Re: Introduction and ready for battle

[Guest guest]

Kris my son had craniosynostosis but we are military. We live in Quantico, VA now. I can tell you Tricare is not great on paying for the band and/or helmets but I will help you with that if it is what it comes too. I actually have three military families I am working with right now. One it is craniosynostosis she is in NC not to much trouble there. I have another one in NC sounds like Left Coronal but they are giving her such a hard time. And one in CA that could be positional or cranio not sure and they have been giving her a hard time. I am so fed up with the doctors blowing these kids head shapes off.

Sorry had to vent. Email me at CAPSORG@... or call toll free at 877-686-2277 if you need any military help.

Pitchke

[Guest guest]

Kris,

Your story is SOOOOOO familiar. I have heard the old " it will round out on

its own " so many times. (In fact I heard it from my ped!!!) 6 months is a

good age to start treatment so you are definately not too late! I think it is

great that you intend to stay until you get your referral - way to go!!! You

will need a referral to a neurosurgeon (preferably a pediatric one) or a

cranial-facial specialist (also preferably one that deals with babies). We

had a referral to a neurosurgeon and he is the one who made the diagnosis and

wrote the perscription for the helmet.

There are several military families in this group and I am sure they will

post a response to you.

I am glad that you found this group and I think you will find some great

support as well as answers to probably any question you might have about

plagiocephaly! Also, would you mind telling us if Amara had the flatness from

birth or if it developed over time?

Keep us posted!

Marci (Mom to )

Oklahoma