Re: Help-bulge where DOC band closes- Jaya and Kendra

[Guest guest]

Jaya and Kendra,

Do you know if this could happen out of the top of the band as well?

I noticed what looked like a bulge on Drew's head but it was on top

of his head (right near the edge of the hole) not in between the

gap. It was there for about three days, but appears to have shrunk

since yesterday. I called CT, but they couldn't really explain what

it was.

Thanks,

Lily

> > Hi,

> > I'm going to call CT right away, but I wanted to see if any of

you

> have

> > experienced a bulge where the velco closure is on the DOC band?

> has

> >

> > been in the band for 6 weeks now.

> >

> > I remember reading that some of you did and said that it was " soft

> > tissue " ,

> > however this sure doesn't feel soft to me!! It feels like her

> skull is

> > growing out the

> > 1 1/2 inch gap that is opened where the band velcros together. I

> told my

> >

> > husband when we got the band that it seemed like an awefully big

gap

> > there, but when I asked CT about it they said it was just fine

and

> not

> > to worry.

> >

> > The bulge is so big that I can run my hand over her ear and feel

> it. Im

> > really

> > worried. I dont want a nice round back of her head with a big ole

> bump

> > on the

> > side!!!!

> >

> > Advice please !! Its Sunday so of course I cant call the clinic!!

> >

> > and (banded 12/28)

[Guest guest]

Lily:

I've never heard of a bulge above the top of the band. Could it be a goose egg?

Let us know what your clinician says.

Kendra in Canada

----- Original Message -----

From: gpfeiff@...

Plagiocephaly

Sent: Tuesday, February 06, 2001 2:39 PM

Subject: Re: Help-bulge where DOC band closes- Jaya and Kendra

Jaya and Kendra,Do you know if this could happen out of the top of the band as well? I noticed what looked like a bulge on Drew's head but it was on top of his head (right near the edge of the hole) not in between the gap. It was there for about three days, but appears to have shrunk since yesterday. I called CT, but they couldn't really explain what it was. Thanks,Lily> > Hi,> > I'm going to call CT right away, but I wanted to see if any of you > have> > experienced a bulge where the velco closure is on the DOC band? > has> > > > been in the band for 6 weeks now.> > > > I remember reading that some of you did and said that it was "soft> > tissue",> > however this sure doesn't feel soft to me!! It feels like her > skull is> > growing out the> > 1 1/2 inch gap that is opened where the band velcros together. I > told my> > > > husband when we got the band that it seemed like an awefully big gap> > there, but when I asked CT about it they said it was just fine and > not> > to worry.> > > > The bulge is so big that I can run my hand over her ear and feel > it. Im> > really> > worried. I dont want a nice round back of her head with a big ole > bump> > on the> > side!!!!> > > > Advice please !! Its Sunday so of course I cant call the clinic!!> > > > and (banded 12/28)

[Guest guest]

Lily,

I have not heard of that before. Is it possible that he could have

bumped his head? The bands save our little ones from many bumps and

bruises, but the top of the head is still susceptable.

It is possible that it could be a fluid retention, but I have only

heard of fluid retaining where the velcro closure is and around the

eyes....i had both (the eyes in the beginning and the velrco

closure still to this day).

If it is going away then it will probably be okay. But if it doesn't

go away or if gets bigger I would definately call the doctor or CT to

try and find out what is causing it.

Let us know how you make out!

Sincerely,

Jaya Dong

> > > Hi,

> > > I'm going to call CT right away, but I wanted to see if any of

> you

> > have

> > > experienced a bulge where the velco closure is on the DOC band?

> > has

> > >

> > > been in the band for 6 weeks now.

> > >

> > > I remember reading that some of you did and said that it

was " soft

> > > tissue " ,

> > > however this sure doesn't feel soft to me!! It feels like her

> > skull is

> > > growing out the

> > > 1 1/2 inch gap that is opened where the band velcros together.

I

> > told my

> > >

> > > husband when we got the band that it seemed like an awefully

big

> gap

> > > there, but when I asked CT about it they said it was just fine

> and

> > not

> > > to worry.

