Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 I think one thing to consider when contacting the media is this... MOST support the Back to Sleep campaign (including most of us here!). The last thing you want to do is to imply that new moms should steer away from a program that has taken down the SIDS rate dramatically. Although we don't mean to do it, it just sounds "anti-back to sleep" when we say "back sleeping caused my child's head to flatten". Of course we want to tell people that this is what happened, but we also need to tell them things like "we support the slogan Back to Sleep, Tummy to Play!" and that new parent's need to know what to look for early on, in order to prevent flattening from happening in the first place. Parents have the right to know that other complications could be involved (such as craniosynostosis or torticollis) that require further medical treatment. Just a few ideas! Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support... ----- Original Message ----- From: CAPSORG@... Plagiocephaly Sent: Friday, March 09, 2001 5:34 AM Subject: Reaching the Media As Jaya said I will call her soon and see what they are thinking but let me tell you what I have learned. I have spent the last year doing what you all are starting to talk about. I have sent email, press kits, you name it, with not much luck. But I have learned. One big thing is you need to get the stories written locally, that is where the bigger media picks up there stories. You all need to find and collect all the other stories about plagio that have been done recently to show other media areas what has been done. And my last idea is what we are doing right now. We are collecting donation in hopes to be able to start a media public awareness campaign. I have been in touch with PR firms and talking about future steps but they all cost money. I am not asking for donations to CAPPS but the more money we raise the better chance we have of seeing a public service announcement within the year helping our cause of children with misshaped head. Just a thought. Pitchke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Kendra - I couldn't agree with you more. I understand that where SIDS is concerned the good out weighs the bad, and I am definately pro - back or side sleeping...but mom's and dad's should know what to watch for...I wish I knew then what I know now!!!! Who doesn't...right? My girlfriend just had a baby and I hate to have done it to her but she is paranoid...not in a bad way I suppose. She puts her little boy on his belly when he is awake, she checks his head all the time, and I also mentioned to her that he favors one side (alot) and explained about Tort - she is asking her Dr at next well visit - she also makes a consious effort to reposition him so that it is harder to turn to his favored side. I wish I knew these things when max was born. I hope everybody knows these things someday! Amy (Max's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 I totally agree, Amy! Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support... ----- Original Message ----- From: syddesi2@... Plagiocephaly Sent: Saturday, March 10, 2001 4:21 PM Subject: Re: Reaching the Media Kendra - I couldn't agree with you more. I understand that where SIDS is concerned the good out weighs the bad, and I am definately pro - back or side sleeping...but mom's and dad's should know what to watch for...I wish I knew then what I know now!!!! Who doesn't...right? My girlfriend just had a baby and I hate to have done it to her but she is paranoid...not in a bad way I suppose. She puts her little boy on his belly when he is awake, she checks his head all the time, and I also mentioned to her that he favors one side (alot) and explained about Tort - she is asking her Dr at next well visit - she also makes a consious effort to reposition him so that it is harder to turn to his favored side.I wish I knew these things when max was born. I hope everybody knows these things someday!Amy (Max's mom) Quote Link to comment Share on other sites More sharing options...
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