Re: Question: What if the diet isn't working?

October 4, 2006

What SPECIFIC symptoms are you trying to address: behavior (specific) Gastro?

tanabby2000 <tanabby2000@...> wrote: Hello, I'm completely new to the

whole realm of enzymes and autism. I

have a 6 yr. old son with Aspergers / PDD-NOS (depending on which

doctor you talk to) and we've been GFCF for about 10 months now and we

have seen zero progress. Tanner has improved, but no more than he had

previous years due to continued therapy and maturity. My primary

question is, if we haven't seen any success on the diet, will we with

enzymes?

October 4, 2006

> question is, if we haven't seen any success on the diet, will we with

> enzymes?

You might, especially if it is OTHER foods besides gluten/casein that

are causing problems for him. My son was like that.

Dana

October 4, 2006

We are trying to address behavior issues primarily. Screaming and

hitting are the big ones. We'd also like to see him be more

communicative (rather than just quoting the cartoon he's into at the

time) and be able to leave the house without fear of a big episode.

Tanner doesn't seem to exibit any of the health issues that I've

read about related to gut issues but behaviorally, socially, etc.

he's a perfect match.

Hello, I'm completely new to

the whole realm of enzymes and autism. I

> have a 6 yr. old son with Aspergers / PDD-NOS (depending on which

> doctor you talk to) and we've been GFCF for about 10 months now

and we

> have seen zero progress. Tanner has improved, but no more than he

had

> previous years due to continued therapy and maturity. My primary

> question is, if we haven't seen any success on the diet, will we

with

> enzymes?

>

October 4, 2006

I'm sorry, but this cracks me up. Over the years I've lost count of the times

I've both read and heard " my child doesn't exhibit the health issues, but has

identical behavioral issues " . Just try manipulating the food. You'd be

surprised. For us maltodextrin and BHT produce immediate tantrums and screaming,

crying, and self biting. You'd think the kid was bipolar or something the way

he'll go from sweet and neurotypical to uncontrollable monster. Doesn't mean

your kid is " sick " , just means reading a few labels may avert some behavior

issues. It's up to each of us to decide how far we want to investigate. Which is

of course controlled by finances, time, energy, resources, other children and

obligations, etc. Good luck to you, it's unusual to read about a kid that

doesn't have " chicken skin " " eczema " " red ears when angry " " bowel issues " or

" sleep issues that prevent them from getting the full 9-11 hours they're

supposed to get every night " . Welcome to the group.

Re: Question: What if the diet isn't working?

We are trying to address behavior issues primarily. Screaming and

hitting are the big ones. We'd also like to see him be more

communicative (rather than just quoting the cartoon he's into at the

time) and be able to leave the house without fear of a big episode.

Tanner doesn't seem to exibit any of the health issues that I've

read about related to gut issues but behaviorally, socially, etc.

he's a perfect match.

Hello, I'm completely new to

the whole realm of enzymes and autism. I

> have a 6 yr. old son with Aspergers / PDD-NOS (depending on which

> doctor you talk to) and we've been GFCF for about 10 months now

and we

> have seen zero progress. Tanner has improved, but no more than he

had

> previous years due to continued therapy and maturity. My primary

> question is, if we haven't seen any success on the diet, will we

with

> enzymes?

>

October 5, 2006

Like I said, I'm new to all of this. I'm sure that the more I read,

the more I'll realize that things I think are just " a part of life " ,

really are more symptoms...like dry skin.

I'm glad to have a resource to go to since our school and doctors

have either never heard of enzyme therapy or don't know enough about

it to take it seriously.

Hello, I'm completely new to

> the whole realm of enzymes and autism. I

> > have a 6 yr. old son with Aspergers / PDD-NOS (depending on

which

> > doctor you talk to) and we've been GFCF for about 10 months

now

> and we

> > have seen zero progress. Tanner has improved, but no more than

he

> had

> > previous years due to continued therapy and maturity. My

primary

> > question is, if we haven't seen any success on the diet, will

we

> with

> > enzymes?

> >

October 7, 2006

But dry skin isn't a part of life! It's a sign that there's an

imbalance. Trust me -- my mother had life long dry skin, had

terribly high cholesteral, went on an extrememly low fat diet and

almost died. Her dry skin was telling her that her fat metabolism

was off! After having a stroke, she is now on Omega 3s - but it's

too late to recover completely. BTW -- she no longer has dry skin.

