Fish Oils in PDD Nos children

[Guest guest]

I was just wondering if fish oil supplements such as

coromega and ProEFA has brought more focus and and

more pleasant behavior and speech gains as Apraxic

children and ADHD children. I know that this more

about enzymes but any supplement that may help our

children. My son is said to have autistic tendencies

and a severe speech delay and I wonder if he is ADHD

or PDD-NOS or if both is possible. I appreciate

everyone advice.

Selena

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

Haleh,

Where do you buy your ProEFA? My three year old is GFCF, preservative-

and flavor-free. We see lots of chatter still with Ronan and would

love to increase the verbal boost. He's experimenting with sound

combinations (not just ahhhh, but ha-ba, a-haaa, a-mmma, we even heard

a 't' sound over the weekend when he was being a sneaky, climbing,

getting into typical trouble!!)

Thanks,

>

> Selena,

> I was recommended to use Pro EFA by Kathleen who informed me that

seemingly it

> promotes language in aprexic children.

[Guest guest]

You can get it from number of online places that carry Nordic Natural

Products. www.iherb.com has good prices and fast service. This last time I

order it from BrainChild Nutritionals as I was also ordering their Multis and

was interested in saving on shipping and avoid yet another cardboard box to

become wasted. The fact that Ronan vocalizing consonants is great. Keyon did

that for close to year with scattered words coming and going. The last few

days however,he has been telling me " shaau-Up " for " shot up " sometimes when I

talk to him (something he has learned From " The Incredibles " ). We think it is

cute since he is technically Non-Verbal. MB 12 and Brainchild which we started

at close proximity have helped a bunch with his receptive (more so MB 12)and

now he has started imitating the sounds he hears (though fairly inconsistent

but it is increasing). I now I am certain that he will talk. He seem to have a

really severe oral motor trouble in making what he wants to say come out as he

hears it. I am going to try ProEFA and this time I am going to commit for a

long time. I am convinced that it will help. How much, I can't tell but when

you add all the increments, they do become a lot. I also highly recommend

MB12. It is worth all hyperactivity, stimmyness and yeast fighting efforts.

There is no feeling better than when the cognitive ability gets a boost.I am

taking the oral form myself.

Best to you and your precious Ronan.

Haleh

P.S. Keyon was delayed in the use of consonants. He was vocalizing them but

lost them all after MMR. But now they are all back so please be very

encouraged.

--- catjam34 <catjam34@...> wrote:

> Haleh,

>

> Where do you buy your ProEFA? My three year old is GFCF, preservative-

> and flavor-free. We see lots of chatter still with Ronan and would

> love to increase the verbal boost. He's experimenting with sound

> combinations (not just ahhhh, but ha-ba, a-haaa, a-mmma, we even heard

> a 't' sound over the weekend when he was being a sneaky, climbing,

> getting into typical trouble!!)

>

> Thanks,

>

>

> >

> > Selena,

> > I was recommended to use Pro EFA by Kathleen who informed me that

> seemingly it

> > promotes language in aprexic children.

>

>

>

>

[Guest guest]

Amber Eisler <eislerfamily@g...> wrote:

> My almost 3 yr old daughter is also having a speech problem.

> Amber.

Amber, the EFA's will definitely help. Also when you are playing with

your daughter, let her see how you make sounds with your tounge, teeth

and mouth. Really exaggerate, for example, sing the la la la la

sound, and show her how your tounge touches the back of your front

teeth. Or when you do a 'p' sound how a puff of air hits her hand.

How with 'g' sounds your tounge is deep on the bed of your mouth.

This really helped my son a lot. You are so on the ball to be

catching this all now. I am sure your speech therapist will have a

ton of stuff for you all to work on. This is what I did and it made a

huge difference. Oh and 'r' is really fun because you can play

growling games. Good luck.

Robyn

[Guest guest]

Thank you, Haleh--your words of encouragement bring me to a very

happy point It's been a tough week with sick kids and that

really helped me get through another tough afternoon. I was already

heading to the health food store tomorrow to get some of the coconut

macaroons Ronan loves. I'll look to see what ProEFAs they carry. We

are hoping to introduce more foods in the next months as Ronan is

tolerating so much more. He's starting to protest the same old same

old for lunch and dinner. I take that as a sign from him that he is

ready for a change.

