Advice on going GF/CF

[Guest guest]

Received urinary peptide test on my daughter. Showed high levels of

Casein peptides. Wheat was under normal, but on the higher end of

normal. Do people have success with doing just CF? Or do you always

have to do both? With casein free do you have to take out all dairy,

even baked, as an ingredient in food, etc??? I know some people can

have sensitivity to " straight " dairy, but tolerate other forms, etc.

Any suggestions on strategy would be helpful! Any product

recommendations, etc. We do use an enzyme product. I feel like it

will be challenging to do casein free. It seems that gluten is

easier! Thanks!

[Guest guest]

If you are new to this diet I would really recommend Special Diets for Special

Kids by . This is a really great book. Lots of information about

starting the diet...the hows and whys, everything. It also has lots of great

recipes. You can do just CF, it is actually the easier of the two. Did you

also do a IgG test? That will difinitively tell you if there are problems. It

also will tell you if any of the 90+ foods are not tolerated by your child.

Many kids have multiple allergies. If she tested high like that with gluten I

would suspect that isn't really tolerated either, sorry.

It will be a challenge in the beginning but like anything it gets easier and

easier until it is the normal thing to do. If your child doesn't tolerate

casein you will likely see a difference when you get it out of their system.

Enzymes can help but it depends on the child. My son takes enzymes but they

don't work well for dairy but do really well for gluten. Other kids it is

different. Might be helpful to take it out for awhile and then add enzymes and

then add the food back. That way you will know what does what.

When you do a casein free diet you do take out everything that has any dairy

in it. A website I used to use is gfcfkids.com. It was helpful for me.

jennaleeck <superkempusa@...> wrote:

Received urinary peptide test on my daughter. Showed high levels of

Casein peptides. Wheat was under normal, but on the higher end of

normal. Do people have success with doing just CF? Or do you always

have to do both? With casein free do you have to take out all dairy,

even baked, as an ingredient in food, etc??? I know some people can

have sensitivity to " straight " dairy, but tolerate other forms, etc.

Any suggestions on strategy would be helpful! Any product

recommendations, etc. We do use an enzyme product. I feel like it

will be challenging to do casein free. It seems that gluten is

easier! Thanks!

[Guest guest]

Hi

We're GFCF and prior to starting I was very wary of it.

It was a daunting undertaking, but we've been GFCF for just about

10mos now and it's easy.

Easy as in - not terrifying anymore. There are alot of food options

out there and it's easily accessible (albeit more expensive). And if

your going to remove casein - remove it all to get the best benefits.

I will be speaking to our Naturopath about re-introducing wheat/gluten

at some point but I highly doubt I will ever give him anything with

dairy/casein in it.

~

>

> Received urinary peptide test on my daughter. Showed high levels of

> Casein peptides. Wheat was under normal, but on the higher end of

> normal. Do people have success with doing just CF? Or do you always

> have to do both? With casein free do you have to take out all dairy,

> even baked, as an ingredient in food, etc??? I know some people can

> have sensitivity to " straight " dairy, but tolerate other forms, etc.

> Any suggestions on strategy would be helpful! Any product

> recommendations, etc. We do use an enzyme product. I feel like it

> will be challenging to do casein free. It seems that gluten is

> easier! Thanks!

>

[Guest guest]

My son is CF only. We had to take it all out, baked goods too. I found

wheat bread made with honey at Safeway in the Gourmet breads (

Bakery) and it is all natural, he has come to love Rice Milk and it is

enriched with Calcium and D. Rice Slice cheese (Whole Foods or Safeway

with the natural foods), Rice Dream ice cream (Whole Foods) and lots of

dairy free stuff at Whole Foods. For Birthday parties I bring a drink

for him (no artificial coloring either) and a cookie or dairy free

cupcake. He tells the hostess he is allergic to the pizza cheese:-) It

was a pretty big event getting rid of yogurt (he was truly addicted) but

it only took about 2 weeks and then he found he liked the rice stuff. I

don't have any of the stuff he can't have that he normally would crave

in the house for him. I was letting him have a Sprite cut with water at

restaurants, but too much sugar for the yeast, so I have brought an

EmergenC pack and put a drop in his water (not the whole pouch) and he

feels like he is having a treat drink. We haven't run a new peptide lab

since last may and just started the Houston enzymes today, actually.

Hoping to reintroduce some baked things with dairy in a month and give

it a try. I've heard from many that keeping off the 'real milk' stuff

would benefit him while his body and brain do the recovery stuff. Since

he love Rice Milk, I will keep him off drinkable milk.

Advice on going GF/CF

Received urinary peptide test on my daughter. Showed high levels of

Casein peptides. Wheat was under normal, but on the higher end of

normal. Do people have success with doing just CF? Or do you always

have to do both? With casein free do you have to take out all dairy,

even baked, as an ingredient in food, etc??? I know some people can

have sensitivity to " straight " dairy, but tolerate other forms, etc.

