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There are mixed opinions on that because of recent news stories that say CT

scans might be dangerous for children. (We have had some discussion on this

in previous posts). We had one done to rule out craniosynostosis and so the

nuero could see the extent of the compression. Some people have x-rays

instead of CT scans. If you are comfortable with having a CT done I would ask

for one unless your specialist has ruled cranio by some other method. (I

can't imagine what that would be!)

I hope this helps,

Marci (Mom to )

Oklahoma

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I see alot of you talk about having to have a 3-d cat scan. We didi

not have one of those- yet my son was diagnosed with palgio and was

recc. to be banded. Do you think we should pursue the CT scan before

the banding?

Becky

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Becky:

We did not have a CT scan or X-rays. Our neuro sees dozens of plagio kids every week, so I trust that he knows what he is looking at, and if he were suspicious that there may be cranio involved, he would do further testing. "Classic" plagio has some very tell-tale signs, such as the parallelogram shaped head, misaligned ears, bossing forehead, facial asymmetry, etc. Cranio also has it's tell-tale signs, depending on which suture is fused.

If you are at all concerned that cranio may be involved, please ask for a CT scan. It's your right to be sure. There has been some concern mentioned about CT scans and the amount of radiation given to an infant, but if you do choose to go for one, just make sure you double check with the tech. that is doing the scan that it is an INFANTS DOSE of radiation!

Also check the POLLS section where there is a poll about who had X-rays/CT scan/MRI/visual only diagnoses.

Hope that helps a bit!

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: bbbhand@...

Plagiocephaly

Sent: Thursday, March 08, 2001 10:52 AM

Subject: ct scans

I see alot of you talk about having to have a 3-d cat scan. We didi not have one of those- yet my son was diagnosed with palgio and was recc. to be banded. Do you think we should pursue the CT scan before the banding? Becky

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Thanks Kendra- given my sons age and his classic symptoms I believe that the x rays were enough. DR Day sees tons of babies as well and really didi a great check of him so I am comfortable. Besides I really didn't want a CT scan anyhow-sedation and radiation not my cup of tea. Thanks Beck

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  • 5 years later...
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Hi

my grand'daughter is having a CT this Friday, and is very worried about the

radiation exposure, is there anything she can take before or after to help

counter the radiation?

thank you

Dorothy

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I just had a CT scan today. No ill side affects. Radiation did not seem to

bother me but I just finshed 6 months of chemo so my tolerance is pretty high.

Al

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Ray <redracer_1398@...> wrote: " I just had a CT scan today. No ill side

affects. Radiation did not seem to bother me but I just finshed 6 months of

chemo so my tolerance is pretty high " .

well she is worried about long term effects, I read that one CT is like 3 years

worth of radiation exposure

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It would be unusual to have an immediate bad reaction to a CT-Scan....other

than claustrophobia, however that does not mean damage may not be done.

We hear about 'improved' equipment resulting in less radiation and I suppose

one needs to give some thought about the frequency of such tests added to an

already over-burdened body.

Here's one problem that might apply to others. I have refused all further

CT-Scans simply for exploratory purposes.

However, assuming there was bleeding or positive indications that cancer

cells were circulating in my Urinary Tract, and nothing was visible to the

Urologist? What to do? I could wait an additional time, say a couple of

months to determine whether or not a tumor became visible, as happened

before, or I could opt for a CT-Scan so 'I' know what is going on and if a

tumor or other proof of active cancer presents itself I can then take the

proper steps needed. However, the Urologist wants an annual CT-Scan, at

the least, to see if the cancer has metastasized.. My last CT-Scan did

not detect a cancerous tumor forming as the Urologist's exam did not but a

'lowly' Urine Cytology test did detect cancer cells. That time I opted

until the next 'viewing' via Cystoscope and a tumor was present. I do not

think I would be concerned if one CT-Scan was suggested for valid reasons.

Routinely? No thank you.

Joe C.

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Right, but this is the 4th one that she will be having in 2 years, so she is

concerned

Dorothy

JCastron wrote:

It would be unusual to have an immediate bad reaction to a CT-Scan....other

than claustrophobia, however that does not mean damage may not be done. We hear

about 'improved' equipment resulting in less radiation and I suppose one needs

to give some thought about the frequency of such tests added to an already

over-burdened body.

I have refused all further CT-Scans simply for exploratory purposes.

I do not think I would be concerned if one CT-Scan was suggested for valid

reasons. Routinely? No thank you.

Joe C.

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  • 4 years later...
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I do not think anyone cant tell you with certainty what any one Scan will do

with certainty. Perhaps the approach should be, based upon what you would do,

should there be a positive finding.

Example: While this only applied to me regarding whether or not to have a

CT-Scan, I asked the Urologist, 'what would you recommend should what you

suspect be confirmed?'. He said, " then everything comes out........prostate,

bladder, blah blah blah " .........and I responded, " That will never be on the

table " ..................and that was the end of that. However, I may yet, now

years later, get another scan but I just don't feel there are any reasons other

than very anticipatory and I'll make that decision down the road.....if ever.

I would like to know whether or not I had Lung Cancer and the Scan would tell

you more. The question I would have is the ensuing Biopsy.

Ask the physician, what do you do regarding the possibility that there might be

a 'seeding' of cancer cells as the result of Biopsy?

If I had a CT-Scan that indicated cancer, as the original one did, I would

approach it as if I had cancer. At that point one either goes conventionally,

Alternatively, or a combination of both. This is something only your mom can

decide unless she leaves it to others to make her decisions. Most people,

unless very Alternatively committed, will give in to the man in the white coat

and we can stand on our heads trying to get them to do what we think is better.

Perhaps someone can give you an answer to the question about what a CT-Scan can

do in your mom's case. It sounds as if there was only one previous CT-Scan.

As on this list, has pointed out, Deleterious effects of CT-Scans are

'statistical' and not always a guaranteed result. Too bad Ultrasounds cannot

perform the same task. Perhaps an MRI?

Joe C.

From: d_rudaitis

Sent: Thursday, June 24, 2010 9:32 AM

Subject: [ ] CT Scans

Does anyone have any information about the effects of CT scans on the spread of

lung cancer? My mom is going through testing to see if the spot on her lung is

cancerous. She has already had a CT, CTA and Pet scan, and a bronchoscopy. The

CT, CTA and Pet scans, though inconclusive, seem to suggest lung cancer however

at the time she had the tests she was recovering from a chest infection which

the doctors thought could be causing the spot. The bronchoscopy wash/brush

turned up nothing and now we are looking at having another CT scan to see if the

spot grew or shrunk. If it shrunk, we will be in a wait and see but if it grew

then a needle biopsy will be done. Any advice?

Thanks,

le

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You know I think my tumor grew after a scan. No one believes me but prior to

the scan....the tumor just sort of stayed the same size...but after the scan I

know it grew within two weeks. Maybe it was just one of those things.....who is

to say for sure.

How old is your mother? If she is over 60 I would not worry too much about the

scan.

>

> Does anyone have any information about the effects of CT scans on the spread

of lung cancer? My mom is going through testing to see if the spot on her lung

is cancerous. She has already had a CT, CTA and Pet scan, and a bronchoscopy.

The CT, CTA and Pet scans, though inconclusive, seem to suggest lung cancer

however at the time she had the tests she was recovering from a chest infection

which the doctors thought could be causing the spot. The bronchoscopy

wash/brush turned up nothing and now we are looking at having another CT scan to

see if the spot grew or shrunk. If it shrunk, we will be in a wait and see but

if it grew then a needle biopsy will be done. Any advice?

>

> Thanks,

> le

>

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