Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Jayson, I have had that and chalked it up to the Fibro. Have you read Devin Starlanyl's books on fibro ? (she has two). They are the most awesome reads and so LOADED with info. WHen my legs hurt liek this, I am usually in a fibro flare. Sometimes it's my back, sometimes it's my legs. Go figure. LeAnn in OK P since 1985, PA since 1999, dxed with fibro 2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 jayson sometimes i get a throbing in my lower legs that doesnt go away it feels like an aching. not sure if this is what you mean keri [ ] What is this? Hi everyone, I'm experiencing something that I'm wondering if anyone else here has ever had. The only way I cn think of to explain it is that my legs, from top to bottom, have a deep ache and I feel as if I need to constantly be tensing up and releasing the tension in my legs. It's like I wish someone could put my legs in a big vice grip and then let go over and over. They feel a little weak too, not majorly weak, but a little weak. I haven't been this uncomfortable in a long time, and that's saying something. LOL. Anyone know what I'm talking about? Jayson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Jayson, Do your legs fell jumpy? Could it be Restless Leg Syndrome? Occasionally, I have RLS, it feels like you can't hold your legs still. It's not really painful, but very uncomfortable. I will stand with my hands on the wall and raise up on my toes until the calves of my legs hurt. It seems like it feels better if they hurt. Sometimes my muscle relaxer will cause this, and sometimes when I take Excedrin PM it will happen. Most of the time, I don't really know what causes it. Becky _____ From: [mailto: ] On Behalf Of Jayson Barsic Sent: Monday, June 27, 2005 11:57 AM Subject: [ ] What is this? Hi everyone, I'm experiencing something that I'm wondering if anyone else here has ever had. The only way I cn think of to explain it is that my legs, from top to bottom, have a deep ache and I feel as if I need to constantly be tensing up and releasing the tension in my legs. It's like I wish someone could put my legs in a big vice grip and then let go over and over. They feel a little weak too, not majorly weak, but a little weak. I haven't been this uncomfortable in a long time, and that's saying something. LOL. Anyone know what I'm talking about? Jayson _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hi Jayson, I think I know what you're talking about, but I haven't gotten a handle on what I'm feeling in my legs. It's a deep ache from hips to knees, not too strong, kind of vague, and I also feel a slight shakyness as if from weakness. I'm wondering if it's related to something in my lower back, where I've been experiencing some pain. Is this similar to what you're feeilng? - Haleila >Hi everyone, > >I'm experiencing something that I'm wondering if anyone else here has >ever had. The only way I cn think of to explain it is that my legs, >from top to bottom, have a deep ache and I feel as if I need to >constantly be tensing up and releasing the tension in my legs. It's >like I wish someone could put my legs in a big vice grip and then let >go over and over. They feel a little weak too, not majorly weak, but a >little weak. I haven't been this uncomfortable in a long time, and >that's saying something. LOL. Anyone know what I'm talking about? > >Jayson > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 Sounds like fibromyalgia I know that was some of the symptoms I had June > Hi Jayson, > I think I know what you're talking about, but I haven't gotten a > handle on what I'm feeling in my legs. It's a deep ache from hips to > knees, not too strong, kind of vague, and I also feel a slight > shakyness as if from weakness. I'm wondering if it's related to > something in my lower back, where I've been experiencing some pain. > Is this similar to what you're feeilng? > - Haleila > > > > >Hi everyone, > > > >I'm experiencing something that I'm wondering if anyone else here has > >ever had. The only way I cn think of to explain it is that my legs, > >from top to bottom, have a deep ache and I feel as if I need to > >constantly be tensing up and releasing the tension in my legs. It's > >like I wish someone could put my legs in a big vice grip and then let > >go over and over. They feel a little weak too, not majorly weak, but a > >little weak. I haven't been this uncomfortable in a long time, and > >that's saying something. LOL. Anyone know what I'm talking about? > > > >Jayson > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 Becky, Muscle Relaxants are supposed to STOP RLS. You need to bring this up with your doctor. RLS many times co-exists with Fibro. So that is another thing to look at. I suspect I have it in my sleep, because I notice many times when I wake up, the dogs are no longer with me except for little deaf-blind Meriko, who is my velcro baby! LeAnn in OK P since 1985, PA since 1999, dxed with Fibro 2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 I'm experiencing something that I'm wondering if anyone else here has ever had... My legs, have a deep ache... I sometimes get a feeling thru my arms that goes across my back. Its sort of an acheyness or uncomfortableness. Sort of like when you cant find a comfortable position. The doctors just look at me with a blank stare when i try to describe it. If this is what you are feeling, count me in. cfsguy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 csfguy, I am going to echo what I have said before. WHat you have is symptoms of Fibromyalgia. Gosh. Doctors sure need to pay attention and EDUCATE themselves. My mom and I get exactly what you have. On some days it goes to downright screaming pain like someone stabbing ur back. Sadly, many people with autoimmune disorders