Re: specific condition on the autistic spectrum ??

[Guest guest]

In a message dated 04/06/2006 18:33:34 GMT Daylight Time, slguran@...

writes:

We met a woman today who identified a specific syndrome for us on the

autistic spectrum that involves constant eating, hyperactivity,

fidgeting, difficulty with both gross and fine motor skills, etc.

Something like Asperger's, but this child does not mind being

touched. Can anyone tell us what she was referring to? (We forgot

the terminology she used.)

>>>My son doesn;t mind being touched either and enjoys a hug. He is Dx Autism

Mandi in UK

[Guest guest]

This sounds like my son. He is diagnosed Autism/non-classical. He will come up

to me and hug me. His eye contact is generally good. He is not reactive to many

sounds. Very few sensory integration issues. Although he is definately autistic.

Tracey

specific condition on the autistic spectrum ??

We met a woman today who identified a specific syndrome for us on the

autistic spectrum that involves constant eating, hyperactivity,

fidgeting, difficulty with both gross and fine motor skills, etc.

Something like Asperger's, but this child does not mind being

touched. Can anyone tell us what she was referring to? (We forgot

the terminology she used.)

[Guest guest]

The constant eating is reminiscent of Prader-Willi syndrome but that is not

really an

Autism Spectrum Disorder, nor is it Aspergers. It is usually associated with

mental

retardation and is a chromosomal disorder. Of course, she might have been

talking about

something else...

Peace,

Kathy E.

>

>

> In a message dated 04/06/2006 18:33:34 GMT Daylight Time, slguran@...

> writes:

>

> We met a woman today who identified a specific syndrome for us on the

> autistic spectrum that involves constant eating, hyperactivity,

> fidgeting, difficulty with both gross and fine motor skills, etc.

> Something like Asperger's, but this child does not mind being

> touched. Can anyone tell us what she was referring to? (We forgot

> the terminology she used.)

>

>

>

> >>>My son doesn;t mind being touched either and enjoys a hug. He is Dx Autism

>

> Mandi in UK

>

>

>

>

[Guest guest]

>

> We met a woman today who identified a specific syndrome for us on the

> autistic spectrum that involves constant eating,

This sounds like possibly Prader Willi, altho my son would eat

constantly when he was eating foods or supplements not tolerated, and

when he had a yeast overgrowth issue. So contant eating is not

necessarily Prader Willi syndrome.

>> hyperactivity,

> fidgeting,

Commonly associated with phenol intolerance and/or yeast overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

>>difficulty with both gross and fine motor skills, etc.

Can be amino acid deficiency, B vitamin deficiency, or other issues.

> Something like Asperger's, but this child does not mind being

> touched.

Lots of Asperger people don't mind being touched. Some do mind.

Dana

[Guest guest]

Thank you! That is the term she used but it doesn't match up at

all. My niece eats constantly, but does not gain weight. She is in

constant motion. Has very little body awareness--bumps into things,

falls a lot. Falls off her chair (almost every day). She seems to

be somewhere on the spectrum but no description really fits. She

needs her mother to interpret the world--it is hard for her to

understand what is funny, for instance.

Also, when she watches t.v., she holds her head back completely as

you would if you were having your hair rinsed in the bath. Somehow

this helps her see. She now has glasses a mile thick, but we're not

sure if that is the whole solution.

We are wondering about the constant eating and what it means. Is

she constantly hungry because she is so active? Or is there

something her body needs desperately but is not getting?

> >

> >

> > In a message dated 04/06/2006 18:33:34 GMT Daylight Time,

slguran@

> > writes:

> >

> > We met a woman today who identified a specific syndrome for us

on the

> > autistic spectrum that involves constant eating, hyperactivity,

> > fidgeting, difficulty with both gross and fine motor skills,

etc.

> > Something like Asperger's, but this child does not mind being

> > touched. Can anyone tell us what she was referring to? (We

forgot

> > the terminology she used.)

> >

> >

> >

> > >>>My son doesn;t mind being touched either and enjoys a hug.

