Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 In a message dated 6/1/00 10:35:04 PM, savon@... writes: << I would like to buy Ellagic Acid Capsules or Ellageric-Red21 and cannot find it anywhere. I have read that someone uses this , but I lost the post. Would you please tell me where you get yours ? >> Please post this info to the list if you have it! I've been looking for Ellagic Acid for weeks with no luck! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Could you tell me what these capsules do for cancer? I missed the post when you all were talking about these. Thanks, Jean Re: [ ] Information Needed > > In a message dated 6/1/00 10:35:04 PM, savon@... writes: > > << I would like to buy Ellagic Acid Capsules or Ellageric-Red21 and cannot > find it > anywhere. I have read that someone uses this , but I lost the post. > Would you please > tell me where you get yours ? >> > > Please post this info to the list if you have it! I've been looking for > Ellagic Acid for weeks with no luck! > > Liz > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > 1/4053/7/_/481431/_/959953096/ > ------------------------------------------------------------------------ > > -List Archives: > /archives.cgi/ > Web Sites: > http://home.sol.no/~dusan/cancerpage.html > http://www.geocities.com/~mycleanse/ > http://www.geocities.com/HotSprings/1158 > > By joining the list you agree to hold yourself FULLY responsible FOR yourself! > > To unsubscribe from this list, send an empty message to: > -unsubscribeonelist > > To change status from normal to digest , send an empty message to: > -digestonelist > > To change status from digest to normal, send an empty message to: > -normalonelist > > To subscribe again to the list, send an empty message to: > -subscribeonelist > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 These capsules don't do anything FOR cancer. They do something against it.... like being one of the most powerful agents to boost the immune system to kill cancer. best, JR Could you tell me what these capsules do for cancer? I missed the post when you all were talking about these. Thanks, Jean Re: [ ] Information Needed > > In a message dated 6/1/00 10:35:04 PM, savon@... writes: > > << I would like to buy Ellagic Acid Capsules or Ellageric-Red21 and cannot > find it > anywhere. I have read that someone uses this , but I lost the post. > Would you please > tell me where you get yours ? >> > > Please post this info to the list if you have it! I've been looking for > Ellagic Acid for weeks with no luck! > > Liz > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > 1/4053/7/_/481431/_/959953096/ > ------------------------------------------------------------------------ > > -List Archives: > /archives.cgi/ > Web Sites: > http://home.sol.no/~dusan/cancerpage.html > http://www.geocities.com/~mycleanse/ > http://www.geocities.com/HotSprings/1158 > > By joining the list you agree to hold yourself FULLY responsible FOR yourself! > > To unsubscribe from this list, send an empty message to: > -unsubscribeonelist > > To change status from normal to digest , send an empty message to: > -digestonelist > > To change status from digest to normal, send an empty message to: > -normalonelist > > To subscribe again to the list, send an empty message to: > -subscribeonelist > > > ------------------------------------------------------------------------ Was the salesman clueless? Productopia has the answers. 1/4633/7/_/481431/_/959981830/ ------------------------------------------------------------------------ -List Archives: /archives.cgi/ Web Sites: http://home.sol.no/~dusan/cancerpage.html http://www.geocities.com/~mycleanse/ http://www.geocities.com/HotSprings/1158 By joining the list you agree to hold yourself FULLY responsible FOR yourself! To unsubscribe from this list, send an empty message to: -unsubscribeonelist To change status from normal to digest , send an empty message to: -digestonelist To change status from digest to normal, send an empty message to: -normalonelist To subscribe again to the list, send an empty message to: -subscribeonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 what capsules ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 I need further information about diets and so forth. I 've had a few folks contact me and I don't have the info to give. I have posted other links on the chattykat website, but don't have any direct links to specific dieting info which they are looking for. Please let me know. Kay www.chattykatcommunication.com *Still would like to post this group link on there if it is okay. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Zara, Mark's story got me sad because I'm already professional as to PA. If you have enough money, or your insurance will pay, come with him to the dead sea in Israel. I, myself< go there twice a year for 4 weeks each time. It's a lot. you can start once for 4-6 weeks. it is a kind of climate treatments. lots of sun, dead sea water, mud and sulfur treatments. it is not cheap at all. your sun will nee a lot of discipline. However, after 4-6 weeks he could turn out " black " , clean off psoriasis, less pain in the joints. A new young man. True, it does not hold a long time for me. about two months and all the story starts coming back. This is why one has to repeat the treatment each year. The people in the Dead Sea have experience with young people like Mark. They have like kids camps there where all the participants have the same problems and they are not ashamed of it. Good luck to mark and to you as his mother. Arie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 I understand your concern. I took Humira and Remicade for treatment of Psoriatic Arthritis. However, when I changed Rheumatologist he asked if I ever tried taking Sulfasalazine and Hydroxychlor. I said no, so we gave it try. It has worked out for me. Maybe this could be a choice for your son. I am also a mother of 4. I was diagnosed in 2004. with Psoriatic Arthritis. Sounds like your son is in the middle of a flare. I feel for him. I have a hard enough time dealing with this disease, let alone have a child deal with it. I wish him well. I thought I would mention what medicines I take. It's nice to keep all options open. Taking pills is much easier than giving yourself an injection. Does anyone else in your family have Psoriasis? My husband and I both have Psoriasis. I developed Psoriasis when I was 20 years old, my husband had it as a baby. Then Psoriatic Arthritis hit me 19 years later when I was 41. This is one of the toughest things I've dealt with. The pain from the flares is so debilitating at times. Not to mention the pain and stiffness that comes along with it. During my flares the doc gave me cortisone shots to deal with the pain too. I want to you to know you do have options. Keep us posted on how your son is doing? This is a great group of people to share with. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 The other thing he can do is to start keeping a journal. It helps me get the emotions out. If I keep them in it just gets harder and harder to deal with. He can also visit this group. It is so nice to know that others are going through the same issues I do. I don't feel so alone. Just knowing this group is here helps when it gets tough. " tweetygodess " <tweetygodess@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Zara -- It's not a death sentence and I agree, this is a great group and good place to start. Perhaps A New Earth by Ekhart Tolle would also be a good read for him. I've been on Enbrel and now Remicade. I think I am getting much better results from the Remicade w/fewer side effects than the Enbrel, but the Enbrel did give me a place to start. Clobestsol (sp?) for his skin and Olux for ears and scalp are also very good tools. I use Sombra and Biofreeze for topicals. I've learned to use somatic yoga and meditation to keep range of motion and try to manage the chronic pain. I try to soak in a tub of water with Dead Sea and/or epsom and mint bath salts (Dead Sea salts are the best!) 3x a week. I use no soap on my skin or scalp that contains sodium laurel sulfate b/c it aggravates the psoraisis -- that means glycerine soaps and special shampoo (I had a terrible allergic reaction to the tar stuff). Swimming pools are supposed to be good, but I always look for the chemical free (no chlorine) and warm water. One of my most athletic sons was also dx w/knee problems at 14 also. His was triggered by an intentional attack on the soccer field followed by a dx of Reiter's Syndrome arthritis and restriction from all weight bearing sports thereafter. For him, riding a bicycle became an excellent outlet and means of strengthening his quads, which in turn, better protected his knees. Perhaps this would also help your son. I was dx in fall of 2000 w/PA, just 5 mos. after the first overt signs of psoraisis appeared on my elbows and no one could figure out what it was. [it destroyed my GPA in one semester (fall/3d yr law school), but we all survive!] At the time, it became one more challenge to discover " work arounds " just as one does on computers -- ie. using tape recorders in class b/c I could not take notes as easily when my hands hurt. Earth shoes and taping the midfoot joints of my R foot to make it a little easier to walk. Purchasing a tempur-pedic bed so that perhaps someday I'll be able to sleep through the night again. support tables to hold my books instead of the weight of holding them myself and learning to lay in a position that better supports my body so that I can read. We have a treadmill at home, but have seriously considered trading it for a recumbent bicycle so that I can try to do more cardio exercise here at home until my foot issues are resolved. I