RE: DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on enzymes alone

[Guest guest]

In a message dated 23/04/2006 21:16:59 GMT Daylight Time,

carriedunsmore@... writes:

Here's the deal - we will go through this process (actually Clay has been

GF/CF for 2 days now) as long as I feel like others of you out there like us

believe that going on this restrictive diet after 2 years on enzymes will

produce a more comfortable little boy.

>>>Maybe, maybe not you won;t know unless you try. If I had had the option

of enzymes when I started out I would never have done the GFCF. Before the

diet he would eat a wide range of healthy foods, during and since his food

choices are crap and he would starve rather than eat anything else, not good

and

something I put down to the diet.

We came off with HNI 5 years ago next month - with way more improvemetns

than we ever saw on the diet, hoooraaaay!

Mandi in UK

_Treating Autism_ (http://www.treatingautism.com/)

[Guest guest]

I don't think there are any absolutes. I started my son on enzymes thinking

REJOICING that I had escaped the diet. waiting to unlock the treasure chest that

I had read about. No Deal. For my son it was more complex. I saw good changes in

him after starting enzymes. I saw more positive changes after going GCSF, his

buddha belly went away, his weird Kind of pooping 8 times a day went away. We

haven't been doing this for nearly as long. At least with 1.5 years of enzymes

on board, you know some good healing has been going on. What were your DANS

reasons for going on the diet? Does it make sense to you? I wish you the best

with the diet.I hope it pans out into something helpful for your son. Libby

Re: DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

In a message dated 23/04/2006 21:16:59 GMT Daylight Time,

carriedunsmore@...<mailto:carriedunsmore@...> writes:

Here's the deal - we will go through this process (actually Clay has been

GF/CF for 2 days now) as long as I feel like others of you out there like us

believe that going on this restrictive diet after 2 years on enzymes will

produce a more comfortable little boy.

>>>Maybe, maybe not you won;t know unless you try. If I had had the option

of enzymes when I started out I would never have done the GFCF. Before the

diet he would eat a wide range of healthy foods, during and since his food

choices are crap and he would starve rather than eat anything else, not good

and

something I put down to the diet.

We came off with HNI 5 years ago next month - with way more improvemetns

than we ever saw on the diet, hoooraaaay!

Mandi in UK

_Treating Autism_

(http://www.treatingautism.com/)<http://www.treatingautism.com/)>

[Guest guest]

For CF alternatives our son loves Rice Milk Vanilla flavored.get the

enriched. Also Rice Dream Ice Cream has yummy flavors. For cheese, our

Safeway and Whole Foods has Rice Slice and it melts good for grilled

cheese. I also found a milk chocolate flavored chocolate bar made from

rice milk at Whole Foods.

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

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slow climate change. Earth Day

[Guest guest]

I thought Rice dream had traces of gluten and Rice slice cheese had casein

in it???

Am I confused?

[Guest guest]

My son showed marked improvement on enzymes but GFCF SF has brought far more

than enzymes alone. So much so that I comfortably and happily removed most

nuts and other food on his IgG list and the more problem food we removed, the

better mood, cognitive function, behavior and (believe it or not) restrictive

diet caused him to expand his food choices even though they were less to

choose from.

My son is very picky.

However on restricted diet you do have to read lables because soy is

litterally in eveything. Much can be ordered from

www.glutenfreemal.com

www.missroben.com

Best,

Haleh

> DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

> enzymes alone

>

> Hi!

>

> We finally took our son (4 years old) to a DAN! doctor for his initial

> appt. and we were encouraged by the Dr. to remove gluten, casein and soy

> from his diet. I explained that we were using HNI enzymes with

> everything he eats (and have been for 2 years come this August). I told

> her that I recalled learning that eliminating G, C, and S will only make

> him become sensitive to corn, rice etc. The doctor said she had not seen

> that happen and that digesting these G,C, and S foods is causing Clay to

> be in a lot of discomfort even with enzymes (his stools are rotten and

> uncomfortable and we pay attention to gut microflora).

>

> Here's the deal - we will go through this process (actually Clay has

> been GF/CF for 2 days now) as long as I feel like others of you out

> there like us believe that going on this restrictive diet after 2 years

> on enzymes will produce a more comfortable little boy.

>

> Any advice would be very helpful!

>

> Thanks,

>

>

> P.S. I should say that we were very impressed with his doctor. She

> seemed very compassionate and knowledgeable, hence my quandry.

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to help

> slow climate change. Earth Day

>

>

[Guest guest]

I think it is really worth a try. We were on enzymes alone for about 2

years too - and then an IGG test showed we had made a big miscalculation

with dairy and we removed dairy (and eggs) and saw some changes. All these

kids are really different. And sometimes there are immune issues going on

that don't even show up in the behavior but are present nonetheless.

Christy's advice is good. We use Rice Dream too and have forever (though it

does have trace gluten - .06%). You have to be careful of some of the other

products though. If I am not mistaken (things might have changed) the only

guaranteed CF flavor of Rice Dream Ice Cream is vanilla; and I have not

found a rice cheese that is fully CF. The rice slices everywhere I have

looked contain dairy derivatives. Have to really be careful.

I think it is terrific that you have a good doctor on board and that you had

a good first impression!!

Josie

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

dont buy rice dream flavored rice milk though. It has casein in it

B.

