Re: Positional Scaphocephaly

[Guest guest]

In a message dated 3/1/01 2:04:42 PM Pacific Standard Time, joanne@... writes:

I am in Australia (Brisbane). If he needed a band would they even have them here, does anyone know?

Here is 's email address - lisaferris@...

I posted a message to her and have not heard from her yet!

About banding. I encouraged her to contact Orthomerica, here is web site.

Orthomerica If you can find a local orthotics person willing to try? I'm not sure I would want to be the first one but someone has to be at some point so...

Anyway Craniosynostosis and Parents Support site. Check it out if you haven't done so. If cranio some get helmet/band therapy after but not sure if all.

Welcome!

Tammy & 12/8/99

[Guest guest]

Joanne...

My daughter has positional scaphocephaly and we are getting treatment with

the DOC band. We too thought Aimee had cranio but after a catscan it was

determined that she didn't. I can't help with any info as far as if there

is some place in Australia for you or not but just wanted to let you know

that there is hope for babies with this type of plagio. My daughter has

been in her band now 3 months and we have seen GREAT improvment! Have faith

and best of luck to you!

Domi and Aimee (14 months old, banded since Nov.2000)

----- Original Message -----

From: <joanne@...>

<Plagiocephaly >

Sent: Thursday, March 01, 2001 4:02 PM

Subject: Positional Scaphocephaly

> Hi everyone,

>

> We are currently looking into whether my son has craniosynostosis or

> positional scaphocephaly. Does anyone have any experience or info

> about positional scaphocephaly?

>

> is almost 5mo and his head is approx 10.5cm by 15.5cm, has

> some ridging but it is not done the sagittal suture as much as it is

> from the anterior fontanelle to the forehead. whether he lays on his

> front or back he generally turns his head to one side or the other.

>

> I am in Australia (Brisbane). If he needed a band would they even

> have them here, does anyone know?

>

>

>