Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Hi Debbie, Thank you for sharing such an inspiring story I love it when people " ramble on " about how it is for them, living with arthritis. Sometimes arthritis manages to take 'center stage' for a while but it really is only a small part of a full life. Thanks for your encouraging words Take care, Georgina The Schuh Family wrote: > Hi Amy, > The wonderful word you must always remember is REMISSION! I was diagnosed at > age 12 with Poly JRA with a systemic onset. and a year later it went away > like it had never started. 2 years after that I began spiking a temp of 103 > every afternoon at 1pm <my english teacher swore I was just trying to get > out of her class>and after a week of it, I was back in the hospital. All of > my teen years were pretty much a blur of hospitals and rehab but then during > my senior year I went back into remission, had both hips replaced and things > became normal again! I have never been a very passive person so I was > always in the middle of my medical care, I think it is very important for > children to feel like they have some control over the decions or they are > more likely to get depressed and give up fighting. > I was in remission from 18-28 and during that time I went to college, did a > lot of public speaking at support groups and medical conferences all over > the country. was on TV more times than I can count and made a film for the > arthritis foundation on day to day activates of children with JRA. The > damage gets done during childhood growth spurs and she will always have to > deal with those limitations, but the pain does go away. > At 28 I stuttered back with flare ups, but it usually was just 1 day a month > <the day before my period when the hormones drop> I went in remission > through all 3 pregnancies, had c-sections to avoid the pushing in child > birth and with the exception of #3 everything went fine with changing diaper > etc <we had to adapt things a little to accommodate my limitations but > nothing major> When Wyatt was born 2 years ago it through me into a big time > flare and I now have a nanny to take care of kids and house. > The good news is that if she sets her mind to it, she can do most anything. > I have lived alone, been a divorced mom on social security and taken care of > my daughter alone <first husband couldn't handle it when I started having > another flare> traveled to Alaska <scared my parents to death but I was > determined to prove I could> and even met and married a wonderful man who > married me 3 months after my 2nd and 3rd hip replacements. I guess what I am > trying to say is that my family had convinced me that no man would ever want > to marry someone with so many medical problems and that they would have to > " take care " of me forever, but they were wrong. Arthritis isn't a death > sentence, it just means you have to find alternate routes to get where you > want to go (c: Boy am I rambling or what. I guess most importantly the > thing to remember is keep moving, do the therapy and try not to focus on > what you can't do, look for what she can do! > > Hugs, > Debbie > > The Schuh Family > Dan, Debbie, Dottie, Kody and Wyatt > http://members.tripod.com/BudgetScrapbooking/ > Debbie, > > Welcome! I'm also a mother of three kids (all born in 34 months). =) > My oldest was diagnosed in Dec. 98 with Pauci. Now she has progressed to > poly-jra. I'm so glad to hear you have children. I often wonder what is in > store for her in her adult life (kids, jobs and so on...) with her > arthritis. Anyway, it is encouraging to see that you have done all the > " normal " things adults do. =) > > God bless you, > Amy > Mother to 3 1/2 years old (poly-jra) > Mother to Andy 2 years old > Mother to Maddie 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Amber- THanks for the update! Sounds like he's improving! Although giggling is from the yeast too-that should improve as well. Go and rest...you must be exhausted. I hope you and your son get some good sleep soon! Amy --- kennetheriklucy <eislerfamily@...> wrote: > Hi Amy- update. Today is day #3 on the > Nystatin, and he isn't hot > today, but his cheeks are still fairly red. And he > is awfully giggly. > He's a lot more alert, and awake. It hasn't helped > with his sleeping at > all yet, I really hope it does. For a kid thats had > about 5 hours of > sleep in the last week, he's pretty awake. Amber. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Amber, are you doing any sort of antiyeast diet? I have not done this for my son but his yeast is not responding to anything right now. I hate to even consider it. I added ThreeLac to my son's Nystatin regimen today out of desparation. So far, mainly side effects from the B vitamins and lemon flavorings, though. Amy > > Hi Amy- update. Today is day #3 on the Nystatin, and he isn't hot > today, but his cheeks are still fairly red. And he is awfully giggly. > He's a lot more alert, and awake. It hasn't helped with his sleeping at > all yet, I really hope it does. For a kid thats had about 5 hours of > sleep in the last week, he's pretty awake. Amber. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 The only thing that wouldn't feed yeast for my son on that list is the chicken. I think it must be different for each child; for my daughter there are more foods she can eat, that won't cause yeast. I am thinking about taking him back down to just chicken and something, but I can't come up with a grain that doesn't feed yeast...is there one that's better than another? (He can't tolerate potatoes, rice, legumes, or the simpler-starch flours.) Yeast is like our #1 enemy right now, and we're losing ground daily....4 more days of winter break..... Congratulations on the improvements!!! It's so much work but worth it. Amy > > > > > > Hi Amy- update. Today is day #3 on the Nystatin, and he isn't > > hot > > > today, but his cheeks are still fairly red. And he is awfully > > giggly. > > > He's a lot more alert, and awake. It hasn't helped with his sleeping > > at > > > all yet, I really hope it does. For a kid thats had about 5 hours of > > > sleep in the last week, he's pretty awake. Amber. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.