Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 It is interesting you said that 5 days ago we double my son TD glutathione and he started stimming and a lot of autistic symptoms was back. I returned to previous dose and stimming is out the door. Best, H --- Laurie <gencaf@...> wrote: > I am trying to figure this out. My son's yeast is WAY under control, > but we are seeing TONS more visual stims. He had almost completely > stopped the running back and forth looking to the side thing, but now > it has returned and brought with it intense hand gestures (isn't this > called posturing) where he will stare at his hands and turn them all > around and bring them closer to his face, etc. He is doing this A LOT > now. > > His newest addition has been the TD-glut and I wondered if anyone else > had this experience? > > Thanks, > Laurie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 > > I am trying to figure this out. My son's yeast is WAY under control, > but we are seeing TONS more visual stims. He had almost completely > stopped the running back and forth looking to the side thing, but now > it has returned and brought with it intense hand gestures (isn't this > called posturing) where he will stare at his hands and turn them all > around and bring them closer to his face, etc. He is doing this A LOT > now. > > His newest addition has been the TD-glut and I wondered if anyone else > had this experience? For my son, those stims meant a lot of things, including yeast overgrowth. Glutathione does tend to increase yeast. Have you tried increasing your yeast protocol? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 > > It is interesting you said that 5 days ago we double my son TD glutathione and > he started stimming and a lot of autistic symptoms was back. I returned to > previous dose and stimming is out the door. > Best, > H > Thanks Haleh, Maybe I'll try giving it every other day or giving less, although I think that would be difficult the way the cream is. He is only getting 1 cc of it a day. I am not seeing any climbing or other yeast signs, so I doubt it is yeast really. I won't give it today and see what happens. Thanks, Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 According to Keyon's DAN, Glutathione leaves the body quickly, in about 4 hrs or so. Because of that she had us first half g 2x and then 3x per day. Our problem began when we went up to one gram doses. Try dividing your dose to two half and see if that helps. We are fine as long as the doses are 1/2 gram though I do have to get the yeast back under control again and so far, things are improving quickly. Best, Haleh --- Laurie <gencaf@...> wrote: > > > > > It is interesting you said that 5 days ago we double my son TD > glutathione and > > he started stimming and a lot of autistic symptoms was back. I > returned to > > previous dose and stimming is out the door. > > Best, > > H > > > Thanks Haleh, > > Maybe I'll try giving it every other day or giving less, although I > think that would be difficult the way the cream is. He is only > getting 1 cc of it a day. I am not seeing any climbing or other > yeast signs, so I doubt it is yeast really. I won't give it today > and see what happens. > > Thanks, > Laurie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I also had similar experiences with Glutathione, unfortunately, with a gross increase in visual stimming. Toileting schedules regressed also with Glut from 40 mins intervals to 5 minute intervals. It took us over 4 months to get back to 40 minutes after the removal of Glutathione. Some kids really don't need this supplement (their cysteine plasma levels need to be low in order to benefit from Glutathione supplementation) or only need it for a while, then it can do really more harm than good. This was our case, and our doctor had not tested my son's cysteine plasma levels prior to starting the supplementation. We are still battling the increased visual stims behaviorally, although they did get better with 2 months of anti-viral treatment. We had to stop these for now to help my son's BMs get better (OLE issues) but are planning to do perhaps a lower dose of OLE with Virastop because the results are phenomenal. Regarding the Glutathione, I would stop using it for a while, or cut it in half, as Haleh suggested, and see if the behaviors are any different. HTH! haleh niazmand <halniaz@...> wrote: It is interesting you said that 5 days ago we double my son TD glutathione and he started stimming and a lot of autistic symptoms was back. I returned to previous dose and stimming is out the door. Best, H --- Laurie <gencaf@...> wrote: > I am trying to figure this out. My son's yeast is WAY under control, > but we are seeing TONS more visual stims. He had almost completely > stopped the running back and forth looking to the side thing, but now > it has returned and brought with it intense hand gestures (isn't this > called posturing) where he will stare at his hands and turn them all > around and bring them closer to his face, etc. He is doing this A LOT > now. > > His newest addition has been the TD-glut and I wondered if anyone else > had this experience? > > Thanks, > Laurie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Dear , Our increase of TD-Glut was test based. Cysteine is within range but glutenthione is under the reference range and still there is only so much glutathione that my child can tolerate. with 300 mg, he has gains and with 600mg he becomes more autistic. When we tried the oral, he started having liquid BMs for three weeks. Many kids deficient in glut do well on it but it is definitely one that need to be given low and slow and find the optimum level and stop there and that is when the child is lucky because there are a lot of glutathione deficient kids that don't tolerate any form of it (oral or transdermal but I have no experience with IV). A normal plasma cysteine doesn't necessarily mean normal glut levels though. If you find out that your child does not tolerate sulfure based supplements, I do recommend to read up on some of the literature of dr. Amy Yasko on protein metabolism, Ammonia issues etc in order to deal with more preliminary disconnects within the child system first. I wish I could explain it better but you can read on her treatment modality at http://autismanswer.com Best, Haleh --- aedape4 <aedape4@...