Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Bethanne, There are natural ways to fight it, too. This one is sweeping North America right now: http://home.attbi.com/~Yeast_Eliminator/ Jim > Hi, > > I went to see a physician who specializes in environmental medicine. > I liked her a lot and she spent 2.5 hours with me. She says that I > have problems with yeast overgrowth (systemic-not vaginal per se). > She gave me a prescription for Nystatin capsules (I refused to drink > the powder as I knew I would not be faithful about drinking it). I > found a special pharmacy who compounded the Nystatin capsules for me > (yes it cost a fortune). > > Can anyone tell me if they had any adverse side effects from taking > this medicine? I have heard that it can make you nauseous. Also, > does it help reduce the yeast? I have not yet changed my diet and > feel concerned that I'll be taking this drug for a long time. > > Any feedback appreciated. Many thanks. > > Bethanne > Atlanta GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Threelac isn't sweeping anything, it's sucking out people's money like a cheap whore. Is there a moderator in the house? panduranga2003 <anugraha@...> wrote:Bethanne, There are natural ways to fight it, too. This one is sweeping North America right now: http://home.attbi.com/~Yeast_Eliminator/ Jim > Hi, > > I went to see a physician who specializes in environmental medicine. > I liked her a lot and she spent 2.5 hours with me. She says that I > have problems with yeast overgrowth (systemic-not vaginal per se). > She gave me a prescription for Nystatin capsules (I refused to drink > the powder as I knew I would not be faithful about drinking it). I > found a special pharmacy who compounded the Nystatin capsules for me > (yes it cost a fortune). > > Can anyone tell me if they had any adverse side effects from taking > this medicine? I have heard that it can make you nauseous. Also, > does it help reduce the yeast? I have not yet changed my diet and > feel concerned that I'll be taking this drug for a long time. > > Any feedback appreciated. Many thanks. > > Bethanne > Atlanta GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 man.. we are milking this one to death here aren't we Re: New Here and Questions > Bethanne, > There are natural ways to fight it, too. This one is sweeping > North America right now: > > http://home.attbi.com/~Yeast_Eliminator/ > > Jim > > > > > Hi, > > > > I went to see a physician who specializes in environmental > medicine. > > I liked her a lot and she spent 2.5 hours with me. She says > that I > > have problems with yeast overgrowth (systemic-not vaginal per > se). > > She gave me a prescription for Nystatin capsules (I refused to > drink > > the powder as I knew I would not be faithful about drinking it). I > > found a special pharmacy who compounded the Nystatin > capsules for me > > (yes it cost a fortune). > > > > Can anyone tell me if they had any adverse side effects from > taking > > this medicine? I have heard that it can make you nauseous. > Also, > > does it help reduce the yeast? I have not yet changed my diet > and > > feel concerned that I'll be taking this drug for a long time. > > > > Any feedback appreciated. Many thanks. > > > > Bethanne > > Atlanta GA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Sheryl and welcome, I'm Jo, mum to 4 year old Bayly, who has Extended Oligo JIA, diagnosed at 13 months. His official diagnosis came thanks to two MRIs (along with bloodtests, joint aspiration, x-rays and bone scans) His recent diagnosis of extra inflammation in the bones in his left foot, came by way of MRI azs well. So they are a very effective diagnostic tool! Good luck with it, and as you'll see- there's always someone here to help, whatever the result! J > > Hello! My name is Sheryl and I just signed up here. > > My daughter, , is 2 and we just got the news that she could > possibly have JRA a few days ago. We are still waiting for an > appointment with a ped. rheumatologist. Thankfully, we are in a city > with numerous rheumys and a great Children's Hospital. > > doesn't have many of the typical symptoms, and I think that is > why the possibility of JRA has taken me by surprise. The reason we > believe she has it is a swollen big toe that has been present for > months now. > > We took her to the family doc and he ordered an X-ray. She was then > diagnosed as having a healing fracture. We were sent to an ortho, who > looked at the X-ray, looked at the toe, called in another doc to do > the same, and told us they thought it was a tumor. He ordered an MRI. > It was the MRI that seemed to tip them off to possible JRA. > > So, we are waiting to find out if she really has it or if this is yet > another incorrect diagnosis. She has not had any joint stiffness, > swelling anywhere except the toe (and she rarely even complains of > pain in that toe), and no fevers or rash. She is an active, healthy 2 > year