Mother of Jake-My Hero- 4.5 yrs. old, Diagnosed Autistic January 12, 2006

I Live it, Breathe it, Sleep it, and Dream it

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

Sadly we too have had to stay on a fairly restrictive diet even with

enzymes (and for my son, 3 years of chelation). Besides

intolerances, this is also due to a lot of yeast issues and some

allergies.

The necessary diet restrictions along with enzymes can be a potent

combination however. My kids on diet alone and enzymes alone were

not that impressive but on both, I finally saw the miracles that I'd

only read about here.

My daughter is able to handle infractions pretty well with enzymes,

although my son is not. I can do dairy on a rotation basis with

enzymes, and have no effect. So maybe eventually there will be a

middle ground, if you want to think way ahead to diet challenges

after a time off of everything.

Amy

>

> Hi!

>

> We finally took our son (4 years old) to a DAN! doctor for his

initial appt. and we were encouraged by the Dr. to remove gluten,

casein and soy from his diet. I explained that we were using HNI

enzymes with everything he eats (and have been for 2 years come this

August). I told her that I recalled learning that eliminating G, C,

and S will only make him become sensitive to corn, rice etc. The

doctor said she had not seen that happen and that digesting these

G,C, and S foods is causing Clay to be in a lot of discomfort even

with enzymes (his stools are rotten and uncomfortable and we pay

attention to gut microflora).

>

> Here's the deal - we will go through this process (actually Clay

has been GF/CF for 2 days now) as long as I feel like others of you

out there like us believe that going on this restrictive diet after

2 years on enzymes will produce a more comfortable little boy.

>

> Any advice would be very helpful!

>

> Thanks,

>

>

> P.S. I should say that we were very impressed with his doctor.

She seemed very compassionate and knowledgeable, hence my quandry.

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Earth Day

>

>

[Guest guest]

Casein? Are you certain? To the best of my knowledge Rice Dream beverage

has gluten at .06% but not any casein. The same can not be said of the rice

cheese or the ice cream though.

Re: DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

dont buy rice dream flavored rice milk though. It has casein in it

B.

Mother of Jake-My Hero- 4.5 yrs. old, Diagnosed Autistic January 12, 2006

I Live it, Breathe it, Sleep it, and Dream it

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

NO , your right. It's gluten.... Yes the others are fine( cheese, ice cream) I

only said the flavored milk. I just didn't want her to go to the store and look

for rice milk and pick it up. It's everywhere!!! But I can't find any other rice

milk besides Rice dream in the groceries.... If I want that I have to order

online! I have 6 stupid cartons of that Rice Drean I bought the first day I

started the diet for my kids only to come home and read here I can't use it!

Don't want anyone to have the same bad experience

B.

Mother of Jake-My Hero- 4.5 yrs. old, Diagnosed Autistic January 12, 2006

I Live it, Breathe it, Sleep it, and Dream it

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

I will say for me .06% is too much for g/f. What would be the point?

B.

Mother of Jake-My Hero- 4.5 yrs. old, Diagnosed Autistic January 12, 2006

I Live it, Breathe it, Sleep it, and Dream it

DAN doc. wants us to go GF/CF/SF after 1.5 yrs. on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his initial

appt. and we were encouraged by the Dr. to remove gluten, casein and soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I told

her that I recalled learning that eliminating G, C, and S will only make

him become sensitive to corn, rice etc. The doctor said she had not seen

that happen and that digesting these G,C, and S foods is causing Clay to

be in a lot of discomfort even with enzymes (his stools are rotten and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2 years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

Sorry for going down the path of Rice Dream.my little guy is CF (some

infractions now that we are on Houston's) and isn't GF. Yes, I'm

reading the label for the milk and it has .002% from barley protein.

Re: DAN doc. wants us to go GF/CF/SF after 1.5 yrs.

on enzymes alone

I will say for me .06% is too much for g/f. What would be the point?

B.

Mother of Jake-My Hero- 4.5 yrs. old, Diagnosed Autistic January 12,

2006

I Live it, Breathe it, Sleep it, and Dream it

DAN doc. wants us to go GF/CF/SF after 1.5 yrs.

on

enzymes alone

Hi!

We finally took our son (4 years old) to a DAN! doctor for his

initial

appt. and we were encouraged by the Dr. to remove gluten, casein and

soy

from his diet. I explained that we were using HNI enzymes with

everything he eats (and have been for 2 years come this August). I

told

her that I recalled learning that eliminating G, C, and S will only

make

him become sensitive to corn, rice etc. The doctor said she had not

seen

that happen and that digesting these G,C, and S foods is causing

Clay to

be in a lot of discomfort even with enzymes (his stools are rotten

and

uncomfortable and we pay attention to gut microflora).

Here's the deal - we will go through this process (actually Clay

has

been GF/CF for 2 days now) as long as I feel like others of you out

there like us believe that going on this restrictive diet after 2

years

on enzymes will produce a more comfortable little boy.

Any advice would be very helpful!

Thanks,

P.S. I should say that we were very impressed with his doctor. She

seemed very compassionate and knowledgeable, hence my quandry.

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help

slow climate change. Earth Day

[Guest guest]

>>I told her that I recalled learning that eliminating G, C, and S

will only make him become sensitive to corn, rice etc. The doctor said

she had not seen that happen

Then she has not seen that many patients.

Your child might need the gluten/casein/soy removed, but then again he

might not. You can certainly try gfcfsf for a month or so, see if

there are improvements.

For my son, enzymes allowed him to eat gluten/casein/soy, but not rice

or corn or orange and green foods. Every child is different.

Dana