suffer from Fibromyalgia too and too many doctors either refuse to believe it exists, or just plain dont KNOW about it. That is why we have to research ourselves, educate ourselves, then describe more precise to our Rheumys and INSIST on a trigger point exam! LeAnn in OK P since 1985, PA since 1999, dxed with Fibro 2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Over the past few years I've noticed these large capsule like things in my bms and I've also vomitted some of them up. They are brown or red and look like the hot tamales candy but about 3-4 times larger. When I've vomitted them up I've handled them. They have a jelly like outer coating and when cut open they contain many white dots with a black dot in the center. I always assumed they were colonies of h.pylori and the coating was the chemicals that h. pylori excretes to protect it from stomach acid. The inside of the capsule looks like some of the pictures I've seen on the net of h. pylori but I haven't found a picture of the capsule like thing anywhere. I know I've had bad bacteria problems in the past but whatever this is it's very hard to get rid of b/c it's been there for a few years. Can anyone help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Dear Friend with No Name, I can suggest two possibilities as a PhD biologist with a background in nutrition: 1) Some of your food supplements are not dissolving in your stomach, but they swell a little and end up looking like this. Believe me, this is not impossible. 2) This may be a parasite...something like a liver fluke or something, I can't tell from your description, even though it is quite graphic. I would not expect you to vomit up liver flukes. It certainly does NOT sound like a bacterial problem. Peace, Kathy E. > > Over the past few years I've noticed these large capsule like things in > my bms and I've also vomitted some of them up. They are brown or red > and look like the hot tamales candy but about 3-4 times larger. When > I've vomitted them up I've handled them. They have a jelly like outer > coating and when cut open they contain many white dots with a black dot > in the center. I always assumed they were colonies of h.pylori and the > coating was the chemicals that h. pylori excretes to protect it from > stomach acid. The inside of the capsule looks like some of the > pictures I've seen on the net of h. pylori but I haven't found a > picture of the capsule like thing anywhere. I know I've had bad > bacteria problems in the past but whatever this is it's very hard to > get rid of b/c it's been there for a few years. Can anyone help? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 hi thanx for the resonse. no I'm actually not on antifungals. I was on coconut oil but ran out and haven't been using even that for sometime. waiting on the new batch to come, so dont know if my symptoms are die off or not. Just basically doing the diet. Guess it could be some die off though..it's irritating and really embarrassing. I dont trust myself to go around to my brother's house because I was in their kitchen talking and I knew it was coming and I didn't get out of there in time it was too late. No noise, but the smell was out of this world. everyone just went quiet and got out pretty quick. Guess I was hoping theyd think it was the cat or something but their cat was outside at the time. I hope this is temporary ;-) Adam. > > Definetely sounds like die off to me!! When yeast dies it releases gas which causes > flatulence. Have you started your antifungals too early? The same happend to me when I > did. Just stick with the diet until your die off lowers. > in DC > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 > > hi thanx for the resonse. no I'm actually not on antifungals. I was > on coconut oil but ran out and haven't been using even that for > sometime. waiting on the new batch to come, so dont know if my > symptoms are die off or not. Just basically doing the diet. Guess > it could be some die off though..it's irritating and really > embarrassing. I dont trust myself to go around to my brother's house > because I was in their kitchen talking and I knew it was coming and I > didn't get out of there in time it was too late. No noise, but the > smell was out of this world. everyone just went quiet and got out > pretty quick. Guess I was hoping theyd think it was the cat or > something but their cat was outside at the time. I hope this is > temporary ;-) ==>Hi Adam. Yes, having gas problems is temporary. I had an extremely embarrassing moment when I had candida. My boss was talking to me and in the middle of his speech I let one that was like you say " out of this world " , foul, digusting, etc. We were both very overwhelmed, to say the least, but I couldn't move because he was still talking. Holey moley was my face red! ==>When candida is being killed off, and also when it is overgrowing, one of the over 79 chemicals it puts out is carbon dioxide (gas) which causes bloating, pain and foul smelling flatulence. The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Hi Bee Thanx at least Im not alone lol. Not fun huh? I just hope its not overgrowth thats doing this. Im trying hard and its been about a week since I ate what I shouldnt have eaten. I dont know how long it takes after a bad slip up to improve but Im having problems with the anal itching, flatulence and fatigue and achiness and heart racing and the lot. cant quite figure out whats going on. Adam. > > > > > ==>When candida is being killed off, and also when it is overgrowing, > one of the over 79 chemicals it puts out is carbon dioxide (gas) > which causes bloating, pain and foul smelling flatulence. > > The best to you, Bee > Quote Link to comment Share on other sites More sharing options...
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