Re: Ugh help please

[Guest guest]

Also forgot she has primary generalization seizures and also she weighs

37lbs and keeps " touching herself "

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Her coughing has all but gone since starting it. We go back to the ped

Monday and I will discuss it more with him. Her coughing was horrible and they

did a chest xray and said she had a place on her left lung..... when they

said that it came from all that coughing I didn't double check the new med.

It

has helped.... shes been so goofy long before starting it though. But

nights arent as bad as days..... so I have decided that its been a lot of help

and cant see any downfalls. But I am going to go read more on it now.

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

I just read the link u sent me and notice it says do not have any

grapefruit.... Guess GSE question is out the door.

Thanks again

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

HI Robyn, SHes in a special prek class and has been since the age of 3

we all feel its best to keep her around other kids her age (peer stuff) It

has helped with her socializing for sure. I just talked to the principal

at the elementary school here that I know most of the teachers and all and

shes gonna see whats going on with an aide YAY

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Sorry that I cant offer much here.. But wanted to ask you about the

coughing and how long she has been on the Singulair. My son tried that

stuff and it would convert him into a certifiable dingbat (goofy goofy

goofy). Also, and after the Dr. precribed it, and on a 1 month follow

up.. asked " Now, he hasnt had any bad coughing fits, has he? " with a

very concerned tone in her voice. I said " no, but it does make him a

clown with no seen benefits to his allergies " . She then looked at me

and said " well, just take it as needed " . Whatever.. We took him off

of it.

Do a net search on it.. here is a med. breakdown of it.

http://www.umm.edu/altmed/ConsDrugs/Montelukastcd.html

Sorry I couldnt be of more help.

Reese

>

> Also forgot she has primary generalization seizures and also she

weighs

> 37lbs and keeps " touching herself "

>

> *~*~*~*~*~*~*~*

> Lena

> *~*~*~*~*~*~*~*

>

>

>

[Guest guest]

Can we edit messages somehow? hehe

Sorry, didnt mean " allergies " . The med is for asthma that is brought

about in my son by allergies.

[Guest guest]

>

> After yet another hour phone call from my dd school, I need some

> serious help on what to do.

>

> My dd is almost 5 and has lack of speech (but she has I would

> guess 10 words since the summer) No focus, no interest in anything

> at all expect playing outside with someone, no imagination, class

> clown, will not keep her shoes on, mouths everything, throws

> everything. Yet she is a sweetheart that will turn and smile and

> melt anyones heart afterwards.

Hi Lena,

Is your daughter in preschool or kindergarten? Is it a special school

that is able to help her? It sounds like she has some delays and she

must be very frustrated. I imagine the teaching staff must be feeling

frustrated as well. This does not sound like a good environment for

her. Personally, I feel there is no rush for school. If you are a stay

at home Mom, why don't you take the luxury of keeping her home with

you one more year. Play outside with her as much as you can. Get

sitters to give you a break. Read and talk to her as much as possible.

I know it is hard, my oldest son was a handful. Boy did we play

outside and blow bubbbles, play in the sand, etc. etc. I really miss

that time, even though it was extremely demanding, I think it helped

him so much. If at all possible I would let things go around the house

etc and give her the attention she is craving. Good Luck!

Robyn

[Guest guest]

>

> HI Robyn, SHes in a special prek class and has been since the

age of 3

> we all feel its best to keep her around other kids her age (peer

stuff) It

> has helped with her socializing for sure. I just talked to the

principal

> at the elementary school here that I know most of the teachers

and all and

> shes gonna see whats going on with an aide YAY

>

> *~*~*~*~*~*~*~*

> Lena

> *~*~*~*~*~*~*~*

>

Thats great! I was worried that she was with some frustrated

teachers that didn't understand her needs. The aide will be a big

help. All kids go through phases and hopefully this one will pass

quickly. I do think that lack of verbal communication plays a big

part in these kids frustrations. My one son will tell me things

from the past that I had no idea about. He remembers perfectly and

he can now explain, but before he could not. One teacher even

spanked him and then gave him candy to quiet him down before I

arrived. I had no idea. Anyway, it sounds like things are looking

up. Give that little darling lots of cuddles.