think that the most important thing is to be present in the moment. Don't take on too much into the future and look for ways to be proactive in continuing to pursue the goals he set for himself before the dx on April 9th! Good luck!! We will keep him in our thoughts and prayers. I hope that something we all try to suggest helps at least a little bit. Please keep coming back and let us know how your son is doing. Cheryl M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Amen to the recommendation on Tolle. I've been a fan of his since I read The Power of Now. You can also read it in conjunction with Oprah's Book Club and - even though they're now half-way thru A New Earth - you can still watch the 90 minute discussions between Tolle and Oprah on each chapter at your leisure on her bookclub website. Some 7,000,000 people worldwide are tuning in, submitting questions, etc. Just go to Oprah's Book Club and sign up. It's easy and free . .. . . . Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 If it makes you feel better, I'm on Humira and have virtually no side effects. There might be a bit of swelling and redness around the injection site immediately after I take the shot -- but it's temporary and goes away within a day or two. Nothing major. I'm on methotrexate as well -- and I don't have any major issues with that either. I take it before bed and if I do have any nausea from MTX, I sleep through it. The biggest thing is to be careful if he does get a cold or congestion. Get it treated immediately. Because the Humira and/or methotrexate works on the immune system, you can have more issues when you do get a cold. My recent cold developed quickly into bronchitis. But that was my fault for not getting treated fast enough. My doctor put me on antibiotics and now I'm fine. I went off Humira for a week or two -- and now I'll be starting my shots again this week. I also have a good friend who has been taking Humira and/or Enbrel since her teens. She's in her early 20's. She didn't have any major side effects and has lived a normal, happy life. She rides horses -- and is very active. She just graduated from college and will be moving to NYC soon to be a journalist. As the mother of a teen, I'm most concerned about your concern that your son is depressed. You might want to consider getting him involved in a teen support group for psoriasis (if there's one locally) or look into private counseling. Teens tend to overdramatize things -- and you don't want your son to feel that the PA is some horrible disease that's going to ruin his life. You might want to consider positioning it differently. It's hard to be positive sometimes, but it can be done. My teen friend tells everyone it's not an illness or disease, it's arthritis. And it's caused by an overactive immune system. My teen friend looks at it this way. Her immune system goes into overdrive -- and when she has an injury or problem, her immune system doesn't shut off after attacking the problem. It just keeps working on " treating " the problem. While her immune system is in overdrive, she can get inflammation which can cause pain and that can be a bummer. But if she treats it, she can reduce or eliminate the symptoms. You might want to consider putting it into that type of context. I've noticed that some people who classify PA as some terrible disease or ongoing illness tend to be more depressed about it. Now that you know he has it, he can be treated -- and that's a plus. Many people (myself included) go for decades without proper diagnosis. That can be even more disheartening. In his case, you have treatment options that can work -- and there are plenty of people with PA (teens included) who are active and happy. By the way, the Humira should help with the psoriasis as well as the PA. Mine tends to clear up while on it. Good luck! Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Zara - even though PA is not curable, it is possible to experience long- term remission, even for years! I'm glad that his rheumy is going to treat him aggressively right away - I believe that will increase his chances of a remission. Don't either of you give up hope! regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 > >When I read your post I thought I was reading about myself. I started the same way. I wish I had received treatment at that age. I am forty years old now and my PA is severe. My life experience says to start him on the Humira. If you can stop the progress at this age and level you will be doing him a huge favor. Sometimes I wish people would not read the potential side effects (I know we have to to be informed consumers) because they always sound so scary. Best of luck with your son and try to be proactive in his treatment. Best Wishes, Eileen G. Quote Link to comment Share on other sites More sharing options...
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