Any suggestions on strategy would be helpful! Any product

recommendations, etc. We do use an enzyme product. I feel like it

will be challenging to do casein free. It seems that gluten is

easier! Thanks!

[Guest guest]

>> Received urinary peptide test on my daughter. Showed high levels of

> Casein peptides. Wheat was under normal, but on the higher end of

> normal.

High casien peptide readings *may* indicate that going dairy free will

be helpful, but you can also have high peptides and not have any

problem with dairy at all. Just the test isn't able to tell you what

exactly is the cause of the readings or what exactly will fix the

problem...or if high peptides is even abnormal.

>>>Do people have success with doing just CF? Or do you always have to

do both?

Some people do quite well with just casein/dairy-free. Some only need

gluten free, some need both out, and some are fine with casein and

gluten but find other foods a problem. You can experiment a bit. If you

find that taking dairy out of the diet is helpful, remember that it

might be something in the diary besides casein. Here is some info on

the various issues with dairy and another bit on gluten:

http://www.enzymestuff.com/discussiondairy.htm

http://www.enzymestuff.com/rtgluten.htm

>>>With casein free do you have to take out all dairy, even baked, as

an ingredient in food, etc??? I know some people can have sensitivity

to " straight " dairy, but tolerate other forms, etc.

You can experiment with your situation. Dairy-free and casein-free are

different things. Casein is one of several proteins in dairy. Some

foods have casein as an added ingredient (soy and rice cheeses for

example). Generally, when someone is casein or dairy free, this

includes all forms of the item...including in baked goods.

Please note that some kids who are for the most part casein-free, do

fine with raw milk, homemade yogurt, some cheeses, goat milk, and other

variations. Just try to find out what you can tolerate as you have

time. There really isn't just one way that everyone must do.

I think the hardest part about gluten, dairy, soy, corn-free or other

common foods is that bits of these foods are added ingredients in so

many many foods! For example, when we were trying casein-free with my

son, there was trace amounts of dairy in things like graham crackers.

He couldn't have the crackers even though crackers are not even close

to being considered dairy.

.

[Guest guest]

I read the two attachments, interesting. So are peptides not

necessarily bad?? What would the general recommendation be? Would I

take all dairy (butter, milk, eggs, cheese) and see if there are any

improvements? I feel like that would be a good first step, then

maybe baked dairy? I feel like waiting on the gluten, so not to

overwhelm myself. What types of improvement would/should I see? My

thought is that some dairy (like butter) seems better than something

like margarine which is chemically engineered and not a natural

product. Is Smart Balance approved on CF? The other thing I came

across was that soy can produce peptides. DOes this mean soy is

bad?? My thought was that I could substitute milk cheese with soy

cheese, but is this just trading one allergy to another. I know she

had the worst diarrhea ever the one time I gave her soy milk so I

never gave it to her again. Are there other cheese products??

>

> >> Received urinary peptide test on my daughter. Showed high

levels of

> > Casein peptides. Wheat was under normal, but on the higher end

of

> > normal.

>

> High casien peptide readings *may* indicate that going dairy free

will

> be helpful, but you can also have high peptides and not have any

> problem with dairy at all. Just the test isn't able to tell you

what

> exactly is the cause of the readings or what exactly will fix the

> problem...or if high peptides is even abnormal.

>

>

> >>>Do people have success with doing just CF? Or do you always

have to

> do both?

>

> Some people do quite well with just casein/dairy-free. Some only

need

> gluten free, some need both out, and some are fine with casein and

> gluten but find other foods a problem. You can experiment a bit.

If you

> find that taking dairy out of the diet is helpful, remember that

it

> might be something in the diary besides casein. Here is some info

on

> the various issues with dairy and another bit on gluten:

>

> http://www.enzymestuff.com/discussiondairy.htm

> http://www.enzymestuff.com/rtgluten.htm

>

>

> >>>With casein free do you have to take out all dairy, even baked,

as

> an ingredient in food, etc??? I know some people can have

sensitivity

> to " straight " dairy, but tolerate other forms, etc.

>

> You can experiment with your situation. Dairy-free and casein-free

are

> different things. Casein is one of several proteins in dairy. Some

> foods have casein as an added ingredient (soy and rice cheeses for

> example). Generally, when someone is casein or dairy free, this

> includes all forms of the item...including in baked goods.

>

> Please note that some kids who are for the most part casein-free,

do

> fine with raw milk, homemade yogurt, some cheeses, goat milk, and

other

> variations. Just try to find out what you can tolerate as you have

> time. There really isn't just one way that everyone must do.

>

> I think the hardest part about gluten, dairy, soy, corn-free or

other

> common foods is that bits of these foods are added ingredients in

so

> many many foods! For example, when we were trying casein-free with

my

> son, there was trace amounts of dairy in things like graham

crackers.

> He couldn't have the crackers even though crackers are not even

close

> to being considered dairy.

>

> .

>