Robyn

[Guest guest]

Yes she has a chromosome duplication which they are blaming everything

on...... the only other 2 kids we can find with very close duplications are

absolutely of no comparsion (they are on breathing machines cant walk and on

feeding machines) We had discussed a behavior therapist for her..... I kinda

said

no, as I wasn't fully conformable with the idea of someone MAKING her

behave..... And that's the idea behind that type of therapy they tell her no

no no

no no no and time outs over and over again... maybe she needs that. But

positive rewards for good stuff speaks volumes. And right before they

recommended that, there was on the news about a special therapy (not sure which

type of

therapist it was) totally mistreating the kids in special ed in Orlando

(those from FL will remember that big mean woman forever for what she put those

special needs kids thru) I have removed red dye from her diet (as its the

only thing that I had removed before and seen a difference) No special diet

other than that.

Thanks

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Why does your DAN doctor say she doesn't speak but a few words? Have they

diagnosed her with anything? My granddaughter is autistic and some of your

daughter's bad hehaviors sound like my granddaughters. Have you had any

evaluations? In she in special ed? Have you tried the gfcf diet? Take

preservatives, food dyes out of her diet. Without any infractions for at least

a few months. Has the school talked about a behavorial plan or a behavorist?

You need to get some kind of diagnosis. Her bad behaviors besides coming from

dietary and supplementation needs could be coming from her inability to

communicate.

I wish you the best of luck

cbfllady@... wrote:

After yet another hour phone call from my dd school, I need some serious

help on what to do.

My dd is almost 5 and has lack of speech (but she has I would guess 10

words since the summer) No focus, no interest in anything at all expect

playing

outside with someone, no imagination, class clown, will not keep her shoes

on, mouths everything, throws everything. Yet she is a sweetheart that will

turn and smile and melt anyones heart afterwards. Constipation since 6months of

age. Coughing coughing coughing(which has lessened lately)! Hitting, Not

listening unless you raise ur voice. The list seems to grow everyday

I just started her back up on some suppliments, DMG in the morning 125mg of

the Country Life. Transfer Factor Kids in the morning 1 tablet, 2 doses

of Pulmicort from her nebulizer (am and pm times, which we are going to do

away with slowing starting Monday) Singulair 4mg at Bedtime. And epstom salt

bath just about nightly, about 1 cup. I do have Liqu Mins Cal/mag/zinc that

I have been giving to her 1 tablespoon daily usually in the afternoons.

Shes about to be kicked off the bus due to taking off and throwing her shoes

and socks immediately when seated and will not keep them on, and not keeping

on her seatbelt. And in class shes spending most of her time sorta away

from the others (keeps interrupting them) and having to sit next to the teacher

(yet the teacher is making her pay attention as much as possible and stay in

the group setting) Shes even backed up on knowing her colors and such. No

matter what we try she just dont care. YEsterday she took her shoes off so

they said u have to sit in the classroom and not have outside play which she

lovesss they walked everyone outside to play and told her they were sorry

she couldn't play but she didn't have her shoes on... She didn't care.

She enjoyed just sitting in the chair in the classroom while the teacher

cleaned up etc. Same thing at home, if she does something she is not allowed

to,

I put her in time out and she just sits there waiting to do it again.

What am I giving that's wrong or what am I not giving I should? I have

taken certain foods away that I have read here causing others problems, yet it

makes NO difference.

I have been reading a lot of the kids have yeast problems, but I am unsure

if that's something with her or not so I havent treated her (I did buy both

the GSE by Nutribiotic which it says serving size 10 drops contain 100mg. Says

children mix 1-3 drops in juice 1-2 daily. I cant get her to drink out of

anything except those like caprisuns (grape flavor) So no clue how to get

that in her. And I also go Candex by Pure Essence Labs which says take on an

empty stomach 1 hour prior to eating or 2 hours after eating.... she snacks

often more than fully eats anyways so I havent a clue how to do that either.

Also read that u use probotics with yeast treatments..... No clue on that

either.

If anyone has any ideas please pass them on as she is such a happy kid, but

she just isnt " right " and hasnt been for a couple months. She is missing out

on a lot of learning and fun stuff, and at this age she should be a sponge

taking it all in.

