it's time to get things moving to get him some help. I feel soooooooooo relieved! Just knowing that someone is putting into words what I've known for years... I just keep crying with the relief, the sadness, the everything!Quick question too... how many of you had real sleep problems with your AS kids when they were babies? still has very disturbed sleep, but when he was a baby he had dreadful trouble sleeping - it wasn't until he was a year old and I did a week of dreadful controlled cryng that he finally stayed quiet through the night - up till then, he was waking every hour.*hugs*<>< Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage.

Never miss a thing. Make your homepage.

[Guest guest]

Hi

My daughter

is 4yo …glad you’re here!

She seems to

be on the other end of the sleep issues …for now….but I ‘m

sure some of the others will have some good insight!

-

From:

[mailto: ] On Behalf Of lisa_wench_2000

Sent: Thursday, January 24, 2008

5:04 PM

To:

Subject: ( ) Hi

all, de-lurking , and quick question

Hi, from UK here, I'm single mummy to just one

child, , 5yo

with tentative diagnosis of Aspergers - we saw the Paediatrician today

again, and she is finally saying that she's working towards a formal

diagnosis and it's time to get things moving to get him some help. I

feel soooooooooo relieved! Just knowing that someone is putting into

words what I've known for years... I just keep crying with the relief,

the sadness, the everything!

Quick question too... how many of you had real sleep problems with your

AS kids when they were babies? still has very disturbed sleep,

but when he was a baby he had dreadful trouble sleeping - it wasn't

until he was a year old and I did a week of dreadful controlled cryng

that he finally stayed quiet through the night - up till then, he was

waking every hour.

*hugs*

<><

[Guest guest]

Welcome :-)

I'm a part-time mother of an NT daughter (11) and a probably AS son

(14) located in Trondheim, Norway. We're just now going through

evaluation through the regional resource center.

Although my son doesn't have a diagnosis, I see very many things

with him that I can relate to when reading about the issues with AS

both here and other places.

My son slept very little as a baby. I think that before he was 2,5

he slept through the night less than 10 times. Then there was a

sudden change (just before his sister was born), and he started to

sleep through the night on a regular basis. After that he hasn't had

any serious sleep problems (unil now), but has needed relatively

little sleep, and sometimes have trouble getting to sleep in the

evening.

After New Year's he had a week almost without sleep at all, so we

finally saw the doctor. He said it was " belated sleep phase " (direct

translation from Norwegian ;-). He said he had to go to bed to the

same time every night and get up to the same time in the morning

(also in the weekends). Since then it has improved, and now I think

he sleeps most of the night again.

We never found any reason for his sleep problems as a baby/small

child. We did see the doctor, and also got some medication

(Vallergan), but we didn't like it because he got a " hangover " the

next day. He went to sleep in the evening, but woke up several times

during the night and very early in the morning - and didn't want to

stay in his bed.

But times change - now he can sleep half the day if he's allowed

to :-)

Take care,

Rannveig/.

[Guest guest]

I've been divorced since was 9 months old. Up until last year, she has always wanted to sleep with me. I finally got her to stop in 8th grade. I told her she wouldn't want the kids at school to know that she still slept with her mom. That solved that problem.

Deb

In a message dated 1/24/2008 9:44:40 P.M. Eastern Standard Time, cindyelgamal@... writes:

You know, Robin, I forgot about it until you mentioned it but Tyler went thru a phase (actually, a very long phase) of sleeping on the couch. Seemed to be able to go to sleep and stay asleep better there. That was when we had a two-story house and his bedroom was up and ours down. Then when I divorced we moved to a single story and he started sleeping in his own room. He now lives with his dad in a single story also and sleeps in his room.

From: [mailto: ] On Behalf Of and/or Robin LemkeSent: Thursday, January 24, 2008 8:22 PM Subject: Re: ( ) Hi all, de-lurking , and quick question

Ian was like that, too.

He has never gotten to sleep too soon at night. We've had nights of 1 am. No tv on. Nothing. Sometimes music......tried melatonin. Tried Tylenol. Hell,,,,even tried Benadryl.

Nothing worked. He'd even be crying that he couldn't get to sleep.

We started seeing that the less sleep he got,,,,,,,,,the better he did the next day, actually.

Odd.

He DID do better in our bed. Don't know if anxiety played a part in it? Hearing other breathing rhythems?

Well,,,,,,,,,one night he asked if he could sleep downstairs on the couch all night. I told him he could. The tv was set to shut off at 11:00 and I let him know that.

I came down to check on him at 10:30 and he was asleep.

He's slept in the living room ever since. Sometimes he chooses to sleep upstairs.

I honestly don't have a problem with it.

I sleep better when my husband isn't hogging our bed.....ha ha.

