Dana, thank you!

[Guest guest]

I took a look at the website about yeast. It describes him to a " T "

right now. The covering his ears was new and so was his giggling like

he was drunk. He did the head banging which I am unfortunately used

to. I am going to cut out carbohydrates and decrease his sugar

intake. I also am going to get GSE and give him some probiotics. I

have Multidophilus (L. Bulgaricus, L.Acidophilus, and B. Bifidum) from

Solaray. I also use No-Fenol each time he has his juice. Will he be

probably be head banging, giggling and covering his ears more as a

reaction to the die-off? Part of me wonders if the No-Fenol (since I

use it several times a day) has started the ball rolling. I guess I

should buy some active charcoal too to help. I have no idea what

normal is with him since we have been doing enzymes for 2-3 weeks and

probiotics. We started initially because of his sleep issues after

reading " Enzymes for Autism " and his sleep is so much better! Now he

is doing things he has never done before. I wish he came with a

manual. Shoot, I wish I came with a manual! I have had surgery

several times for lipomas (clusters of fat cells) that keep coming

back and I just found some research that links them to the digestive

system not functioning properly. We are all so very complex!

[Guest guest]

I would never think that it is possible to make fun around the things that we

are here for. Whoever could possibly make " fun " I don't even want to write the

rest.... Is the most stupid person in this whole world. Maybe they don't have

kids with autism, or, maybe they don't care about treating them.

It is very " funny " , yeah. I actually feel extremely angry when reading that

someone could make fun of the person whose advices and kindness are helpful for

so many.

My biggest THANKS to Dana on this Thanksgiving day. I read other forums in

different languages where people who do not read English still use all that

valuble information from her site.

Sincerely,

________________________________

From: Luce <williamjlucejr@...>

Sent: Fri, November 26, 2010 11:37:01 AM

Subject: Re: [ ] Re: Dana, please read

 

People make fun of us all-you need to learn that fast.

________________________________

From: danasview <danasview@...>

Sent: Thu, November 25, 2010 7:42:01 AM

Subject: [ ] Re: Dana, please read

 

> I'm new to the group, but I've been reading and following the discussions for

>some time. I know that Dana is very well regarded, and people always ask her

>opinion. But what's this blog? It almost looks like they are making fun of

her!?

I report what worked for my son and my family. The things that worked for my

family, may not work for others. I am honest in reporting my son's progress.

Some people, even on this list, don't like that. There are some people who would

rather belittle others [and spend a whole lot of time doing it], rather than be

glad for improvements. But if something I have done may help your child, then I

am glad to share the information. It is your choice to try things, or not. And

it is your choice to believe me, or not. There are a lot of people on this list,

and other lists, and in local support groups, etc, who can give you information

and recommendations, some good and some not-so-good. Do your research, and

recover your child.

Dana

[Guest guest]

I will be the first to admit. Prior to being told my son has some sensory

issues. I would say the biomed stuff works, but to me it was all funny " weird "

or even crazy(I still call what we do as crazy, but I believe in it). Its cause

I didn't understand, or lived it. It took me 7 months to cope when I got the

news on why my son wasn't talking. Then I took matters into my own hands cause

you could see therapy wasn't sticking in his head and seeked assistance thru a

chiropractor. A week after starting biomed he started opening up.(Over 100 words

in 4 months)

The point of the story is. We are all lucky for the internet so we can network

and research so easy. We are also blessed to have parents who aren't scared to

share their story. Even luckier for those like Dana who " put it all out there "

for others to have a chance to recover their child/loved one. Its also nice to

have a place we can talk about it others REALLY understand what we go through.

Thank you all who share info to help the rest of us.

Thanks for all of this!*tear* because of this site I'm not scared of DMSA. Hope

to start during Christmas break.

Sonya

Sent from my BlackBerry® smartphone with Nextel Direct Connect

[ ] Re: Dana, please read

 

> I'm new to the group, but I've been reading and following the discussions for

>some time. I know that Dana is very well regarded, and people always ask her

>opinion. But what's this blog? It almost looks like they are making fun of

her!?

I report what worked for my son and my family. The things that worked for my

family, may not work for others. I am honest in reporting my son's progress.

Some people, even on this list, don't like that. There are some people who would

rather belittle others [and spend a whole lot of time doing it], rather than be

glad for improvements. But if something I have done may help your child, then I

am glad to share the information. It is your choice to try things, or not. And

it is your choice to believe me, or not. There are a lot of people on this list,

and other lists, and in local support groups, etc, who can give you information

and recommendations, some good and some not-so-good. Do your research, and

recover your child.

Dana

[Guest guest]

Hello,

People like Dana (that I know Dana, but what is identified as Dana?!.) save the

world, help save the world.. . People like Dana understand, of trying to

understand more, and share as much, that anything could be more meaningful, in

dealing with as much, things, everything, in making sense for everyone's lives

by as much (As does Dr. Cutler, surely, by what I see him doing here, and

how he helps, too)

People like Dana especially like being appreciated for all the help they give,

(that we would be communicating otherwise) or would she really have helped, I

figure she understands.. People like Dana help where they can, and those who

don't see that yet maybe just need a little more of her kind of help? that any

other kind of help would really be so helpful, or just, trading up or down? .. .

People like Dana understand. People like Dana have children ( is my sense of

what Dana has and has learned to deal with, if not more, by as much, or whatever

Do you Feel? .. .