He is Dx Autism

> >

> > Mandi in UK

> >

> >

> >

> >

[Guest guest]

This is very helpful, Thank you. I think phenol intolerance is an

important piece. It seems to run in our family. The problem is

there is a big denial issue going on.

> >

> > We met a woman today who identified a specific syndrome for us

on the

> > autistic spectrum that involves constant eating,

>

>

> This sounds like possibly Prader Willi, altho my son would eat

> constantly when he was eating foods or supplements not tolerated,

and

> when he had a yeast overgrowth issue. So contant eating is not

> necessarily Prader Willi syndrome.

>

>

> >> hyperactivity,

> > fidgeting,

>

>

> Commonly associated with phenol intolerance and/or yeast overgrowth

>

> http://www.danasview.net/phenol.htm

>

> http://www.danasview.net/yeast.htm

>

>

> >>difficulty with both gross and fine motor skills, etc.

>

>

> Can be amino acid deficiency, B vitamin deficiency, or other

issues.

>

>

> > Something like Asperger's, but this child does not mind being

> > touched.

>

>

> Lots of Asperger people don't mind being touched. Some do mind.

>

> Dana

>

[Guest guest]

When my son eats constantly, it's either because of yeast

overgrowth, or more often, because he's eaten a food he can't

tolerate. This causes him paradoxically to crave more and more of

the specific type of food he can't tolerate (eg things with rice

syrup, or before enzymes, things with gluten.) He is not overweight

either.

Amy

>

> Thank you! That is the term she used but it doesn't match up at

> all. My niece eats constantly, but does not gain weight. She is

in

> constant motion. Has very little body awareness--bumps into

things,

> falls a lot. Falls off her chair (almost every day). She seems

to

> be somewhere on the spectrum but no description really fits. She

> needs her mother to interpret the world--it is hard for her to

> understand what is funny, for instance.

>

> Also, when she watches t.v., she holds her head back completely as

> you would if you were having your hair rinsed in the bath.

Somehow

> this helps her see. She now has glasses a mile thick, but we're

not

> sure if that is the whole solution.

>

> We are wondering about the constant eating and what it means. Is

> she constantly hungry because she is so active? Or is there

> something her body needs desperately but is not getting?

>

>

[Guest guest]

This makes sense. So it is like the addictive " opiate response " to

foods that are not tolerated. I am familiar with this, but it did

not occur to me because she eats EVERYTHING and doesn't seem to

crave only certain things. With my daughter, for instance, she only

wanted to eat bread, pretzels, pizza, etc. With my friend's

daughter she would only drink milk. But my niece's intolerances

could be pervasive I suppose, because my sister was quite sick

before she had her with debilitating (physically paralyzing

actually) migraines, that we are just now attributing to some big

food issues--or at least that is part of the picture.

> >

> > Thank you! That is the term she used but it doesn't match up at

> > all. My niece eats constantly, but does not gain weight. She

is

> in

> > constant motion. Has very little body awareness--bumps into

> things,

> > falls a lot. Falls off her chair (almost every day). She seems

> to

> > be somewhere on the spectrum but no description really fits.

She

> > needs her mother to interpret the world--it is hard for her to

> > understand what is funny, for instance.

> >

> > Also, when she watches t.v., she holds her head back completely

as

> > you would if you were having your hair rinsed in the bath.

> Somehow

> > this helps her see. She now has glasses a mile thick, but we're

> not

> > sure if that is the whole solution.

> >

> > We are wondering about the constant eating and what it means.

Is

> > she constantly hungry because she is so active? Or is there

> > something her body needs desperately but is not getting?

> >

> >

>

[Guest guest]

The things you listed all contain a lot of gluten. My son could eat

a pound of pasta at age 2 1/2, several bagels or a 5 oz. bag of

pretzels or crackers. He'd stuff his mouth so full he would choke

himself, but still keep going. AFP Peptizyde chewables have worked

well for my son, for gluten.

It could also be yeast though; all the things you listed both

contain, and feed, yeast. for my son, any sort of starch like that

feeds yeast, but particularly foods with yeast (or sugar).

