Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Joanne, We have one member that I am sure of that lives in Australia. Unfortunately I believe she has not had any luck trying to find a way to get a band there. Hopefully she will respond to your post. We had some posts not that long ago regarding band availability in Australia. I will try to find the post numbers and let you know. Have you seen a specialist yet? Have you had a catscan or x-rays? How are they deciding if it is cranio or plagio? I will try to get you those post numbers. Welcome - I'm glad you found us!! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Hi everyone, We are currently looking into whether my son has craniosynostosis or positional scaphocephaly. Does anyone have any experience or info about positional scaphocephaly? is almost 5mo and his head is approx 10.5cm by 15.5cm, has some ridging but it is not done the sagittal suture as much as it is from the anterior fontanelle to the forehead. whether he lays on his front or back he generally turns his head to one side or the other. I am in Australia (Brisbane). If he needed a band would they even have them here, does anyone know? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Joanne: please see posts #12694 & #12703 for info on who to contact in Australia/New Zealand. Let us know what you find out! Kendra in Canadawww.plagiocephaly.org/support... ----- Original Message ----- From: joanne@... Plagiocephaly Sent: Thursday, March 01, 2001 2:02 PM Subject: Positional Scaphocephaly Hi everyone,We are currently looking into whether my son has craniosynostosis or positional scaphocephaly. Does anyone have any experience or info about positional scaphocephaly? is almost 5mo and his head is approx 10.5cm by 15.5cm, has some ridging but it is not done the sagittal suture as much as it is from the anterior fontanelle to the forehead. whether he lays on his front or back he generally turns his head to one side or the other.I am in Australia (Brisbane). If he needed a band would they even have them here, does anyone know? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Scaphocephaly is contraindicated for the Orthomerica band, so it is unfortunately not an option. It says this on their web page. I also have a son who had positional scaphocephaly, and we used the DOC band for treatment, as it was the only company I could find that would help us. However, there is a mother here who's son also had positional scaphocephaly whose local children's hospital is using the molding device that they would have used after surgery for sagittal craniosynostis had he had it. It is the first time they have done this for positional cases. Perhaps you can call around and find local children's hospitals who do surgery for sagittal craniosysnostis and see if they might do the same. Maybe can give you some pointers on how she got them to do this. Good Luck and let us know. H. Mom to Quinn > In a message dated 3/1/01 2:04:42 PM Pacific Standard Time, > joanne@w... writes: > > > > I am in Australia (Brisbane). If he needed a band would they even > > have them here, does anyone know? > > > > > > > > Here is 's email address - lisaferris@o... > > I posted a message to her and have not heard from her yet! > > About banding. I encouraged her to contact Orthomerica, here is web site. <A HREF= " http://search.aol.com/redirect.adp? appname=QBP & query=%d9%4e%bb%a5%d0%c9%ba%5c%d8%c2%42%3b%83%1a%24%9d%49% 9a%a8%62%b1%a7%94%b3%89%44%21%7d%d4%37%25%30%e8%48%9d%ac%e3%5e%57%fa% e5%63%4f%8b%3c%69%13%da%c5%43%b2%68%86%b8%87%e4%b1%f7%3f%0e%f2%5f%03% 4c%a0%88%a4%f5%ae%0b%e7%d6%12%05%ff%a7%7a%8a%55%0a%2b%7f%12%b6%12%bd% cf%3c " > > Orthomerica</A> > If you can find a local orthotics person willing to try? I'm not sure I > would want to be the first one but someone has to be at some point so... > > Anyway <A HREF= " http://search.aol.com/redirect.adp? appname=QBP & query=%b4%56%0f%02%b0%60%71%35%6d%53%4e%79%31%64%6d%5f%72% 4d%5d%1b%02%af%26%50%7a%c8%5c%3a%1c%65%4a%6e%ef%92%68%8a%57%75%b2%1c% 7a%25%6d%06%4d%75%41%66%39%03%15%37%2e%bf%5a%cc%3c%9a%36%3b%bc%eb%8e% 9b%1c%f0%49%9a%d1%ff%c0%55 " >Craniosynostosis and Parents Support</A> site. Check it out if you > haven't done so. If cranio some get helmet/band therapy after but not sure > if all. > > Welcome! > > Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
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