They dont even know where to place her next year for school, because

everyone knows she needs an adult aide sitting with her to keep her " in line "

yet

they do not have enough qualified aides for kids like her (not so big and

strong that 1 teacher cant control them) So I am stressing out on her

suffering

(yes I say suffering because she cant be truly happy inside when things are so

limited and shes seeking so much attention, yes negative attention seems to

be something shes craving) I am a stay at home mom and love the second she

gets off the bus and we play ALOT as she will not go play alone not for a

second. So shes getting maybe too much mommy time, but when I try to get her

to

go have a tea party with her dolls (yes I have done it alone telling her this

is fun just for me and the dolls that she should try it) NOTHING IS

WORKINGGGGGG

Oh and since she does not have autism, the DAN doctors says they probably

cant help to save my money. UGH HELP HELP HELPPPPPPPP Every doctor I have

taken her to say, they dont know truly what will help.

ThANK YOU!

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Hi ! How have u been? Things are just about the same here, been

really sick myself. MRI scheduled for next Tuesday ugh hate those things lol

I will talk to the school again about how they approach behavior therapy

there. Maybe its totally necessary as long as I make sure to have drop in

visits during those times to peek in heheh.

The chiro I haven returned to, was getting wayyyyyyy too expensive. He keep

adding expensive suppliments to her. I just couldn't do the $1oo visit plus

the $50 suppliments each time. Plus I was saving up for more testing. We

did get that urine testing back for metals, showed just high in aluminum.

I posted about it back then, maybe I can find the post and refresh the

numbers in my head then.

I did hear back from the principal here where I want her to go, and she

said they will have a full meeting on it in March. And push to make sure she

gets an aide. Well I sure hope so, otherwise I gotta figure something out!

I

am still at a " what do I do now " approach to her suppliments. She was sent

to another classroom again today for the shoes off and not listening thing.

UGHHHH

Talk to ya soon!

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

Hi Lena! I do remember that story you are talking about. Stories like that

have really helped my decide not to put my son in the public schools. Not the

only reason of course but a small one.

Behavioral therapy can actually be a very positive thing. Loovas pioneered

applied behavioral analysis a long time ago. Good changes have been made and it

can be a very good thing. We did this with my son for about a year and he made

a lot of progress. Have you ever looked into this? The idea is to teach things

to children by breaking them down into baby steps and repeating each step over

and over again. It is based in positive reinforcement, lots of praise and hand

clapping! Negative reinforcement is a rare thing and is only used in extreme

situations. A woman I knew in Vegas had to use negative reinforcement once with

her daughter who loved to go to the park but would go to one particular place

and strip naked. Obviously that had to stop so they went to the thrift store

and got a couple changes of clothes. Next time they went to the park she was

dressed in those clothes and as soon as she stripped they immediately took her

home. No getting the clothes nothing.

Straight to the car so she could understand that was the direct result of

stripping. They did this twice and it never happened again. Not fun but very

effective without hurting the child.

Anyway, I so digress. We used ABA to teach our son all kinds of things from

how to play with toys to putting together puzzles...all kinds of things. It can

get tedious and sometimes hard if the child isn't cooperative but if your

daughter is really engaging like that with you she might really enjoy it. My

son loved it because he is a sucker for praise. Other things our therapist

would do was some sensory training. When he would get a little touchy with

things she would break out the shaving cream and go to town on the hardwood

floor. It would be everywhere and would be headed for the bath afterwards

but it worked and he had tremendous fun.

Some programs can be very strict and demanding but you can really tailor it to

fit what your daughter needs. Starting fun and ending fun would be my

suggestion. I am not comfortable with someone in a different setting like at

school with no supervision making my child do something but programs like this

are often done at home where you are around to keep an eye on things.

Were you also doing some chelation? And what about the testing the chiro did?

Was he ever a help to you? I did find out more about that chloine? supplement

he has been after me to get on. It is actually a really good fat that the

brain really needs. You can get it from different sources, I haven't got it

from him to compare to anything yet. Have you ever done a hair test on her to

see about metal issues? I think it is so wonderful that you are trying to do

so much for her. It would be so easy to just blame everything on the chromosome

duplication and not do anything. With the other two kids in such bad shape that

is amazing how well your daughter is doing! That is a blessing.