> > >

> > > The bulge is so big that I can run my hand over her ear and

feel

> > it. Im

> > > really

> > > worried. I dont want a nice round back of her head with a big

ole

> > bump

> > > on the

> > > side!!!!

> > >

> > > Advice please !! Its Sunday so of course I cant call the

clinic!!

> > >

> > > and (banded 12/28)

[Guest guest]

Lily,

I just wanted to follow up with you because I spoke with our OT over

at CT. She said that it is possible to get a bump or lump on the top

of the head near the rim if the band is tightened too much. So you

may want to be sure that you are only patting the velcro down

wherever it falls and not pulling on it at all.

How is the bump doing? Is it still there?

Sincerely,

Jaya Dong

> > > > Hi,

> > > > I'm going to call CT right away, but I wanted to see if any

of

> > you

> > > have

> > > > experienced a bulge where the velco closure is on the DOC

band?

> > > has

> > > >

> > > > been in the band for 6 weeks now.

> > > >

> > > > I remember reading that some of you did and said that it

> was " soft

> > > > tissue " ,

> > > > however this sure doesn't feel soft to me!! It feels like

her

> > > skull is

> > > > growing out the

> > > > 1 1/2 inch gap that is opened where the band velcros

together.

> I

> > > told my

> > > >

> > > > husband when we got the band that it seemed like an awefully

> big

> > gap

> > > > there, but when I asked CT about it they said it was just

fine

> > and

> > > not

> > > > to worry.

> > > >

> > > > The bulge is so big that I can run my hand over her ear and

> feel

> > > it. Im

> > > > really

> > > > worried. I dont want a nice round back of her head with a big

> ole

> > > bump

> > > > on the

> > > > side!!!!

> > > >

> > > > Advice please !! Its Sunday so of course I cant call the

> clinic!!

> > > >

> > > > and (banded 12/28)

[Guest guest]

Hi Jaya,

Thanks so much for asking on our behalf! When I called CT, they

didn't know what the bump could be caused by (although I didn't speak

with the orthotist, just the receptionist). The bump had gone away

at that point so I figured I'd just wait and see. So far it hasn't

come back, although I do notice that Drew's head is not level, it

kinda has a rolling surface (but I guess that's probably normal).

I will bring it up with the orthotist at our appointment this week.

I never pull on the velcro, so I don't think it could be too much

tightening. And I don't remember him falling in a way that could

have caused that bump. It was right on top of his head and he would

have had to have fallen straight down on his noggin.

Anyway, I will keep an eye on it, and hopefully, it won't come back.

Thanks again.

Lily

P.S.

i is adorable. Drew is half asian, half caucasion as well. I

think he's adorable too (but I'm a little biased).

> > > > > Hi,

> > > > > I'm going to call CT right away, but I wanted to see if any

> of

> > > you

> > > > have

> > > > > experienced a bulge where the velco closure is on the DOC

> band?

> > > > has

> > > > >

> > > > > been in the band for 6 weeks now.

> > > > >

> > > > > I remember reading that some of you did and said that it

> > was " soft

> > > > > tissue " ,

> > > > > however this sure doesn't feel soft to me!! It feels like

> her

> > > > skull is

> > > > > growing out the

> > > > > 1 1/2 inch gap that is opened where the band velcros

> together.

> > I

> > > > told my

> > > > >

> > > > > husband when we got the band that it seemed like an

awefully

> > big

> > > gap

> > > > > there, but when I asked CT about it they said it was just

> fine

> > > and

> > > > not

> > > > > to worry.

> > > > >

> > > > > The bulge is so big that I can run my hand over her ear and

> > feel

> > > > it. Im

> > > > > really

> > > > > worried. I dont want a nice round back of her head with a

big

> > ole

> > > > bump

> > > > > on the

> > > > > side!!!!

> > > > >

> > > > > Advice please !! Its Sunday so of course I cant call the

> > clinic!!

> > > > >

> > > > > and (banded 12/28)