Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 Kendra, Thank you for the positive words and I just wanted to add....if you don't like what a particular email is saying you can always hit that delete button and be done with it for good!!! (hee, hee) Marci ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 I totally agree with you Kendra. New parents need to hear both sides of the coin in order to make the best decision for their child. Some parents get loads of info from the medical world, others would be lost without this group. As those who have gone through this whole process, we need to share the info. We all have the right to delete any message at any time OR to contact the poster for additional details. Sue Luck mom to , DOC band graduate Cleveland, OH ----- Original Message ----- From: Kendra plagio group Sent: Monday, March 12, 2001 10:11 PM Subject: "band bashing" Jill: I am not trying to be defensive, so just hear me out. I read every post that runs thru this group. I have never felt that one member was "bashing" another over the choices they have made. The members here are simply voicing their own experiences with the products they have used. Some people are not happy with the DOC Band, some are not happy with the STAR. Everyone has different situations, and sometimes things don't work out. If you check the file created by "aitensmom" in the FILES section, you will probably agree that that particular situation wasn't a good one. This mom has never told anyone NOT to get a STARband, but to ASK QUESTIONS. She is simply telling HER story, and so she should! I think it is fabulous that there are other options out there, but that doesn't mean that people should have to walk into this experience blindly. I think that is important for the bad side to be told, just as it is important to hear the good. Of course, I do agree with you that we should not judge each other for the decisions we make, and we certainly should not be arguing over which helmet is "the best" (even though each of us will form an opinion). This is a SUPPORT group. I also think that emotions can run really high in this group (after all, we are a group of parents trying to do what's best for our children!), and things can be taken a little too literally. We need to read these messages at face value. Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support... ----- Original Message ----- From: jastss@... Plagiocephaly Sent: Monday, March 12, 2001 2:12 PM Subject: Star Band vs. DOC question Whomever it may concern,I'm pretty new to this group so I may have missed out on something, but I'm just wondering why some people are taking this STAR band/DOC band business so personally? I know that people are just trying to be helpful to those seeking advise when trying to decide how to help their child. But it seems to me that it has turned into some sort of "Mine's better than Yours" battle. Everyone here is just doing what they think is best for THEIR child. On the CT discussion board, the issue became nasty and people forgot what the question really was that was being asked. No, you shouldn't advertise anything but the DOC band on that site out of respect for CT and the people who are making that discussion board available. But that doesn't mean we should bash people that are using something other than a DOC. In my personal opinion, I think that people should stop judging other people's decisions and just talk about their own experiences with the product they have used. Maybe STAR band didn't work for some of you, but just say that and stop discouraging the thing. Can we just say what has worked and what hasn't without hurting other people? I'm not saying all of this to defend anyone. My son is in a DOC band, but that was just my own personal decision. If I had wanted to seek out advise from this board on trying to decide, it probably would have made me not want to even be part of this group. Luckily, I wasn't faced with having to make that decision. If anyone out there is trying to decide on one or the other, just listen to the facts and not the arguing and hopefully you can make an educated choice instead of a biased one. Hope I didn't step on anyone's toes because I really like this group, but I just felt I needed to say all of this. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Well said Kendra!! B., Charlotte --- Kendra <p-nutsmum@...> wrote: > Jill: > I am not trying to be defensive, so just hear me > out. > I read every post that runs thru this group. I have > never felt that one member was " bashing " another > over the choices they have made. The members here > are simply voicing their own experiences with the > products they have used. Some people are not happy > with the DOC Band, some are not happy with the STAR. > Everyone has different situations, and sometimes > things don't work out. If you check the file > created by " aitensmom " in the FILES section, you > will probably agree that that particular situation > wasn't a good one. This mom has never told anyone > NOT to get a STARband, but to ASK QUESTIONS. She is > simply telling HER story, and so she should! > I think it is fabulous that there are other options > out there, but that doesn't mean that people should > have to walk into this experience blindly. I think > that is important for the bad side to be told, just > as it is important to hear the good. Of course, I > do agree with you that we should not judge each > other for the decisions we make, and we certainly > should not be arguing over which helmet is " the > best " (even though each of us will form an opinion). > This is a SUPPORT group. I also think that > emotions can run really high in this group (after > all, we are a group of parents trying to do what's > best for our children!), and things can be taken a > little too literally. We need to read these > messages at face value. > Kendra in Canada > For more plagio info, visit > www.plagiocephaly.org/support > . > . > . > ----- Original Message ----- > From: jastss@... > Plagiocephaly > Sent: Monday, March 12, 2001 2:12 PM > Subject: Star Band vs. DOC question > > > Whomever it may concern, > I'm pretty new to this group so I may have missed > out on something, > but I'm just wondering why some people are taking > this STAR band/DOC > band business so personally? I know that people are > just trying to > be helpful to those seeking advise when trying to > decide how to help > their child. But it seems to me that it has turned > into some sort > of " Mine's better than Yours " battle. Everyone here > is just doing > what they think is best for THEIR child. On the CT > discussion board, > the issue became nasty and people forgot what the > question really was > that was being asked. No, you shouldn't advertise > anything but the > DOC band on that site out of respect for CT and the > people who are > making that discussion board available. But that > doesn't mean we > should bash people that are using something other > than a DOC. In my > personal opinion, I think that people should stop > judging other > people's decisions and just talk about their own > experiences with the > product they have used. Maybe STAR band didn't work > for some of you, > but just say that and stop discouraging the thing. > Can we just say > what has worked and what hasn't without hurting > other people? I'm > not saying all of this to defend anyone. My son is > in a DOC band, > but that was just my own personal decision. If I > had wanted to seek > out advise from this board on trying to decide, it > probably would > have made me not want to even be part of this group. > Luckily, I > wasn't faced with having to make that decision. If > anyone out there > is trying to decide on one or the other, just listen > to the facts and > not the arguing and hopefully you can make an > educated choice instead > of a biased one. > Hope I didn't step on anyone's toes because I really > like this group, > but I just felt I needed to say all of this. > Jill > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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