Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 , You will probably receive many good suggestions which should be considered. Our " behavior " situation ended up being an undiagnosed case of strep throat which resulted in severe behavior problems. My son's throat was not red nor sore by the time I asked for a throat culture for strep throat. The culture came back positive for strep and the strep antibody levels were extremely high. My son eventually fit the criteria for PANDAS. My PANDAS webpage is down right now, back up in a few days, but meanwhile you can read some about PANDAS at http://intramural.nimh.nih.gov/pdn/web.htm . I'll soon get my info back up at www.enzymestory.com/PANDAS.html . It's so hard to diagnose behavior changes, but I wanted to share our story. I hope you find your answer soon. > My 5 year old DS with Asperger's/ADHD has been completely GFCF for 7months. > He also takes the Houstons trio of Enzymes and GABA he is also color free. > Latley he has been aggressive with other children. The aggressiveness has > progressively gotten worse and worse with in the last 2 weeks. > I do not know what to do. I have not done anything different. About 3 weeks > ago he did have a Gluten infraction. I thought that was what this was but > now that some other things have subsided this still remains and seems to be > getting worse, which leads me to believe that this may not be the Gluten. The > only other thing different is he usually takes HN- Zyme prime ( with the papaya > and pinapple) but Houstons sent me the kind with out by mistake and he has been > taking that but only for the last maybe 4 days. > Please help me. I am afraid to even let him go to school. Tonight he hit a > girl on his soccer team with a ball in the stomach and then tried to do it > again to some one else. Now my DH ( who has been supportive in the past) thinks > we should just forget all the stuff we have been doing and just medicate!!! > I don't want to medicate, the diet worked so well I thought I would never > have to discuss medication ever again and now this. > I know that some of you do medicate and I do not think that it is bad it is > just not something I want to do right now. He is only 5. > He is such a sweet boy and I want some one else to know that too!!! > Please can anyone give me some advice on how I can get my sweet boy back > again? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Just want you to know I support you on not going the medication route. I have a 10 yr AS son who was on meds for 3 years. He was like a zombie and was so skinny because of lack of appetite. I started the enzymes about 2 months ago and tried taking my son off the meds. It was fine. In fact, people are telling me I have a boy with personality. He has already gained 5 pounds since going off the meds. No other advice except " hang in there " Maybe some social stories can help.... Good luck renee030670@... wrote:My 5 year old DS with Asperger's/ADHD has been completely GFCF for 7months. He also takes the Houstons trio of Enzymes and GABA he is also color free. Latley he has been aggressive with other children. The aggressiveness has progressively gotten worse and worse with in the last 2 weeks. I do not know what to do. I have not done anything different. About 3 weeks ago he did have a Gluten infraction. I thought that was what this was but now that some other things have subsided this still remains and seems to be getting worse, which leads me to believe that this may not be the Gluten. The only other thing different is he usually takes HN- Zyme prime ( with the papaya and pinapple) but Houstons sent me the kind with out by mistake and he has been taking that but only for the last maybe 4 days. Please help me. I am afraid to even let him go to school. Tonight he hit a girl on his soccer team with a ball in the stomach and then tried to do it again to some one else. Now my DH ( who has been supportive in the past) thinks we should just forget all the stuff we have been doing and just medicate!!! I don't want to medicate, the diet worked so well I thought I would never have to discuss medication ever again and now this. I know that some of you do medicate and I do not think that it is bad it is just not something I want to do right now. He is only 5. He is such a sweet boy and I want some one else to know that too!!! Please can anyone give me some advice on how I can get my sweet boy back again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 > Please help me. I am afraid to even let him go to school. Tonight > he hit a girl on his soccer team with a ball in the stomach and then > tried to do it again to some one else. Please can anyone give me > some advice on how I can get my sweet boy back again? > Hi , This may be oversimplifying the matter, but could your son be tired or over stimulated? Is soccer a new thing for him? My five year old NT daughter gets pretty exhausted just from her new experience at kindergarten and then she has soccer two nights a week. The coaches are telling the kids what to do and the parents are yelling. Kind of a stressful environment. Also my 11 year old came home from school just yesterday completly shagged from school and swim practice the night before. His behavoir yesterday was not normal for him. In this day and age, we really expect a lot from these kiddos. Maybe he just needs more down time and another kind of sport...team sports are great...just not for everyone. Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I agree with Robyn. Benny was overstimulated by his speech therapy and would go back to school, even after having a good session, bouncing and hitting and kicking everybody, students and teachers, for a while last spring. He was somewhat better after we suspended the speech therapy...although I'm afraid I have to say, we finally got completely rid of this behavior when his pediatrician gave him 2.5 mg of Adderal/day. It stopped completely overnight. We were afraid he would be thrown out of Head Start! But overstimulation was a big part of the problem...impulse control, possibly from ADHD, seemed to be the rest. Peace, Kathy E. > > Please help me. I am afraid to even let him go to school. > Tonight > he hit a girl on his soccer team with a ball in the > stomach and then > tried to do it again to some one else. Please can > anyone give me > > some advice on how I can get my sweet boy back again? > > > > Hi , > > This may be oversimplifying the matter, but could your son be tired > or over stimulated? Is soccer a new thing for him? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 kids with ASD are usually 2 years behind their NT peers in maturity. 3 yr. olds go through a period of hitting, so this could be " typical " behavior. Latley he has been aggressive with other children. The aggressiveness has progressively gotten worse and worse with in the last 2 weeks. I do not know what to do. I have not done anything different. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 You don't mention a yeast protocol. Yeast can cause aggressive behavior. If you haven't already, you might try grapefruit seed extract or caprylic acid. > My 5 year old DS with Asperger's/ADHD has been completely GFCF for 7months. > He also takes the Houstons trio of Enzymes and GABA he is also color free. > Latley he has been aggressive with other children. The aggressiveness has > progressively gotten worse and worse with in the last 2 weeks. > I do not know what to do. I have not done anything different. About 3 weeks > ago he did have a Gluten infraction. I thought that was what this was but > now that some other things have subsided this still remains and seems to be > getting worse, which leads me to believe that this may not be the Gluten. The > only other thing different is he usually takes HN- Zyme prime ( with the papaya > and pinapple) but Houstons sent me the kind with out by mistake and he has been > taking that but only for the last maybe 4 days. > Please help me. I am afraid to even let him go to school. Tonight he hit a > girl on his soccer team with a ball in the stomach and then tried to do it > again to some one else. Now my DH ( who has been supportive in the past) thinks > we should just forget all the stuff we have been doing and just medicate!!! > I don't want to medicate, the diet worked so well I thought I would never > have to discuss medication ever again and now this. > I know that some of you do medicate and I do not think that it is bad it is > just not something I want to do right now. He is only 5. > He is such a sweet boy and I want some one else to know that too!!! > Please can anyone give me some advice on how I can get my sweet boy back > again? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 > Latley he has been aggressive with other children. For my son, yeast, virus issues, EFA deficiency, deficiencies of certain vitamins, and a few other things, caused aggression. Giving EFAs without mito cocktail and amino acids caused major aggression. > only other thing different is he usually takes HN- Zyme prime ( with the papaya > and pinapple) but Houstons sent me the kind with out by mistake and he has been > taking that but only for the last maybe 4 days. Some kids appear to need the papain/bromelain. Ask for a new bottle. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 , My question is: What if the child had never been treated fo strep? Would the titers just go up and down. I think my son's first episode probably occured 6 yrs ago. My son is also severely apraxic. I am wondering if the swelling of the basal ganglia could cause the apraxia. I am waiting on Jack's 2nd strep test the AOS was over 600 RR-200. Two years ago he had a SPEC scan which stated there was slowing of blood flow in the basal ganglia. nne > > My 5 year old DS with Asperger's/ADHD has been completely GFCF for > 7months. > > He also takes the Houstons trio of Enzymes and GABA he is also > color free. > > Latley he has been aggressive with other children. The > aggressiveness has > > progressively gotten worse and worse with in the last 2 weeks. > > I do not know what to do. I have not done anything different. > About 3 weeks > > ago he did have a Gluten infraction. I thought that was what this > was but > > now that some other things have subsided this still remains and > seems to be > > getting worse, which leads me to believe that this may not be the > Gluten. The > > only other thing different is he usually takes HN- Zyme prime ( > with the papaya > > and pinapple) but Houstons sent me the kind with out by mistake > and he has been > > taking that but only for the last maybe 4 days. > > Please help me. I am afraid to even let him go to school. > Tonight he hit a > > girl on his soccer team with a ball in the stomach and then tried > to do it > > again to some one else. Now my DH ( who has been supportive in > the past) thinks > > we should just forget all the stuff we have been doing and just > medicate!!! > > I don't want to medicate, the diet worked so well I thought I > would never > > have to discuss medication ever again and now this. > > I know that some of you do medicate and I do not think that it is > bad it is > > just not something I want to do right now. He is only 5. > > He is such a sweet boy and I want some one else to know that too!!! > > Please can anyone give me some advice on how I can get my sweet > boy back > > again? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 The titers would go up with a new infection and down as his body's natural defenses fight the infection. It can take a long time for the titers to drop, even when the infection has been successfully treated with antibiotics. Movement disorders have been associated with the basal ganglia; you can do a pubmed.com search or google search and find lots of info to sort through. Also, Tourette's websites are often a good resource for this topic. > > , > > My question is: What if the child had never been treated fo strep? > Would the titers just go up and down. I think my son's first > episode probably occured 6 yrs ago. My son is also severely > apraxic. I am wondering if the swelling of the basal ganglia could > cause the apraxia. I am waiting on Jack's 2nd strep test the AOS > was over 600 RR-200. Two years ago he had a SPEC scan which stated > there was slowing of blood flow in the basal ganglia. > > nne Quote Link to comment Share on other sites More sharing options...
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