I really hope you can figure out what will be best for her. I certainly know

how difficult those decisions are.

cbfllady@... wrote:

Yes she has a chromosome duplication which they are blaming everything

on...... the only other 2 kids we can find with very close duplications are

absolutely of no comparsion (they are on breathing machines cant walk and on

feeding machines) We had discussed a behavior therapist for her..... I kinda

said

no, as I wasn't fully conformable with the idea of someone MAKING her

behave..... And that's the idea behind that type of therapy they tell her no

no no

no no no and time outs over and over again... maybe she needs that. But

positive rewards for good stuff speaks volumes. And right before they

recommended that, there was on the news about a special therapy (not sure which

type of

therapist it was) totally mistreating the kids in special ed in Orlando

(those from FL will remember that big mean woman forever for what she put those

special needs kids thru) I have removed red dye from her diet (as its the

only thing that I had removed before and seen a difference) No special diet

other than that.

Thanks

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

>>no interest in anything at all expect playing

> outside with someone,

When my son insists on being outside, it usually means he has a yeast

overgrowth.

>>mouths everything,

For my #3, this meant he had eaten a food or supplement he did not

tolerate, or he had a yeast overgrowth issue.

>>Constipation since 6months of

> age.

Constipation ideas

http://www.danasview.net/constip.htm

>>Coughing coughing coughing(which has lessened lately)!

This means food or supplement intolerance in my family.

> Shes about to be kicked off the bus due to taking off and throwing

her shoes

> and socks immediately when seated and will not keep them on, and

not keeping

> on her seatbelt. And in class shes spending most of her time sorta

away

> from the others

Sounds like she should have a 1:1 aide.

> What am I giving that's wrong or what am I not giving I should? I

have

> taken certain foods away that I have read here causing others

problems, yet it

> makes NO difference.

Try dropping your supplements except the yeast control supplements.

> they do not have enough qualified aides for kids like her

If the aide is in her IEP, they will have to hire one for her.

Dana

[Guest guest]

>

> Also forgot she has primary generalization seizures and also she

weighs

> 37lbs and keeps " touching herself "

My son " touched himself " when he had yeast overgrowth.

http://www.danasview.net/yeast.htm

Dana

[Guest guest]

Dana, thank you so much for the input. I have read thru ur page on

yeast..... Maybe I am just so wore out from everything or my blonde hair is

showing

again lol Would u mind horribly telling me exactly how to start getting

rid of this yeast? Like I said I already bought the Candex and the GSE (or

would u recommend something else?.... but does the GSE get elimated as an

option since her Singuliar says no grapefruit? Does she need to take

anything

else along with the yeast " eliminator " ? Shes not quite 5yo and weighs

37lbs.

Thank you again

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

> > Shes about to be kicked off the bus due to taking off and throwing

> her shoes

> > and socks immediately when seated and will not keep them on, and

> not keeping

> > on her seatbelt.

My daughter couldn't tolerate shoes or socks on in the car since

infancy. She still can get exactly like this. She also has car

seat/seat belt issues when she has yeast. She feels trapped and

claustrophobic from the belt, or gets obsessed with the way in which

it's touching her, etc.

Her sensory issues in this regard were totally related to a lot of

yeast overgrowth. She takes anti-fungals and is usually fine with it

now.

Amy

[Guest guest]

I am going to start her on Candex today (how much do I start with and build

up to? and for how long?) You said to use a probotic with it, I have a 1/2

bottle of BIOGUARD left from her treatment this past summer. Would that

be good to use? Or is there something better to help with the Candex?

Thank you so much Dana!

*~*~*~*~*~*~*~*

Lena

*~*~*~*~*~*~*~*

[Guest guest]

>>Would u mind horribly telling me exactly how to start getting

> rid of this yeast? Like I said I already bought the Candex and the

GSE (or

> would u recommend something else?.... but does the GSE get elimated

as an

> option since her Singuliar says no grapefruit?

It would probably be best not to use GSE if it is contra-indicated by

her medication. Candex is good, give it on an empty stomach. You can

also consider oil of oregano, uva ursi, caprylic acid, lots of other

yeast fighters. For my son, nothing works as well as GSE, but for

most kids, there are other yeast fighters that will work.

>>Does she need to take anything

> else along with the yeast " eliminator " ?

Candex, Candidase, or No-Fenol enzyme along with the yeast killer will

allow the killer to work more effectively. You can also give probiotics.

Dana

[Guest guest]

>

> I am going to start her on Candex today (how much do I start with

and build

> up to? and for how long?)

Start with one capsule, work up as required.

>> You said to use a probotic with it, I have a 1/2

> bottle of BIOGUARD left from her treatment this past summer.

Would that

> be good to use?

I am not familiar with that one, but if it worked well before, you can

certainly try it again.

Dana