old with a rather swollen toe! > > I guess my question is how possible is it to diagnose JRA from an MRI? > I honestly think that the tech and nurses suspected it while doing the > test itself because I was asked by two different nurses as the test > neared it's end if she had been running fevers. It wasn't a usual > question, you know what I mean? So, has anyone been diagnosed just > through an MRI? Is it reliable? > > Also, what should I expect at the rheumatologist? Blood tests? Other > tests? I am guessing she may get prednisone to help get rid of the > swelling. But beyond that, I have no clue what to expect! > > I have tons of questions, but I want to see the rheumatologist first. > I will definitely be hanging around here to see what I can find out > and to get more support if the diagnosis is indeed JRA. I am so glad > groups like this exist! > > Thanks so much! > Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Jo! Thanks for answering my question about the MRI. We have only had X-rays and an MRI done. No blood tests as of yet. That was why I was wondering if it was possible that they could immediately jump to JRA without blood tests. Sounds like the MRI is a pretty good indication of JRA. I am so happy to have a place like this. I wish no one had to be here, but nevertheless, it is great to have. Thanks, Sheryl > > > > Hello! My name is Sheryl and I just signed up here. > > > > My daughter, , is 2 and we just got the news that she could > > possibly have JRA a few days ago. We are still waiting for an > > appointment with a ped. rheumatologist. Thankfully, we are in a city > > with numerous rheumys and a great Children's Hospital. > > > > doesn't have many of the typical symptoms, and I think that > is > > why the possibility of JRA has taken me by surprise. The reason we > > believe she has it is a swollen big toe that has been present for > > months now. > > > > We took her to the family doc and he ordered an X-ray. She was then > > diagnosed as having a healing fracture. We were sent to an ortho, > who > > looked at the X-ray, looked at the toe, called in another doc to do > > the same, and told us they thought it was a tumor. He ordered an > MRI. > > It was the MRI that seemed to tip them off to possible JRA. > > > > So, we are waiting to find out if she really has it or if this is > yet > > another incorrect diagnosis. She has not had any joint stiffness, > > swelling anywhere except the toe (and she rarely even complains of > > pain in that toe), and no fevers or rash. She is an active, healthy > 2 > > year old with a rather swollen toe! > > > > I guess my question is how possible is it to diagnose JRA from an > MRI? > > I honestly think that the tech and nurses suspected it while doing > the > > test itself because I was asked by two different nurses as the test > > neared it's end if she had been running fevers. It wasn't a usual > > question, you know what I mean? So, has anyone been diagnosed just > > through an MRI? Is it reliable? > > > > Also, what should I expect at the rheumatologist? Blood tests? Other > > tests? I am guessing she may get prednisone to help get rid of the > > swelling. But beyond that, I have no clue what to expect! > > > > I have tons of questions, but I want to see the rheumatologist > first. > > I will definitely be hanging around here to see what I can find out > > and to get more support if the diagnosis is indeed JRA. I am so glad > > groups like this exist! > > > > Thanks so much! > > Sheryl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi again Sheryl, Apparently, blood tests aren't as accurate as one might think in diagnosing the disease. In Juvenile Arthritis, the Rheumatoid Factor is not always present (it's not in Bayly's case) and even if it is RF Positive, it's not necessarily JIA! Go figure! The blood tests that are good indicators in monitoring the disease once diagnosed, are the ESR and CRP (Erythrocyte Sedimentation Rate and C-Reactive Protein) as they will show any activity in inflammation. There are others here who are way more knowledgable than I in these matters- I just like to chip in where I can possibly help. :-) One of the things I always say is: It is not the nicest way to meet people, but I have met some of the nicest people this way! Jo Bayly, 4, Extended Oligo > Hi Jo! > Thanks for answering my question about the MRI. We have only had > X-rays and an MRI done. No blood tests as of yet. That was why I was > wondering if it was possible that they could immediately jump to JRA > without blood tests. Sounds like the MRI is a pretty good indication > of JRA. > I am so happy to have a place like this. I wish no one had to be here, > but nevertheless, it is great to have. > Thanks, > Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi, Sheryl. Before my son was diagnosed he had a CT that did not indicate JRA. When we went to the rheumy she based the diagnosis on his symptoms. If your daughter's