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Hi Everyone-

well had his Neuro consult wednesday and depsite the fact that

he will just be 3 months on March the 8th the dr felt that we should

go ahead and band him now. He has right bossing and back flatness and

was diagnoesed as moderate-severe. Needless to say i am still a bit

shocked. Cant seem to stop crying every time I look at that beautiful

little head of his. I thought for sure they would tell us to continue

repositioning and check back in a month. But my son is quite the

independent and depite aggressive repositioning and tummy time he

manages to get him self where HE WANTS TO BE. I am thankful it was

caught early and because of that the PT/orthotist thinks he may only

have to be banded for a short time- so that is a bonus I guess.

Now................

We had the appointment Wedensday and moved to Memphis Thursday where

there are no DOC band providers. Has anyone out there receieved

treatment in Dallas or Atlanta and if so what was your experience?

How do I determine which would be the better faciltiy to use? Either

way I have to drive 6 hours 1 way for my son to get treatment so I

would like to choose the best location. There is a cranial facial

clinic in Chatanooga, TN but they specialize in surgery and are not

DOC providers should I check them out for band therapy??

Our Dr only did x rays and not a CT scan. I have heard so many of you

talk about the CT scan should I be pushing to get one of these before

we move forward? What do they tell you that the Xray don't?

I am so upset it is difficult to make sense of everything. I just

feel like if I had done things differently then my son wouldnt have

to go through this. Now I just want to make sure he gets the best

care possible. Insight direction or advice from any of you will be

helpful.

Thaks so much,

Beck

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