Newbie here

[Guest guest]

hi my name is Jaden. i hope im posting this correctly.

im married and i have 4 children, one of which is being

diagnosed as either Autistic or PDD. We started this whole process in

January 2008 just after her 3 yr birthday. the issues have been there

since she was 15 to 18 months old but the dr and everyone kept saying

give her time and lets wait. when she turned 2 she was put in speech

therapy for 3 months and i was doing more to try and help her at home

and she wasnt making progress so we pulled her out. again the dr said

lets wait till she is 3 to see what happens.

her bilogical father is bipolar, skitzo, manic depressive, ptsd,

suicidal, self mutilator. he is not involved with her since she was 6

months old. and even when he was aroung back then he wasnt

really 'there'. even her psychologist has said to keep her away from

him. without him saying that i have already been doing that.

my daughter has up to now seen the eye dr, the audiologic specialist,

a neurologist, a psychologist, a second speech therapist. all have

the same conclusion autistic/pdd. her problems so far are autism,

sensory, ocd, adhd, speech, comprehension, behavior.

we are awaiting our evaluation by the school board which will take

place next month on 4/29/08 to get her into the special autism

education program. its clear by all the drs she has seen already from

what they say she wont benefit from normal 30 to 60 minute 2 or 3

times per week therapy, she needs 20 to 25 hours at least of a full

time program.

the only problem she had while a baby was being lactose intolerant

and needed lactofree formula until she was 1 yr old then she took

whole milk like a champ. she also didnt babble or blow raspberries as

an infant. but did start to say single words by 1 yr old. she lost a

lot of speech between the age 15 and 18 months old. thats when things

went downhill very fast. she would refuse saucy foods and bread type

foods. she never really like to be held or kissed or hugged. her

sensors clearly are not right. the pointing and the frustration in

her started when she coulnt communicate what she needed or wanted.

things escalated and more and more things have some to light.

everyday life for her include swaying, repeat spinning, toe

walking/running, hyperactivity (she can run miles through the house

daily if we let her), aggressiveness toward her 2 yr old brother

(smacking hitting pushing biting), self isolation (has periods of

closing her own door and not wanting anything to do with anyone),

jargun talking (we have to try and pick out the words we understand),

little comprehension (doesnt understand questions or consiquences), 2

or 3 word sentances that are clear once in a while, pointing and

saying " uhh uhh uhh " (when she cant find the words to express what

she needs or wants), looking through people (eyes not looking at us),

acts deaf (we can be talking about one thing and all of the sudden

she will say something totally not relative and run off or doesnt

answer us when we call her or talk to her), lining things up in

precise rows (this started 2 months ago with peas fruit loops dolls),

everything must touch her face or go in her mouth or get smeared on

her body when she handles it (from food to dirt), repeats most of

what we ask or say instead of doing what we say or answering our

questions, fluctuating weight and eating habits, screams alot, throws

herself on the floor in fits, kicks like crazy on her bedroom walls

or door, wont fall asleep before 12am, obsesses over a lot of things

(like her cartoons if a commercial comes on she freaks or if we try

to sway her attention away from something), stares off and 'checks

out', hitting herself (my husband caught her doing this for the first

time a week ago).

but through all this there are the wonderful lovable times that she

thinks she is a comedian. she can be a funny little girl and so

cuddly which this started about 3 months ago.

my other childrens ages are 4.5 months old (boy ~ allergies &

possible asthma), 22.3 month old (boy ~ GERD acid reflux disease &

speech therapy & aversion to solids therapy). 13.5 yr old (girl ~ add

& blackouts & siexure episodes)

~jaden~