I have MB12 and folic acid in capsule form from an earlier trial

that went sour. Would you recommend using those or is it better to

try sublingual? I had asked Dr. Megson about shots back in November

and assume we may start those when we go back for our 3-month check

up next month. If I try the caps, what's a recommended dosage for a

3 year old at about 30 pounds?

Thanks again. You are a true gift to this board.

[Guest guest]

> Can your recommend to me a good EFA that would benefit both of

> them, and where to get it? Thanks again. Amber.

Hi Amber,

I know most people here use the Nordic Nautrals Pro EFA. This is a big

capsule, so I imagine the ones with small children pierce the cap. You

can get this from Kirkman or the Nordic Naturals website:

http://www.nordicnaturals.com/

I like the Nordic Naturals Pro EPA for my older son and I give him

evening primrose with this for the 6 and 9. Both are caps, once again,

the Pro EPA is a big cap.

There is also a Nordic Naturals 'Ultimate Omega Liquid " that I

purchased from the Vitamin Shoppe. It packs a punch with 875mgEPA +

625mgDHA + 250mgother omega 3 oil in 1/2tsp. I added my Health from

the Sun Primrose liquid Gold to this which is also pretty potent. For

your daughter this might be a good solution, because you would only

want to start with an 1/8th tsp of the liquid and work up. I would

add in 1/2 ml of the evening primrose. This is a pretty small amount

so you might be able to get it in her. All three of my kids took this

on a daily basis, but they did not love the taste. I would have a few

tablespoons of a taboo soda that they could wash it down with or grape

juice, so they were happy about that. My oldest one would down the

fish oil concoction, down the soda and then drink some water all while

holding his nose. It was a process but he did it willingly. The

middle one would need counting to ten in a different language each

night. We took turns with the numbers and then on 10 he would down

it. He needed to make more of ritual out of it. And my five year old

daughter would just down it. I called it " a beautiful brain food. "

Now both of the boys can take the big caps and it is easier on all of

us, but they could not manage them when they were younger.

You need to actually to trial the EFA's for about three months, so

don't expect amazing results right away. It is more of a gradual

thing, that works in conjunction with other things, I only wish I has

started all this at the age of three!!! You are doing great.

Robyn

[Guest guest]

Hi, Robyn, OK, let's see if I have this straight. I went into the Nordic

Naturals website, and they sell their products in a health food right by my

house.

So, you recommend for my 9 yr old son, Nordic Naturals ProEPA capsule- 1?

evening primrose- how much?

Nordic Naturals Ultimate Omega Liquid- how much?

sun primrose liquid gold- how much?

Did you say to give all of the above to him???

And for my 3 yr old daughter... 1/8 tsp. sun primrose liquid gold

1/2 ml. evening primrose??

would I give her any ProEPA capsule? or Nordic Naturals Ultimate Omega

Liquid?? and how much????

Sorry, I'm pretty confused.

I also have to give my 9 yr old a spoonful of CLO with a glass of apple

juice to chase it down.

Thanks for your patience and help. Amber.

On 1/4/06, happydogmoon <happydogmoon@...> wrote:

>

>

> > Can your recommend to me a good EFA that would benefit both of

> > them, and where to get it? Thanks again. Amber.

>

> Hi Amber,

>

> I know most people here use the Nordic Nautrals Pro EFA. This is a big

> capsule, so I imagine the ones with small children pierce the cap. You

> can get this from Kirkman or the Nordic Naturals website:

> http://www.nordicnaturals.com/

>

> I like the Nordic Naturals Pro EPA for my older son and I give him

> evening primrose with this for the 6 and 9. Both are caps, once again,

> the Pro EPA is a big cap.

