todays visit to Childrens Hosp DC,

[Guest guest]

Hello,

I just wanted to let you know, you were correct in that they dont

seem to be supportive of helmets. The Neuro- said J.C. has mild

Plagio and exterior Hydrocephaly bladi bla bla- it was a 5 word name-

in other words that the exterior of his skull probably does have a

little more fluid than than normal and once his brain catches up by

around age 2 to 2 1/2- the extra fluid will be absorbed- about the

plagio- the doc said out of a score 1-10 he is at a 2. with one being

the mildest- because he has reached all of his other milestones and

is so alert- the doc wants us to continue to do follow up visits at

least 2 to 3 more times at 3 mo intervals- if J.C. finds his own

growth curve but just happens to be slightly above the rest- the doc

is worried. but if J.C. starts to go off on his own curve or starts

digressing with any of his milestones(we'll call right away) and he

will schedule a Cat scan- He asked if we really wanted a cat scan

now he would set us up for one- and we could just think about it and

call back if we wanted- he was completely ok with that- there are

pro's and cons to the sedation and radiation involved in the cat scan-

so i guess for right now- i will just watch and watch and watch- I'm

curious how editg did with the appt in Baltimore MD??

Holly in Mount Airy Md

[Guest guest]

Holly,

Glad to hear everything is OK with J.C. I know how worried you were! Thanks for letting us know.

Keep us posted with his progress!

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: hah5252@...

Plagiocephaly

Sent: Monday, February 26, 2001 6:36 PM

Subject: todays visit to Childrens Hosp DC,

Hello,I just wanted to let you know, you were correct in that they dont seem to be supportive of helmets. The Neuro- said J.C. has mild Plagio and exterior Hydrocephaly bladi bla bla- it was a 5 word name- in other words that the exterior of his skull probably does have a little more fluid than than normal and once his brain catches up by around age 2 to 2 1/2- the extra fluid will be absorbed- about the plagio- the doc said out of a score 1-10 he is at a 2. with one being the mildest- because he has reached all of his other milestones and is so alert- the doc wants us to continue to do follow up visits at least 2 to 3 more times at 3 mo intervals- if J.C. finds his own growth curve but just happens to be slightly above the rest- the doc is worried. but if J.C. starts to go off on his own curve or starts digressing with any of his milestones(we'll call right away) and he will schedule a Cat scan- He asked if we really wanted a cat scan now he would set us up for one- and we could just think about it and call back if we wanted- he was completely ok with that- there are pro's and cons to the sedation and radiation involved in the cat scan-so i guess for right now- i will just watch and watch and watch- I'm curious how editg did with the appt in Baltimore MD??Holly in Mount Airy Md

[Guest guest]

Holly,

Please keep us posted on your progress. I'm glad to hear that the doctor

thinks the plagio is so mild.

Marci (Mom to )

Oklahoma

[Guest guest]

Hi,

I noticed that I am not getting all the e-mails from the group -- I was just

curious about this subject, since we first tried Children's Hospital in DC

and they told us that 's head would round out on it's own with

re-positioning -- this was when she was 7 months old. It never did. She is

now 13 months old and we got the DOC Band last month, and it is working

beautifully!

Could someone please forward the original e-mail to me (johnson1198@...)?

Thank you!

-- & --

[Guest guest]

:

I'm not sure which email you mean, but you can search the archives (Messages link). There is a search engine there. Just type in the subject/author you are looking for.

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: johnson1198@...

Plagiocephaly

Sent: Thursday, March 01, 2001 5:54 PM

Subject: Re: todays visit to Childrens Hosp DC,

Hi,I noticed that I am not getting all the e-mails from the group -- I was just curious about this subject, since we first tried Children's Hospital in DC and they told us that 's head would round out on it's own with re-positioning -- this was when she was 7 months old. It never did. She is now 13 months old and we got the DOC Band last month, and it is working beautifully!Could someone please forward the original e-mail to me (johnson1198@...)? Thank you!-- & --

[Guest guest]

Kendra,

I am sorry -- I am not very good at this internet stuff -- How do I get to

the messages?

Thank you!

-- --

[Guest guest]

Kendra,

Thank you for the info - yes, I am trying to get to the archives - but the

only option it will allow me to choose is " Home " . It won't let me choose

" messages, chat, files " , etc. (I signed in with my name and password.)

Do I have to pay to belong to the group since I am an AOL member?

Sorry to do this to you, but there are a few items I am anxious to look at

(the above subject and the petition for .)

Thank you so much for your help!

-- --

[Guest guest]

Kendra:

THANK YOU, THANK YOU, THANK YOU!!!!! I did it! Thank you so much for being

patient with me! I just may get this internet thing figured out yet!

Thank you again

-- --

[Guest guest]

:

You're looking for the archives, right?

Ok, go to the plagio home page Plagiocephaly . On the left you will see a list of links. Click MESSAGES. Once you're there, in the upper right corner, you will see a search box. Type in the subject/author of the message you were looking for, and hit SEARCH.

If you need more help, let me know.

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: johnson1198@...

Plagiocephaly

Sent: Friday, March 02, 2001 8:09 AM

Subject: Re: todays visit to Childrens Hosp DC,

Kendra,I am sorry -- I am not very good at this internet stuff -- How do I get to the messages?Thank you!-- --

[Guest guest]

:

NO!!!! Of course you don't have to pay! I'll go see if I can out anything. Be right back!

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: johnson1198@...

Plagiocephaly

Sent: Friday, March 02, 2001 12:28 PM

Subject: Re: todays visit to Childrens Hosp DC,

Kendra,Thank you for the info - yes, I am trying to get to the archives - but the only option it will allow me to choose is "Home". It won't let me choose "messages, chat, files", etc. (I signed in with my name and password.) Do I have to pay to belong to the group since I am an AOL member?Sorry to do this to you, but there are a few items I am anxious to look at (the above subject and the petition for .)Thank you so much for your help!-- --

[Guest guest]

:

It looks as tho your account hasn't been transferred to . Somewhere up in the left corner of the homepage, you will see something for eGroups members (it's a square). Click on it, and it will help you transfer over. It only takes a minute.

Let me know!

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: johnson1198@...

Plagiocephaly

Sent: Friday, March 02, 2001 12:28 PM

Subject: Re: todays visit to Childrens Hosp DC,

Kendra,Thank you for the info - yes, I am trying to get to the archives - but the only option it will allow me to choose is "Home". It won't let me choose "messages, chat, files", etc. (I signed in with my name and password.) Do I have to pay to belong to the group since I am an AOL member?Sorry to do this to you, but there are a few items I am anxious to look at (the above subject and the petition for .)Thank you so much for your help!-- --

[Guest guest]

No problem, . I'm glad you're finally in. Hooray!

Kendra in Canadawww.plagiocephaly.org/support...

----- Original Message -----

From: johnson1198@...

Plagiocephaly

Sent: Friday, March 02, 2001 4:53 PM

Subject: Re: todays visit to Childrens Hosp DC,

Kendra:THANK YOU, THANK YOU, THANK YOU!!!!! I did it! Thank you so much for being patient with me! I just may get this internet thing figured out yet!Thank you again-- --