Hello, I'm completely new

to

> > the whole realm of enzymes and autism. I

> > > have a 6 yr. old son with Aspergers / PDD-NOS (depending on

> which

> > > doctor you talk to) and we've been GFCF for about 10 months

> now

> > and we

> > > have seen zero progress. Tanner has improved, but no more

than

> he

> > had

> > > previous years due to continued therapy and maturity. My

> primary

> > > question is, if we haven't seen any success on the diet, will

> we

> > with

> > > enzymes?

> > >

October 7, 2006

I would like to second this comment. Years of 'chicken skin' all over

back and upper arms and a thick, scally scalp crust went away with

the correct supps to address fatty acid deficiency. I had been

pouring cod liver oil into our daughter for years,, not suspecting

until we tested, that she needed more Omega 6's. She could not

tolerate any of those orally so we've used Eve Prim Oil topically -

legs, back, arms, tummy, whereever. When we miss a few nocs, we still

see the chicken skin and 'dandruff' reappear.

'Manipulating the food' has been a life saver for us. Years of

uncontrollable seizures are just gone when our daughter stays off of

gluten and casein. Soy. peanut, hydrogenated oils, chocolate make her

extemely irritable - aggressive, non compliant, unable to tolerate

stimulating environments etc; I've learned to label that 'pre-

seizure'. To me, it means a messed up brain chemistry for several

hours until the offending item gets processed and out of her system.

Reducing oxalates has also afforded her a calmness that we'd not seen

in many years.

After trying every over the counter enzyme I could get my hands on

and having NO luck in normalizing stools, our doc suggested Ultrase

[brand name for pancreatase]. Within a short time stools looked more

normal - no identifiable food anyway. Your docs should know about

enzymes. The pancreatase is crucial/life saving to any one with a

cyctic fibrosis diagnosis. That, they should have learned about in

med school.

Doris Rapp, md has a good older book - 'Is This My Child?' which

addresses some of the 'health issues' that exhibit as what she

describes as 'asthma attacks in the brain.' So please, do not accept

the idiosyncrasies that you describe as 'just a part of life' until

you are certain you have done all you can to rule out other things.

Hello, I'm completely new

> to

> > > the whole realm of enzymes and autism. I

> > > > have a 6 yr. old son with Aspergers / PDD-NOS (depending on

> > which

> > > > doctor you talk to) and we've been GFCF for about 10 months

> > now

> > > and we

> > > > have seen zero progress. Tanner has improved, but no more

> than

> > he

> > > had

> > > > previous years due to continued therapy and maturity. My

> > primary

> > > > question is, if we haven't seen any success on the diet,

will

> > we

> > > with

> > > > enzymes?

> > > >

October 7, 2006

Right, now that I'm learning that these things aren't just how

Tanner is or just a part of life, we can do something about it (or

at least try another route). I just finished 's book this week

and we'll be starting on the enzymes next week. Tanner's teachers

are very supportive and will work with us to figure out the best way

to give enzymes at school.

Thanks for everyone's help, I look forward to participating with the

group in the future.

Hello, I'm completely

new

> to

> > > the whole realm of enzymes and autism. I

> > > > have a 6 yr. old son with Aspergers / PDD-NOS (depending

on

> > which

> > > > doctor you talk to) and we've been GFCF for about 10

months

> > now

> > > and we

> > > > have seen zero progress. Tanner has improved, but no more

> than

> > he

> > > had

> > > > previous years due to continued therapy and maturity. My

> > primary

> > > > question is, if we haven't seen any success on the diet,

will

> > we

> > > with

> > > > enzymes?

> > > >

October 7, 2006

What does chicken skin look like and what might this mean if you have

it? Melinda

>

> I would like to second this comment. Years of 'chicken skin' all over

> back and upper arms and a thick, scally scalp crust went away with

> the correct supps to address fatty acid deficiency.

October 7, 2006

Melinda,

It looks and feels like fine sand paper. Usually it means an imbalance

in fatty acids. For us, it meant lots more omega 6 was needed.

> >

> > I would like to second this comment. Years of 'chicken skin' all

over

> > back and upper arms and a thick, scally scalp crust went away with

> > the correct supps to address fatty acid deficiency.

>

October 8, 2006

Where do you get Eve Prim Oil from. Thanks. Is that the full name and who

manufactures it?