> wrote: > I also had similar experiences with Glutathione, unfortunately, with a gross > increase in visual stimming. Toileting schedules regressed also with Glut > from 40 mins intervals to 5 minute intervals. It took us over 4 months to > get back to 40 minutes after the removal of Glutathione. Some kids really > don't need this supplement (their cysteine plasma levels need to be low in > order to benefit from Glutathione supplementation) or only need it for a > while, then it can do really more harm than good. This was our case, and our > doctor had not tested my son's cysteine plasma levels prior to starting the > supplementation. We are still battling the increased visual stims > behaviorally, although they did get better with 2 months of anti-viral > treatment. We had to stop these for now to help my son's BMs get better (OLE > issues) but are planning to do perhaps a lower dose of OLE with Virastop > because the results are phenomenal. > Regarding the Glutathione, I would stop using it for a while, or cut it in > half, as Haleh suggested, and see if the behaviors are any different. > > HTH! > > > haleh niazmand <halniaz@...> wrote: > It is interesting you said that 5 days ago we double my son TD glutathione > and > he started stimming and a lot of autistic symptoms was back. I returned to > previous dose and stimming is out the door. > Best, > H > > > --- Laurie <gencaf@...> wrote: > > > I am trying to figure this out. My son's yeast is WAY under control, > > but we are seeing TONS more visual stims. He had almost completely > > stopped the running back and forth looking to the side thing, but now > > it has returned and brought with it intense hand gestures (isn't this > > called posturing) where he will stare at his hands and turn them all > > around and bring them closer to his face, etc. He is doing this A LOT > > now. > > > > His newest addition has been the TD-glut and I wondered if anyone else > > had this experience? > > > > Thanks, > > Laurie > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Dear Haleh, Thanks for your explanation. I still haven't had our son tested for cysteine levels, I was most comfortable not doing any glut supplementation until I know about my child's metabolism more. Waiting to see a new doctor, and hoping to do all this with the help of a professional. Sometimes I think I am really venturing into waters I should not be going into but we have done well, so far so good. Whatever I have decided to change about my son's supplements were to his benefit. I will totally read up on this issue as it sounds pretty fundamental.... and very complex. I will post if I find out more/have experiences to share... Thanks again, haleh niazmand <halniaz@...> wrote: Dear , Our increase of TD-Glut was test based. Cysteine is within range but glutenthione is under the reference range and still there is only so much glutathione that my child can tolerate. with 300 mg, he has gains and with 600mg he becomes more autistic. When we tried the oral, he started having liquid BMs for three weeks. Many kids deficient in glut do well on it but it is definitely one that need to be given low and slow and find the optimum level and stop there and that is when the child is lucky because there are a lot of glutathione deficient kids that don't tolerate any form of it (oral or transdermal but I have no experience with IV). A normal plasma cysteine doesn't necessarily mean normal glut levels though. If you find out that your child does not tolerate sulfure based supplements, I do recommend to read up on some of the literature of dr. Amy Yasko on protein metabolism, Ammonia issues etc in order to deal with more preliminary disconnects within the child system first. I wish I could explain it better but you can read on her treatment modality at http://autismanswer.com Best, Haleh --- aedape4 <aedape4@...> wrote: > I also had similar experiences with Glutathione, unfortunately, with a gross > increase in visual stimming. Toileting schedules regressed also with Glut > from 40 mins intervals to 5 minute intervals. It took us over 4 months to > get back to 40 minutes after the removal of Glutathione. Some kids really > don't need this supplement (their cysteine plasma levels need to be low in > order to benefit from Glutathione supplementation) or only need it for a > while, then it can do really more harm than good. This was our case, and our > doctor had not tested my son's cysteine plasma levels prior to starting the > supplementation. We are still battling the increased visual stims > behaviorally, although they did get better with 2 months of anti-viral > treatment. We had to stop these for now to help my son's BMs get better (OLE > issues) but are planning to do perhaps a lower dose of OLE with Virastop > because the results are phenomenal. > Regarding the Glutathione, I would stop using it for a while, or cut it in > half, as Haleh suggested, and see if the behaviors are any different. > > HTH! > > > haleh niazmand <halniaz@...> wrote: > It is interesting you said that 5 days ago we double my son TD glutathione > and > he started stimming and a lot of autistic symptoms was back. I returned to > previous dose and stimming is out the door. > Best, > H > > > --- Laurie <gencaf@...> wrote: > > > I am trying to figure this out. My son's yeast is WAY under control, > > but we are seeing TONS more visual stims. He had almost completely > > stopped the running back and forth looking to the side thing, but now > > it has returned and brought with it intense hand gestures (isn't this > > called posturing) where he will stare at his hands and turn them all > > around and bring them closer to his face, etc. He is doing this A LOT > > now. > > > > His newest addition has been the TD-glut and I wondered if anyone else > > had this experience? > > > > Thanks, > > Laurie > --------------------------------- Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
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