Re: how many of on the board are close to recovery

[Guest guest]

Selena,

I think anxiety is such a huge part of our lifes now

that we have a child/children on the spectrum. I

don't think we will ever get rid of that " feeling "

completely!

I know some kids who were just like my son at dx and

who are doing a TON better than my son without

biomed...and, yet, I know alot of kids who were just

like my son at dx and who are unchanged as well.

I think with every therapy, some kids just respond

differently. My son never shows a HUGE improvement

from any of the biomed approaches. Over time, I do

think it has helped...but, we've never experienced the

AH HAs that so many have experienced. Its up and

down. Just when I think something is working, my son

takes a nose dive. Or, just when i think he is

regressing, he comes back and does something amazing!

I think we are all in this for the long haul.

I feel for those parents who children just don't show

improvement at all from any of the therapies be it ABA

or biomed. I am thankful, I am not one of those

parents yet. I feel in time I might be...that my son

will level off. But, I will keep fighting and so will

you!

Lori

--- selena edwards jacobs <edwards_jacobs@...>

wrote:

> I don't know if this question is inappropiate, but

> this board is so extensive and knowledgable that a

> little roll call encouragement on my part is needed.

> I

> talked with a parent that has tried almost

> everything

> and nothing has changed and so I hoping for a blast

> of

> hope from you guys. I am new to the autism struggle

> and all these biomedical treatments seem so

> encouraging and now a ball has dropped and ow I have

> anxiety again.Please help!

>

> __________________________________________________

>

[Guest guest]

-Hi Selena, My son went from a child who couldn't walk or talk to

one who just made the honor roll (WITHOUT the help of his para)and

also ran for class rep to run for class president and is taking

taekwondo.This is all due to detox. R-- In

, selena edwards jacobs

<edwards_jacobs@...> wrote:

>

> I don't know if this question is inappropiate, but

> this board is so extensive and knowledgable that a

> little roll call encouragement on my part is needed. I

> talked with a parent that has tried almost everything

> and nothing has changed and so I hoping for a blast of

> hope from you guys. I am new to the autism struggle

> and all these biomedical treatments seem so

> encouraging and now a ball has dropped and ow I have

> anxiety again.Please help!

>

> __________________________________________________

>

[Guest guest]

Count us as one almost recovered, and one baby doing excellent.

how many of on the board are close to recovery

I don't know if this question is inappropiate, but

this board is so extensive and knowledgable that a

little roll call encouragement on my part is needed. I

talked with a parent that has tried almost everything

and nothing has changed and so I hoping for a blast of

hope from you guys. I am new to the autism struggle

and all these biomedical treatments seem so

encouraging and now a ball has dropped and ow I have

anxiety again.Please help!

__________________________________________________

[Guest guest]

A little roll call encouragement on my part is needed.

My son at diagnosis had little pragmatic language, poor receptive language

and wanted to be carried everywhere. He had some weird stims especially

visual ones, he couldn’t play with his toys – only line them up. He flipped

pages of books without looking at them. His big sister had a sign on the

door “Keep Out Adam” – he didn’t want to play – just line up all her stuff

too!

Within days of starting interventions, that sign had come down. Nowadays, 2

years down the track (he’s 5 nearly 6) he rarely stims, has great

imaginative play, speaks in several word sentences, loves looking/”reading”

book, writes words and draws pictures. He’s above average in terms of

everything except language and social graces . . . and he’s catching up

there. He rides his bike up hill and down dale in our big back yard and

only rarely wants to be carried.

He started pre-school at a little local (NT) school a couple of weeks ago

with a part time aide (our school year just started here in Australia) and

so far so good.

Still a long way to go, but have come so far already:-)

Meanwhile, my baby is now 2 ½ and has NOT regressed into autism despite

showing signs earlier that he probably would.

Autism IS treatable and preventable

Chin up and good luck

:-)

[Guest guest]

That's wonderful! What treatments did he get the most out of?

[Guest guest]

That's wonderful! What treatments did he get the most out of?

[Guest guest]

We are very close. Went from inability to carry on a reciprocal

conversation, verbal apraxia, fine/gross motor skill deficits, balance

problems, sensory integration difficulties to being completely on her own in

a NT preschool with one year of chelation.

She started with minimal age appropriate speech i.e, three word sentences at

three years to testing this last summer at 4.5 years with receptive and

expressive language test scores at least two years above age level. Social,

according to her teacher, is age appropriate.

We still have some work to do with her immune system, but, really pleased

with her progress.

Good luck to you, Selena, and all,

how many of on the board are close to recovery

>I don't know if this question is inappropiate, but

> this board is so extensive and knowledgable that a

> little roll call encouragement on my part is needed. I

> talked with a parent that has tried almost everything

> and nothing has changed and so I hoping for a blast of

> hope from you guys. I am new to the autism struggle

> and all these biomedical treatments seem so

> encouraging and now a ball has dropped and ow I have

> anxiety again.Please help!

>

> __________________________________________________

>

[Guest guest]

I just put a huge spreadsheet together, for husband and myself, and it

was awesome to see on paper how he has improved. He’s had 5 assessments

since he was 21 months and at that time was scoring at 7 months. When

he was 3 we put him in regular preschool and he functioned there and

‘blended’ but was unable to tell me what his day consisted of, unable to

answer questions, mild stemming, still using echolalia, phrasing from

his movies and books was the bulk of his speech, night terrors, blank

doped out look in his eyes.