For the *Volunteer* that is good for as much, as we are here, that the world

would be so good at all without the help people like Dana gives for those who

need it, for as much, if not for free.. .

Out of *respect* for Dana and the *true* Volunteer that sets you *free* as you

can be

Where the door is always open where you should care to be so reasonable

Mike Glavic

P.S. I know few if any moderators of Internet discussion boards that help as

much as Dana does. She wins if it were a contest as far as I'm concerned, but I

don't believe volunteers think of life as a contest, which I believe helps them

shine as they do, as dark as it would be otherwise

Thanks for shining through.

> > I'm new to the group, but I've been reading and following the discussions

for

> >some time. I know that Dana is very well regarded, and people always ask her

> >opinion. But what's this blog? It almost looks like they are making fun of

> her!?

>

> I report what worked for my son and my family. The things that worked for my

> family, may not work for others. I am honest in reporting my son's progress.

> Some people, even on this list, don't like that. There are some people who

would

>

> rather belittle others [and spend a whole lot of time doing it], rather than

be

> glad for improvements. But if something I have done may help your child, then

I

> am glad to share the information. It is your choice to try things, or not. And

> it is your choice to believe me, or not. There are a lot of people on this

list,

>

> and other lists, and in local support groups, etc, who can give you

information

> and recommendations, some good and some not-so-good. Do your research, and

> recover your child.

>

> Dana

>

>

[Guest guest]

I'm sorry to keep this stupid thread going...because mocking the pain that a

mother with an autistic child feels and the work that she does is ridiculous and

shameful. So, sorry, but... I just wanted to say that science is really big on

saying " If I can't see it, it doesn't exist. " Which is totally obnoxious to

those of us that see differing things. I do think some of the biomedical things

are a little scary for me, but I do not have a severely autistic child. I would

be doing a lot more invasive things if I had to. I did read the blog and it

just sounded like people who had no idea. So, who cares?!

The idea that we want our autistic child to go away and be replaced by a NT

child is ridiculous. If we would be around forever and our children would be in

our care forever then sure, that would make sense. But one day, our children

will be in the world by themselves (or at least in someone else's care), and we

want them prepared and want them to have the best possible potential. So, kudos

to everyone doing their best!

Martha

[Guest guest]

So true, Martha. If we could know we didn't have to worry about where are

children will go and how they will be treated. But the bottom line is that

they can learn, they can get better, they can lead productive and

independent lives. The biggest problem, I think is that schools don't see

it this way, and they just write them off from the get go, and unless youa

re a parent who knows how to advocate for your child, then most schools in

the south are just preparing them for life in a supervised workshop and an

institution.

My son can do better, and who are they to try to keep him down? There is

still far too much prejudice regarding our children.

My son has already proved doctors wrong on so many levels. Someday, I'm

going to look up the developmental pediatrician who told me my son would

never talk, make a friend, be able to learn, be potty trained, dress and

feed himself. What a lot of dung! My son was three, and she was writing him

off! She toldme to start looking for an institution right away. Then she

said, " Now if you can just hang on until he is a little older, I have drugs

I can give him that will make your life easier. " I took her hand off my

shoulder and told her what she could do with her drugs. I told her I wasn't

interested in making my life easier; I was interested in making the quality

of my son's life better, and that is what this is all about.

Does he not have a better quality of life being able to talk again,

beingpotty trained, having independent life skills, and being helthier? of

course. I don't think I would have been happy with any psychotropic that

just covered up one prob lem and brought a host of others. I'm not

pooh-poohing thier use --had my son remained violent and self harming

beyond the time that he did. I know I may have had to consider it to keep

him home, but I'm glad I never had to.

Today we went to my family of the heart a hundred miles away for turkey

dinner. I spent nearly every weekend of my youth with this family. There

was my best friend, her kids with their wives and their kids, her husband's

kids, my friend's mom. It was an old fashioned TG. My son behaved great!

In home school we worked on table manners, and he was wonderful. He put his

napkin in his lap, and he was so proud of learning to chew with his mouth

closed. I was very proud of him! We would never have been able to do this

six years ago. We all had a great time.

[Guest guest]

" The idea that we want our autistic child to go away and be replaced by a NT

child is ridiculous " - some people told me exactly the same thing, that I hate

my autsitic son for being autistic, and want another child instead. They tried

to talk me away from treating him. What a wise people, aren't they! They can

agree to have my son to live a disabled life! And I lied to myself that I was

" strong enough to give it up " ...

Blogs with ideas like that are harmful for our kids, it was for my child. I

lost

5 years from his life because of ideas like those in that blog.

 

________________________________

From: healme42 <4usyoungs@...>

Sent: Sun, November 28, 2010 10:55:03 PM

Subject: [ ] Re: Dana, thank you!

 

I'm sorry to keep this stupid thread going...because mocking the pain that a

mother with an autistic child feels and the work that she does is ridiculous and

shameful. So, sorry, but... I just wanted to say that science is really big on

saying " If I can't see it, it doesn't exist. " Which is totally obnoxious to

those of us that see differing things. I do think some of the biomedical things

are a little scary for me, but I do not have a severely autistic child. I would

be doing a lot more invasive things if I had to. I did read the blog and it just

sounded like people who had no idea. So, who cares?!

.. If we would be around forever and our children would be in our care forever

then sure, that would make sense. But one day, our children will be in the world

by themselves (or at least in someone else's care), and we want them prepared

and want them to have the best possible potential. So, kudos to everyone doing

their best!

Martha