He does have some hard nights,,,,,,,,,,,,,but for the most part,,,,,,,,,,,,getting him out of the place where he KNEW he had to sleep,,,,took away the pressure.

OH - Yay!!! for the diagnosis!!!!!!Have a great night.

Robinlisa_wench_2000 <lisamburridgegooglemail> wrote:

Hi, from UK here, I'm single mummy to just one child, , 5yo with tentative diagnosis of Aspergers - we saw the Paediatrician today again, and she is finally saying that she's working towards a formal diagnosis and it's time to get things moving to get him some help. I feel soooooooooo relieved! Just knowing that someone is putting into words what I've known for years... I just keep crying with the relief, the sadness, the everything!Quick question too... how many of you had real sleep problems with your AS kids when they were babies? still has very disturbed sleep, but when he was a baby he had dreadful trouble sleeping - it wasn't until he was a year old and I did a week of dreadful controlled cryng that he finally stayed quiet through the night - up till then, he was waking every hour.*hugs*<><

Looking for last minute shopping deals? Find them fast with Search.

Start the year off right. Easy ways to stay in shape in the new year.

[Guest guest]

In re-reading my post it sounds like Tyler sleeps in his dad’s

room. That is not the case – he sleeps in his own room. But,

something he has done for years is sleep in his clothes – it drives me

nuts but he refuses to sleep any other way. He usually takes off his

shirt but sleeps in his jeans and socks. He also doesn’t get “in”

the bed – he sleeps on top of the bedspread or comforter. I don’t

want him doing that here so I fold the comforter down but he sleeps on top of

the sheets. He also carries his own “blanket” with him wherever

he goes.

From: [mailto: ] On Behalf Of debmetsfan@...

Sent: Sunday, January 27, 2008

9:49 PM

Subject: Re: ( ) Hi

all, de-lurking , and quick question

I've been divorced since was 9

months old. Up until last year, she has always wanted to sleep with

me. I finally got her to stop in 8th grade. I told her she wouldn't

want the kids at school to know that she still slept with her mom. That

solved that problem.

Deb

In a message dated 1/24/2008 9:44:40 P.M.

Eastern Standard Time, cindyelgamalsbcglobal (DOT) net

writes:

You know, Robin, I forgot about it until you mentioned it but Tyler went thru

a phase (actually, a very long phase) of sleeping on the couch. Seemed to

be able to go to sleep and stay asleep better there. That was when we had

a two-story house and his bedroom was up and ours down. Then when I

divorced we moved to a single story and he started sleeping in his own

room. He now lives with his dad in a single story also and sleeps in his

room.

From:

[mailto: ]

On Behalf Of and/or Robin

Lemke

Sent: Thursday, January 24, 2008

8:22 PM

Subject: Re: ( ) Hi

all, de-lurking , and quick question

Ian was like that, too.

He has never gotten to sleep too soon at night. We've had

nights of 1 am. No tv on. Nothing. Sometimes music......tried

melatonin. Tried Tylenol. Hell,,,,even tried Benadryl.

Nothing worked.

He'd even be crying that he couldn't get to sleep.

We started seeing that the less sleep he got,,,,,,,,,the

better he did the next day, actually.

Odd.

He DID do better in our bed. Don't know if anxiety played a

part in it? Hearing other breathing rhythems?

Well,,,,,,,,,one night he asked if he could sleep downstairs

on the couch all night. I told him he could. The tv was set to shut

off at 11:00 and I let him know that.

I came down to check on him at 10:30 and he was asleep.

He's slept in the living room ever since. Sometimes he

chooses to sleep upstairs.

I honestly don't have a problem with it.

I sleep better when my husband isn't hogging our bed.....ha ha.

He does have some hard nights,,,,,,,,,,,,,but for the most

part,,,,,,,,,,,,getting him out of the place where he KNEW he had to

sleep,,,,took away the pressure.

OH - Yay!!! for the diagnosis!!!!!!

Have a great night.

Robin

lisa_wench_2000

<lisamburridgegooglemail> wrote:

Hi, from UK here, I'm single mummy to just one child,

, 5yo

with tentative diagnosis of Aspergers - we saw the Paediatrician today

again, and she is finally saying that she's working towards a formal

diagnosis and it's time to get things moving to get him some help. I

feel soooooooooo relieved! Just knowing that someone is putting into

words what I've known for years... I just keep crying with the relief,

the sadness, the everything!

Quick question too... how many of you had real sleep problems with your

AS kids when they were babies? still has very disturbed sleep,

but when he was a baby he had dreadful trouble sleeping - it wasn't

until he was a year old and I did a week of dreadful controlled cryng

that he finally stayed quiet through the night - up till then, he was

waking every hour.

*hugs*

<><

Looking for last minute shopping deals? Find

them fast with Search.

Start the year off right. Easy

ways to stay in shape in the new year.