Amy

> > >

> > > Thank you! That is the term she used but it doesn't match up

at

> > > all. My niece eats constantly, but does not gain weight. She

> is

> > in

> > > constant motion. Has very little body awareness--bumps into

> > things,

> > > falls a lot. Falls off her chair (almost every day). She

seems

> > to

> > > be somewhere on the spectrum but no description really fits.

> She

> > > needs her mother to interpret the world--it is hard for her to

> > > understand what is funny, for instance.

> > >

> > > Also, when she watches t.v., she holds her head back

completely

> as

> > > you would if you were having your hair rinsed in the bath.

> > Somehow

> > > this helps her see. She now has glasses a mile thick, but

we're

> > not

> > > sure if that is the whole solution.

> > >

> > > We are wondering about the constant eating and what it means.

> Is

> > > she constantly hungry because she is so active? Or is there

> > > something her body needs desperately but is not getting?

> > >

> > >

> >

>

[Guest guest]

My daughter also craved everything in sight even on gf/cf/soy free

and enzymes. The pediatric geneticists were useless. We added the

SCD diet and also did homeopathy which helped. But finally, I did a

major metabolic work up and found out that despite all the protein

she was eating, she was nutritionally starving for amino acids. We

did it with Metametrix ION panel. We had initially done it with

QWest Labs which gave us the same results but didn't check as many

amino acid levels (so we didn't get a complete picture), didn't

provide any explanation for the doctor (nutrition is not something

taught in med school), and cost more (our insurance didn't pay).

Now I give her free amino acid supplements based on the Metametrix

lab result and consult. You may want to check your daughter's

fasting amino acid level and essential fatty acid levels as well as

an organic acid test. If you do it, I would only do these tests

after you've done a good course of diet restriction and enzymes and

yeast/bacterial tx so you get the best result since it's so

expensive (our test cost us about $800 at Metametrix! Qwest was more

but we're still fighting the insurance).

Sheri Wang

> > > >

> > > > Thank you! That is the term she used but it doesn't match

up

> at

> > > > all. My niece eats constantly, but does not gain weight.

She

> > is

> > > in

> > > > constant motion. Has very little body awareness--bumps into

> > > things,

> > > > falls a lot. Falls off her chair (almost every day). She

> seems

> > > to

> > > > be somewhere on the spectrum but no description really

fits.

> > She

> > > > needs her mother to interpret the world--it is hard for her

to

> > > > understand what is funny, for instance.

> > > >

> > > > Also, when she watches t.v., she holds her head back

> completely

> > as

> > > > you would if you were having your hair rinsed in the bath.

> > > Somehow

> > > > this helps her see. She now has glasses a mile thick, but

> we're

> > > not

> > > > sure if that is the whole solution.

> > > >

> > > > We are wondering about the constant eating and what it

means.

> > Is

> > > > she constantly hungry because she is so active? Or is there

> > > > something her body needs desperately but is not getting?

> > > >

> > > >

> > >

> >

>

[Guest guest]

>

> This makes sense. So it is like the addictive " opiate response " to

> foods that are not tolerated. I am familiar with this, but it did

> not occur to me because she eats EVERYTHING and doesn't seem to

> crave only certain things. With my daughter, for instance, she only

> wanted to eat bread, pretzels, pizza, etc. With my friend's

> daughter she would only drink milk. But my niece's intolerances

> could be pervasive

My son ate EVERYTHING, and lots of it, because he tolerated no foods.

So yes, it might be a pervasive food intolerance issue. HNI enzymes

helped my son eat many foods without problems, but there were still

foods he did not tolerate, even with enzymes.

Fortunately, the enzymes plus B vitamins and ALA chelation eliminated

all his food problems.

>> I suppose, because my sister was quite sick

> before she had her with debilitating (physically paralyzing

> actually) migraines, that we are just now attributing to some big

> food issues--or at least that is part of the picture.

I get debilitating migraines from nitrates, MSG, and yeast in my head.

Dana