Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Leigh Anne, My son was dx PDD-NOS at his second birthday, and after a year of speech therapy at OT lost that diagnosis. I know speech therapy and OT don't cure autism, and that it doesn't go away by itself. So I've puzzled over why my son, whose two cousins are autistic) was spared. Today I read in Children With Starving Brains that autism is rare in breastfed children and that some children's autism dates to when they were weaned. That fits our situation: my son was exclusively breastfed for 7.5 months and didn't wean for a loooong time after that. When he finally did wean his behavior slowly deteriorated, till two years later our family life was nearly unbearable. (He's now responding well to GFCF diet and enzymes.) We all make decisions based on the information we have. Most of us didn't have the information we needed when we were making vaccination decisions, and I believe the same is true for the breastfeeding/weaning decision. Nobody told us. Since you're still nursing your little girl, I thought I'd mention it. G. Leigh Anne Carson wrote: > No my daughter has not been vax. She didn't regress in any other > area, just speech. She is crawling well and has good fine motor > control for her age. She was introduced to solid food in the time > frame that her babbling stopped and she definitely has food > sensivities like her brother. I'm still trying to figure out what > she reacts to and what is okay. We are gf/cf/nf (she is breastfed). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Thanks for the thoughts . My ASD son also nursed for a loooong time. He really didn't want to eat solid food - even at 18 months old! Perhaps his little body " knew " that he wasn't ready for it. He has always been very shy, but his autistic behaviours did not really show up until 6 months post-weaning. Interesting. He is responding well to enzymes and we have been gf/cf for at least a year because he has either constipation or diarrhea if we are not on that diet. Warmly, Leigh Anne > > > No my daughter has not been vax. She didn't regress in any other > > area, just speech. She is crawling well and has good fine motor > > control for her age. She was introduced to solid food in the time > > frame that her babbling stopped and she definitely has food > > sensivities like her brother. I'm still trying to figure out what > > she reacts to and what is okay. We are gf/cf/nf (she is breastfed). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Interesting... I think my daughter's symptoms were exacerbated upon weaning. She weaned from breastfeeding to bottle after bottle of milk. She nursed a lot too up till age 15 months, I remember thinking if I weaned her she would eat better. Of course that didn't happen. Her growth had also started to drop and I started to doubt my milk. She ended up addicted to casein and of course this year we found out she has peptides in her urine and she is now off of milk! I am trying to observe my son better. He seems to be naturally weaning already and LOVES solids - baby foods, however, he has been constipated upon starting solids. Any suggestions for this?? I thought about stopping solids but he insists with big loud vocalizations upon eating!! > > > > > No my daughter has not been vax. She didn't regress in any other > > > area, just speech. She is crawling well and has good fine motor > > > control for her age. She was introduced to solid food in the time > > > frame that her babbling stopped and she definitely has food > > > sensivities like her brother. I'm still trying to figure out what > > > she reacts to and what is okay. We are gf/cf/nf (she is > breastfed). > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Is he having grains or vegetables for his first solids? Pediatricians love to recommend rice cereal and it always seems to constipate them. Unsolicited advice: do whatever you can to keep your little guy nursing. Offer the solids after he's nursed, not before. When they first start solids you really don't know how much they're absorbing from it. Breastfeeding is their real food during that transition, which can be many months. If he's just too busy to slow down and nurse, try it when he's going to sleep or just waking up. Some babies/toddlers will even nurse *while* they're sleeping--it may be the only time they hold still long enough! Sometimes a warm bath with mom can slow a busy little one down enough to get a good feeding into him. IMO it's worth doing whatever you can to keep that going, because it's sooo valuable for our little guys in particular. Ok, end of unsolicited advice. Cheers, G. jennaleeck wrote: > Interesting... I think my daughter's symptoms were exacerbated upon > weaning. She weaned from breastfeeding to bottle after bottle of > milk.... > I am trying to observe my son better. He seems to be naturally > weaning already and LOVES solids - baby foods, however, he has been > constipated upon starting solids. Any suggestions for this?? I > thought about stopping solids but he insists with big loud > vocalizations upon eating!! --- > " Leigh Anne Carson " wrote: > > > > Thanks for the thoughts . My ASD son also nursed for a > loooong > > time. He really didn't want to eat solid food - even at 18 months > > old! Perhaps his little body " knew " that he wasn't ready for it. > He > > has always been very shy, but his autistic behaviours did not > really > > show up until 6 months post-weaning. Interesting. > > > > > > > Today I read in Children With Starving Brains that autism is > rare > > in > > > breastfed children and that some children's autism dates to when > > they > > > were weaned. That fits our situation: my son was exclusively > > breastfed > > > for 7.5 months and didn't wean for a loooong time after that. > When > > he > > > finally did wean his behavior slowly deteriorated, till two > years > > later > > > our family life was nearly unbearable. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 For us, enzymes break things up and the probiotics keep things moving. is now 16 mo. Doing Great. Re: new here, questions about 10 month old now: breastfeeding Interesting... I think my daughter's symptoms were exacerbated upon weaning. She weaned from breastfeeding to bottle after bottle of milk. She nursed a lot too up till age 15 months, I remember thinking if I weaned her she would eat better. Of course that didn't happen. Her growth had also started to drop and I started to doubt my milk. She ended up addicted to casein and of course this year we found out she has peptides in her urine and she is now off of milk! I am trying to observe my son better. He seems to be naturally weaning already and LOVES solids - baby foods, however, he has been constipated upon starting solids. Any suggestions for this?? I thought about stopping solids but he insists with big loud vocalizations upon eating!! > > > > > No my daughter has not been vax. She didn't regress in any other > > > area, just speech. She is crawling well and has good fine motor > > > control for her age. She was introduced to solid food in the time > > > frame that her babbling stopped and she definitely has food > > > sensivities like her brother. I'm still trying to figure out what > > > she reacts to and what is okay. We are gf/cf/nf (she is > breastfed). > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I breast fed my son for 22 months and he was dx PDDNOS at 2 and half, but has lost that dx now. His symptoms started somewhere between 18 months and 2yo. I have wondered over the years if his recovery was partially based on the breastfeeding keeping him with the best nutrition around. It didn't help the ear infections though - he had like 15 ear infections before he was 2 and sometimes on antibiotics for 3 months straight. He was vaccinated also. My younger son, NT, was not vaccinated and nursed for 3years. Re: new here, questions about 10 month old now: breastfeeding For us, enzymes break things up and the probiotics keep things moving. is now 16 mo. Doing Great. Re: new here, questions about 10 month old now: breastfeeding Interesting... I think my daughter's symptoms were exacerbated upon weaning. She weaned from breastfeeding to bottle after bottle of milk. She nursed a lot too up till age 15 months, I remember thinking if I weaned her she would eat better. Of course that didn't happen. Her growth had also started to drop and I started to doubt my milk. She ended up addicted to casein and of course this year we found out she has peptides in her urine and she is now off of milk! I am trying to observe my son better. He seems to be naturally weaning already and LOVES solids - baby foods, however, he has been constipated upon starting solids. Any suggestions for this?? I thought about stopping solids but he insists with big loud vocalizations upon eating!! > > > > > No my daughter has not been vax. She didn't regress in any other > > > area, just speech. She is crawling well and has good fine motor > > > control for her age. She was introduced to solid food in the time > > > frame that her babbling stopped and she definitely has food > > > sensivities like her brother. I'm still trying to figure out what > > > she reacts to and what is okay. We are gf/cf/nf (she is > breastfed). > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I love advice so no problem. My oldest, NT boy nursed till he was almost 2 1/2, so I am a big fan of extended nursing. I of course regret weaning my daughter... hindsight is 20/20. My son is not doing cereals - fruits (pears, apples with plums, that is about it for fruit, oh papaya) and veggies (peas, carrots, sweet potato, squash). He is not big on nursing during the day, but I offer all the time, and as you suggested he does best when he is getting sleepy and just wakes up. And he also is a good night nurser and early morning nurser. My other problem is that our sitter who watches the kids 2 days per week went on vacation and he refused the bottle for my husband. We have not been able to woo him back to the bottle. So 2 days perweek he is not getting much fluid. He is taking prune juice in a starter cup - I was desperate to help the bowels move. Should I mix breastmilk in with the juice? He is such a fiesty little guy! Thanks so much for your input. in with the prune juice and have the sitter offer that? Have th- In , G <jsbach@...> wrote: > > Is he having grains or vegetables for his first solids? Pediatricians > love to recommend rice cereal and it always seems to constipate them. > > Unsolicited advice: do whatever you can to keep your little guy nursing. > Offer the solids after he's nursed, not before. When they first start > solids you really don't know how much they're absorbing from it. > Breastfeeding is their real food during that transition, which can be > many months. If he's just too busy to slow down and nurse, try it when > he's going to sleep or just waking up. Some babies/toddlers will even > nurse *while* they're sleeping--it may be the only time they hold still > long enough! Sometimes a warm bath with mom can slow a busy little one > down enough to get a good feeding into him. IMO it's worth doing > whatever you can to keep that going, because it's sooo valuable for our > little guys in particular. Ok, end of unsolicited advice. > > Cheers, > G. > > > jennaleeck wrote: > > > Interesting... I think my daughter's symptoms