Last May, he was 4, we took him to an ND. To this point he had only had

speech and OT for 2 years. WE ran 4 labs, hair, stool (yeast), blood

(zinc/copper) and Peptide and our results created his care plan. Within

a week of removing dairy and starting her care plan his tantrums

subsided and his speech took off. He also did Homeopathy. Last summer

was his biggest jump developmentally ever. His speech therapist, who

had seen him for almost 2 years was shocked this summer. Since his head

was ‘clear’ he was really able to ‘get’ the therapy sessions and thrive

in them. We ran the OAT lab in Oct and he started 5 new things in Dec

and we saw about 3 weeks of regression. 2 pee accidents at school,

laying on the floor a lot, not engaging with his 2 best friends, dark

circles under his eyes. His teacher was concerned, he acted super

fatigued most of the day and started falling asleep in the truck at 1:00

in the afternoon on the way to therapy. He had the same sleep, so I

think his body was in over drive. After the 3 weeks, everything came

back, but he still has the dark circles under his eyes and I’m told they

could be allergy shiners, or lack of Vit D (Sun). I just ordered a food

allergy test from Great Plains to see what is going on there. So the

long of the short is…he is light years after starting his care plan last

May.

RE: how many of on the board are close to recovery

A little roll call encouragement on my part is needed.

My son at diagnosis had little pragmatic language, poor receptive

language

and wanted to be carried everywhere. He had some weird stims especially

visual ones, he couldn’t play with his toys – only line them up. He

flipped

pages of books without looking at them. His big sister had a sign on the

door “Keep Out Adam” – he didn’t want to play – just line up all her

stuff

too!

Within days of starting interventions, that sign had come down.

Nowadays, 2

years down the track (he’s 5 nearly 6) he rarely stims, has great

imaginative play, speaks in several word sentences, loves

looking/”reading”

book, writes words and draws pictures. He’s above average in terms of

everything except language and social graces . . . and he’s catching up

there. He rides his bike up hill and down dale in our big back yard and

only rarely wants to be carried.

He started pre-school at a little local (NT) school a couple of weeks

ago

with a part time aide (our school year just started here in Australia)

and

so far so good.

Still a long way to go, but have come so far already:-)

Meanwhile, my baby is now 2 ½ and has NOT regressed into autism despite

showing signs earlier that he probably would.

Autism IS treatable and preventable

Chin up and good luck

:-)

[Guest guest]

> I don't know if this question is inappropiate, but

> this board is so extensive and knowledgable that a

> little roll call encouragement on my part is needed. I

> talked with a parent that has tried almost everything

> and nothing has changed and so I hoping for a blast of

> hope from you guys.

My son is almost finished with biomedical intervention. His dx is

" classic Kanner's autism " , severe, low functioning. Right now, he no

longer qualifies as autistic, altho he still has significant language

delay, because he started so severely low functioning. So you would

never mistake him for age-appropriate, he basically looks like a 3yo

child in a 10yo body. But no longer autistic!

More stories of recovery here

http://www.danasview.net/recover.htm

Dana

[Guest guest]

We are very close to recovery. From 2.5 years ago, when Ben had about 10 words,

unclear

speech, severe sensory problems, screaming all the time, receptive and

expressive

language disorder (phonological), we now have a child who has been mainstreamed

in

Head Start for two years, and will probably start a regular kindergarten class

in the fall. He

has excellent eye contact, plays with the other children (although social graces

still need

some work), jokes frequently, is usually a happy child, very polite, uses whole

sentences

appropriately, was in the Church Christmas pageant and did a great job as a

shepherd, is

advanced academically and a computer mentor for the other children. He

recognizes other

people's emotions. He narrates things that happened in school. He has also lost

his delays

in the fine motor coordination area. He had vestibular problems which are now

only

noticeable as occasional motion sickness. He now has speech therapy only in

school, and

therapeutic horseback riding on Wednesdays.

We started ProEFA in Nov. 2003 and speech and occupational therapy shortly

thereafter.

In July-August 2004 I did Fast Forward Basics with him at home. Last spring we

started

Juice Plus and Sea Buddies Multiple Vitamins, and then the Houston Enzymes (Zyme

Prime

and AFP Peptizyde). We are starting a gluten-free diet, because his

anti-gliadin IgA and

his anti-tissue transglutaminase are still high, and he is on a low-milk, no

lactose

restriction, too. But he is a well-liked and happy child at his preschool and

at home. We

have just started to play some CDs for him at night to help him sleep and

continue to

develop.

There are still some deficit areas. He is potty trained for urine, wears

underwear to school,

but not yet for defecation. (But he does that only at home so it does not cause

problems

in school.) He is still a very picky eater.

But from where we started, I would have to say we are really quite close to

recovery. I'm

still attending the CARD seminars that are available around here (today I was at

an all-day

workshop on teaching social skills to children and adolescents on the autism

spectrum),

but we really think he can go to kindergarten without an aide, and his

pediatrician said

yesterday she now thinks he will be independent as an adult.

Peace,

Kathy E.

>

> We are very close. Went from inability to carry on a reciprocal

> conversation, verbal apraxia, fine/gross motor skill deficits, balance

> problems, sensory integration difficulties to being completely on her own in

> a NT preschool with one year of chelation.

>

> She started with minimal age appropriate speech i.e, three word sentences at

> three years to testing this last summer at 4.5 years with receptive and

> expressive language test scores at least two years above age level. Social,

> according to her teacher, is age appropriate.

>

> We still have some work to do with her immune system, but, really pleased

> with her progress.

>

> Good luck to you, Selena, and all,

>

>

> how many of on the board are close to recovery

>

>

> >I don't know if this question is inappropiate, but

> > this board is so extensive and knowledgable that a

> > little roll call encouragement on my part is needed. I

> > talked with a parent that has tried almost everything

> > and nothing has changed and so I hoping for a blast of

> > hope from you guys. I am new to the autism struggle

> > and all these biomedical treatments seem so

> > encouraging and now a ball has dropped and ow I have

> > anxiety again.Please help!

> >

> > __________________________________________________

> >