Re: Sierra's 2nd band: Sue

[Guest guest]

Glad to hear the casting went so well! Good luck with the new

band!! BTW, how often do you go for adjustments? Thanks, Sue

> Sue,

>

> We just got back today from the casting on Friday. I tried to take

Sierra to

> the Indoor Interactive Disney Theme Park, but I accidentally took

an unwanted

> detour so we didn't make it. Sierra has been in the DOC Band

for 3

> months. She is 18 months, so instead of waiting for one more growth

spurt to

> graduate from the first one, she will be in the new band, and we

might get

> more improvement. Her head looks great now!! Her forehead is

blending in,

> you can now distinguish between her neck and head, The broad points

in the

> back are blending as well!! I don't think we will ever get a full

> improvement, I don't even ask for a percentage of correction we

might see.

> But at least I can say her head no longer looks like a big OLE

triangle!! I

> think her Neurologist gave me the prescription, because she wants

Sierra's

> old band to try to copy it. That experience was bizarre!

>

> Sierra has adjusted to it very well, even the casting was a piece

of cake!

> The hardest part is getting her hair dry. Her hair in the back is

already

> down to her shoulders. She is also taking it off, because she knows

she can.

> She is so funny! She will look straight at me, and run trying to

pull it off.

> I run all day trying to put it on! It's only her game, and for the

most part

> she wears it all day, and sleeps without a problem. I am also lucky

that

> tells me when she's doing it, and when she has done it, he

runs and

> hands it back, so I can put it back on.

>

> Thank you for asking! I'm sure I divulged more information then you

wanted.

>

>

[Guest guest]

Sue,

We go in every three weeks. The first month we went every week,

Sierra has always had a red spot on the right side. She had some skin

breakdown last week, because she keeps pulling it off. But it looks

good now.

> > Sue,

> >

> > We just got back today from the casting on Friday. I tried to

take

> Sierra to

> > the Indoor Interactive Disney Theme Park, but I accidentally took

> an unwanted

> > detour so we didn't make it. Sierra has been in the DOC Band

> for 3

> > months. She is 18 months, so instead of waiting for one more

growth

> spurt to

> > graduate from the first one, she will be in the new band, and we

> might get

> > more improvement. Her head looks great now!! Her forehead is

> blending in,

> > you can now distinguish between her neck and head, The broad

points

> in the

> > back are blending as well!! I don't think we will ever get a full

> > improvement, I don't even ask for a percentage of correction we

> might see.

> > But at least I can say her head no longer looks like a big OLE

> triangle!! I

> > think her Neurologist gave me the prescription, because she wants

> Sierra's

> > old band to try to copy it. That experience was bizarre!

> >

> > Sierra has adjusted to it very well, even the casting was a piece

> of cake!

> > The hardest part is getting her hair dry. Her hair in the back is

> already

> > down to her shoulders. She is also taking it off, because she

knows

> she can.

> > She is so funny! She will look straight at me, and run trying to

> pull it off.

> > I run all day trying to put it on! It's only her game, and for

the

> most part

> > she wears it all day, and sleeps without a problem. I am also

lucky

> that

> > tells me when she's doing it, and when she has done it,

he

> runs and

> > hands it back, so I can put it back on.

> >

> > Thank you for asking! I'm sure I divulged more information then

you

> wanted.

> >

> >

[Guest guest]

Sue,

Due to weather conditions Sierra had her DOC Band loosened a bit more in case

I couldn't make the drive to Chicago. I never thought about making visits

every two weeks, instead of every three. I will ask about that when we go to

pick it up!!

Talk about your attitudes!! I have never seen a baby as mean and

unaffectionate as Sierra is. In fact we nicknamed her " Precious " because even

calling her that cracks us up!!! I've been looking into it, and have come to

the conclusion she is just headstrong, and should no problem going through

life with her head held high!!! My husband commented the other evening that

our trips have really strengthened our relationship. So I am almost happy

with this whole experience.

Thank Goodness is my little helper!! I need all the help I can get

where she is concerned!!

[Guest guest]

,

pulls her band off all the time as well! At first, it took

both arms pulling real hard to get it off. After the last

adjustment, when they told us to return in 3 weeks, she was able to

remove it with one hand while playing with a toy in the other hand.

I wonder if they made it too loose so we could go 3 weeks between

visits? Does that make sense? I'd rather go every 2 weeks and have

it tighter and her wear it more!!

Sue & (1 year old yesterday and developing an attitude!)

P.S. My son thinks it's funny when she pulls off her " hat " and

says " yay ! " No help at all!!!!

> > > Sue,

> > >

> > > We just got back today from the casting on Friday. I tried to

> take

> > Sierra to

> > > the Indoor Interactive Disney Theme Park, but I accidentally

took

> > an unwanted

> > > detour so we didn't make it. Sierra has been in the DOC

Band

> > for 3

> > > months. She is 18 months, so instead of waiting for one more

> growth

> > spurt to

> > > graduate from the first one, she will be in the new band, and

we

> > might get

> > > more improvement. Her head looks great now!! Her forehead is

> > blending in,

> > > you can now distinguish between her neck and head, The broad

> points

> > in the

> > > back are blending as well!! I don't think we will ever get a

full

> > > improvement, I don't even ask for a percentage of correction we

> > might see.

> > > But at least I can say her head no longer looks like a big OLE

> > triangle!! I

> > > think her Neurologist gave me the prescription, because she

wants

> > Sierra's

> > > old band to try to copy it. That experience was bizarre!

> > >

> > > Sierra has adjusted to it very well, even the casting was a

piece

> > of cake!

> > > The hardest part is getting her hair dry. Her hair in the back

is

> > already

> > > down to her shoulders. She is also taking it off, because she

> knows

> > she can.

> > > She is so funny! She will look straight at me, and run trying

to

> > pull it off.

> > > I run all day trying to put it on! It's only her game, and for

> the

> > most part

> > > she wears it all day, and sleeps without a problem. I am also

> lucky

> > that

> > > tells me when she's doing it, and when she has done

it,

> he

> > runs and

> > > hands it back, so I can put it back on.

> > >

> > > Thank you for asking! I'm sure I divulged more information then

> you

> > wanted.

> > >

> > >