were exacerbated upon > > weaning. She weaned from breastfeeding to bottle after bottle of > > milk.... > > I am trying to observe my son better. He seems to be naturally > > weaning already and LOVES solids - baby foods, however, he has been > > constipated upon starting solids. Any suggestions for this?? I > > thought about stopping solids but he insists with big loud > > vocalizations upon eating!! --- > > > > " Leigh Anne Carson " wrote: > > > > > > Thanks for the thoughts . My ASD son also nursed for a > > loooong > > > time. He really didn't want to eat solid food - even at 18 months > > > old! Perhaps his little body " knew " that he wasn't ready for it. > > He > > > has always been very shy, but his autistic behaviours did not > > really > > > show up until 6 months post-weaning. Interesting. > > > > > > > > > > > Today I read in Children With Starving Brains that autism is > > rare > > > in > > > > breastfed children and that some children's autism dates to when > > > they > > > > were weaned. That fits our situation: my son was exclusively > > > breastfed > > > > for 7.5 months and didn't wean for a loooong time after that. > > When > > > he > > > > finally did wean his behavior slowly deteriorated, till two > > years > > > later > > > > our family life was nearly unbearable. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I wanted to mention that I breastfed exclusevly for 6 months and continued until DS was 3.5 actually that was 4 months ago. After weaning he became more " classical autistic " his autism got way worse. It was the sadest seeing him going down hill, I even tried to BF him again, it was impossible.We are on GFCF since January, he has had terrible gutproblem. We saw a Kinesiologist and started enzymes last week. He improved to the point that you coulnt see any autism however with infractions he regresses and can look very autistic.Therefore I introduced enzymes since since its impossible to be a 100 % all the time especially if none of the familit memebers believe anything what iam saying regarding DS.He responded well to enzymes so far.Breastfeeding defenetly helped. Stpping was really bad.. Bea > > > > > > > No my daughter has not been vax. She didn't regress in any > other > > > > area, just speech. She is crawling well and has good fine > motor > > > > control for her age. She was introduced to solid food in the > time > > > > frame that her babbling stopped and she definitely has food > > > > sensivities like her brother. I'm still trying to figure out > what > > > > she reacts to and what is okay. We are gf/cf/nf (she is > > breastfed). > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I had this same experience. My dd still breastfed just a few minutes at bedtime until her 4th birthday. She regressed dramatically during the 2 months after she stopped, from an antisocial quick-to-tantrum preschooler who had lots of " issues " but talked fine, to acting completely autistic, not responding to name or anything else, talk dissolved into gibberish if at all, no interest in drawing, etc., etc. Started GFCF as soon as we heard about it and it brought her back. Since she was only " autistic " for 2 months, by the time she had appointments for assessments she was better and therefore has no diagnosis. But they wouldn't believe me about the diet and said it prob wasn't autism because she regressed so late, rather maybe an anxiety disorder like selective mutism and she spontaneously got better. I know better, but it's hard to deal with lack of support from family, who would rather believe the doctors and give up this crazy diet. I'd be interested to find out if there are many other people whose kids have had late regressions after stopping breastfeeding. Jeanne From: " schwarzbeatrix " schwarzbeatrix@... Date: Fri Apr 28, 2006 11:20pm(PDT) Subject: Re: new here, questions about 10 month old now: breastfeeding I wanted to mention that I breastfed exclusevly for 6 months and continued until DS was 3.5 actually that was 4 months ago. After weaning he became more " classical autistic " his autism got way worse. It was the sadest seeing him going down hill, I even tried to BF him again, it was impossible.We are on GFCF since January, he has had terrible gutproblem. We saw a Kinesiologist and started enzymes last week. He improved to the point that you coulnt see any autism however with infractions he regresses and can look very autistic.Therefore I introduced enzymes since since its impossible to be a 100 % all the time especially if none of the familit memebers believe anything what iam saying regarding DS.He responded well to enzymes so far.Breastfeeding defenetly helped. Stpping was really bad.. Bea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Jeanne, 'Selective mutism' was a label given to our daughter, now 21 yrs. imo this is a cop out. It took me until she was 15 to find info about biomedical, the vaccine connection etc. GFCF was a huge benefit for her - it still is! She went through years of uncontrolled seizures after a Dt booster at age 6. Taking gluten and casein out of her diet has enabled her to be seizure free and markedly reduce meds. If the diet is helping, keep it up!!! You are your child's best[sometimes only] advocate. I view 'selective mutism' as just another chapter of vaccine injury. Have you done a hair test? Our daughter was/is toxic. We've been chelating for awhile now. Chelation has helped with many aresa including her 'mutism' and social anxiety. > > I had this same experience. My dd still breastfed just a few minutes at > bedtime until her 4th birthday. She regressed dramatically during the 2 > months after she stopped, from an antisocial quick-to-tantrum