SED rate is elevated that will indicate inflammation in the body. There are many types of JRA and not all have fevers and rashes as symptoms. My son's big toe has swollen in the past due to his spondylitis. This type of arthritis affects the tendons of the body, among other things. The rheumy will most likely do a complete physical exam focusing on the joints to feel for swelling which may be present, but not visible to the eye. They will ask if you notice any morning stiffness or pain. They will order blood tests most likely. Watch how your daughter walks and note if she seems to favor any certain way of walking. Watch when she does fine motor things like coloring, do her hands seems stiff or sore? It is so hard when they are little and not able to verbalize things. Good luck and let us know how it goes. If you have any questions, I am sure someone here can answer them, Michele ( 18, spondy) New Here and Questions Hello! My name is Sheryl and I just signed up here. My daughter, , is 2 and we just got the news that she could possibly have JRA a few days ago. We are still waiting for an appointment with a ped. rheumatologist. Thankfully, we are in a city with numerous rheumys and a great Children's Hospital. doesn't have many of the typical symptoms, and I think that is why the possibility of JRA has taken me by surprise. The reason we believe she has it is a swollen big toe that has been present for months now. We took her to the family doc and he ordered an X-ray. She was then diagnosed as having a healing fracture. We were sent to an ortho, who looked at the X-ray, looked at the toe, called in another doc to do the same, and told us they thought it was a tumor. He ordered an MRI. It was the MRI that seemed to tip them off to possible JRA. So, we are waiting to find out if she really has it or if this is yet another incorrect diagnosis. She has not had any joint stiffness, swelling anywhere except the toe (and she rarely even complains of pain in that toe), and no fevers or rash. She is an active, healthy 2 year old with a rather swollen toe! I guess my question is how possible is it to diagnose JRA from an MRI? I honestly think that the tech and nurses suspected it while doing the test itself because I was asked by two different nurses as the test neared it's end if she had been running fevers. It wasn't a usual question, you know what I mean? So, has anyone been diagnosed just through an MRI? Is it reliable? Also, what should I expect at the rheumatologist? Blood tests? Other tests? I am guessing she may get prednisone to help get rid of the swelling. But beyond that, I have no clue what to expect! I have tons of questions, but I want to see the rheumatologist first. I will definitely be hanging around here to see what I can find out and to get more support if the diagnosis is indeed JRA. I am so glad groups like this exist! Thanks so much! Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 I am new here, and I have a question that I need help with. I have read the files and even searched the messages, and I am still confused as to where to start. My daughter is 5 and has been diagnosed with SPD, and I am also beginning to think that she may also be ASD. I have had her off of milk products and there is a noticeable difference in her behavior. I was contemplating taking her off of gluten as well, but I am considering giving enzymes a try. So my questions are: 1) Do any of you use the enzymes in place of a CFGF diet? Or do you use them in addition to the diet? 2) What is a good all purpose enzyme for gluten/casein intolerance? 3) I was considering giving Kids Digest by Enzymedica a try. Has anyone used it with success? Or would I be better off trying an enzyme mix specifically for gluten and casein digestion? 4) Can anyone recommend a good dietician or DAN doctor in the Lafayette, IN area? I would even be willing to travel to the Indianapolis area or to Northern Indiana if anyone knows of someone in those areas to recommend. Thank you all so much in advance for your help. I am new to this and I am trying to learn as much as I can. Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 > 1) Do any of you use the enzymes in place of a CFGF diet? Or do you use > them in addition to the diet? My son left gfcf with HNI enzymes. Some kids still need to remove one or more foods, altho not necessarily gluten/casein. > 2) What is a good all purpose enzyme for gluten/casein intolerance? HNI's AFP Peptizyde http://www.houstonni.com/ > 3) I was considering giving Kids Digest by Enzymedica a try. Has anyone > used it with success? Or would I be better off trying an enzyme mix > specifically for gluten and casein digestion? This is good for all-around digestive issues, so definitely good to try. It might not be as effective for serious intolerances tho. Dana Quote Link to comment Share on other sites More sharing options...
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