preschooler > who had lots of " issues " but talked fine, to acting completely autistic, not > responding to name or anything else, talk dissolved into gibberish if at > all, no interest in drawing, etc., etc. Started GFCF as soon as we heard > about it and it brought her back. Since she was only " autistic " for 2 > months, by the time she had appointments for assessments she was better and > therefore has no diagnosis. But they wouldn't believe me about the diet and > said it prob wasn't autism because she regressed so late, rather maybe an > anxiety disorder like selective mutism and she spontaneously got better. I > know better, but it's hard to deal with lack of support from family, who > would rather believe the doctors and give up this crazy diet. > I'd be interested to find out if there are many other people whose kids have > had late regressions after stopping breastfeeding. > Jeanne > > From: " schwarzbeatrix " schwarzbeatrix@... > Date: Fri Apr 28, 2006 11:20pm(PDT) > Subject: Re: new here, questions about 10 month old now: breastfeeding > > I wanted to mention that I breastfed exclusevly for 6 months and > continued until DS was 3.5 actually that was 4 months ago. After > weaning he became more " classical autistic " his autism got way worse. > It was the sadest seeing him going down hill, I even tried to BF him > again, it was impossible.We are on GFCF since January, he has had > terrible gutproblem. We saw a Kinesiologist and started enzymes last > week. He improved to the point that you coulnt see any autism > however with infractions he regresses and can look very > autistic.Therefore I introduced enzymes since since its impossible > to be a 100 % all the time especially if none of the familit > memebers believe anything what iam saying regarding DS.He responded > well to enzymes so far.Breastfeeding defenetly helped. Stpping was > really bad.. > Bea > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Thinking about this " selective mutism " question, the diagnosis makes it sound like the child is choosing to speak only in certain situations. But it is well-known that in an organic brain condition, anxiety makes the symptoms worse. So if the child is more comfortable at home than at school, and so anxious at school...that doesn't necessarily mean it's not an organic problem. In fact it might indicate just the opposite. Peace, Kathy E. > > > > I had this same experience. My dd still breastfed just a few > minutes at > > bedtime until her 4th birthday. She regressed dramatically during > the 2 > > months after she stopped, from an antisocial quick-to-tantrum > preschooler > > who had lots of " issues " but talked fine, to acting completely > autistic, not > > responding to name or anything else, talk dissolved into gibberish > if at > > all, no interest in drawing, etc., etc. Started GFCF as soon as we > heard > > about it and it brought her back. Since she was only " autistic " for > 2 > > months, by the time she had appointments for assessments she was > better and > > therefore has no diagnosis. But they wouldn't believe me about the > diet and > > said it prob wasn't autism because she regressed so late, rather > maybe an > > anxiety disorder like selective mutism and she spontaneously got > better. I > > know better, but it's hard to deal with lack of support from > family, who > > would rather believe the doctors and give up this crazy diet. > > I'd be interested to find out if there are many other people whose > kids have > > had late regressions after stopping breastfeeding. > > Jeanne > > > > From: " schwarzbeatrix " schwarzbeatrix@ > > Date: Fri Apr 28, 2006 11:20pm(PDT) > > Subject: Re: new here, questions about 10 month old now: > breastfeeding > > > > I wanted to mention that I breastfed exclusevly for 6 months and > > continued until DS was 3.5 actually that was 4 months ago. After > > weaning he became more " classical autistic " his autism got way > worse. > > It was the sadest seeing him going down hill, I even tried to BF > him > > again, it was impossible.We are on GFCF since January, he has had > > terrible gutproblem. We saw a Kinesiologist and started enzymes > last > > week. He improved to the point that you coulnt see any autism > > however with infractions he regresses and can look very > > autistic.Therefore I introduced enzymes since since its impossible > > to be a 100 % all the time especially if none of the familit > > memebers believe anything what iam saying regarding DS.He responded > > well to enzymes so far.Breastfeeding defenetly helped. Stpping was > > really bad.. > > Bea > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Have you tried the baby food prunes? I couldn't get any of my kids to drink prune juice, but they all ate up the baby food prunes like they were candy. Gerber has one that's all prunes (smallest size jars), and I think Earth's Best has one that's prunes and oatmeal. Also, some people strongly recommend pomegranate juice. My 16 month old doesn't like it, but my three year old does. (Maybe because juice is a rarity in his life...) Oh, and avocados! My daughter especially LOVED them, and I think those good fats kept it all moving through the pipes. Also, they have a lot more vitamins than typical baby choices, so my kids had them a lot. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I wean my babies on their fifth birthday whether they need it or not. My son regressed after that. G. Jeanne wrote: > I'd be interested to find out if there are many other people whose > kids have > had late regressions after stopping breastfeeding. Quote Link to comment Share on other sites More sharing options...
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