>

> There is also a Nordic Naturals 'Ultimate Omega Liquid " that I

> purchased from the Vitamin Shoppe. It packs a punch with 875mgEPA +

> 625mgDHA + 250mgother omega 3 oil in 1/2tsp. I added my Health from

> the Sun Primrose liquid Gold to this which is also pretty potent. For

> your daughter this might be a good solution, because you would only

> want to start with an 1/8th tsp of the liquid and work up. I would

> add in 1/2 ml of the evening primrose. This is a pretty small amount

> so you might be able to get it in her. All three of my kids took this

> on a daily basis, but they did not love the taste. I would have a few

> tablespoons of a taboo soda that they could wash it down with or grape

> juice, so they were happy about that. My oldest one would down the

> fish oil concoction, down the soda and then drink some water all while

> holding his nose. It was a process but he did it willingly. The

> middle one would need counting to ten in a different language each

> night. We took turns with the numbers and then on 10 he would down

> it. He needed to make more of ritual out of it. And my five year old

> daughter would just down it. I called it " a beautiful brain food. "

> Now both of the boys can take the big caps and it is easier on all of

> us, but they could not manage them when they were younger.

>

> You need to actually to trial the EFA's for about three months, so

> don't expect amazing results right away. It is more of a gradual

> thing, that works in conjunction with other things, I only wish I has

> started all this at the age of three!!! You are doing great.

>

> Robyn

>

>

>

>

>

>

>

>

[Guest guest]

If you can do the shots or the new nasal spray (whichever dr. Megson

recommends), please just do that. I am sooo pleasantly surprised with keyon.

We didn't noticed much change at first, though his teachers at special ed

preschool asked us on the second day if we had added a new intervention. It

really took about four weeks to see the real change. He is actually learning

something new every couple of days and his sense of humor is so great (MB 12

definitely is not a cure but agreat boost that makes the child ready for ABA,

OT Floortime etc).

Be prepared for more stimming, more hyperactivity and perhaps a little more

yeast but with my new experiment, Candex is panning out to be the yeast

control of my choice.

If you want to try the MB 12 capsules or lozenges for meanwhile, start really

slow at maybe 500 mcg or better yet try it on yourself first as we often have

similar metabolism and toxicity profile to our children.

Since Keyon is non-verbal, I don't give him anything that I don't test first.

Best,

Haleh

--- catjam34 <catjam34@...> wrote:

>

>

> Thank you, Haleh--your words of encouragement bring me to a very

> happy point It's been a tough week with sick kids and that

> really helped me get through another tough afternoon. I was already

> heading to the health food store tomorrow to get some of the coconut

> macaroons Ronan loves. I'll look to see what ProEFAs they carry. We

> are hoping to introduce more foods in the next months as Ronan is

> tolerating so much more. He's starting to protest the same old same

> old for lunch and dinner. I take that as a sign from him that he is

> ready for a change.

>

> I have MB12 and folic acid in capsule form from an earlier trial

> that went sour. Would you recommend using those or is it better to

> try sublingual? I had asked Dr. Megson about shots back in November

> and assume we may start those when we go back for our 3-month check

> up next month. If I try the caps, what's a recommended dosage for a

> 3 year old at about 30 pounds?

>

> Thanks again. You are a true gift to this board.

>

>

>

>

>

>

>

>

[Guest guest]

B-12 usage is dependent on methylation. If your kid is an undermethylator,

B-12 will set them off- as they do not need it.

Re: Fish Oils in PDD Nos children

> If you can do the shots or the new nasal spray (whichever dr. Megson

> recommends), please just do that. I am sooo pleasantly surprised with

> keyon.

> We didn't noticed much change at first, though his teachers at special ed

> preschool asked us on the second day if we had added a new intervention.

> It

> really took about four weeks to see the real change. He is actually

> learning

> something new every couple of days and his sense of humor is so great (MB

> 12

> definitely is not a cure but agreat boost that makes the child ready for

> ABA,

> OT Floortime etc).

> Be prepared for more stimming, more hyperactivity and perhaps a little

> more

> yeast but with my new experiment, Candex is panning out to be the yeast

> control of my choice.

>

> If you want to try the MB 12 capsules or lozenges for meanwhile, start

> really

> slow at maybe 500 mcg or better yet try it on yourself first as we often

> have

> similar metabolism and toxicity profile to our children.

> Since Keyon is non-verbal, I don't give him anything that I don't test

> first.

>

> Best,

> Haleh

>

> --- catjam34 <catjam34@...> wrote:

>

>>

>>

>> Thank you, Haleh--your words of encouragement bring me to a very

>> happy point It's been a tough week with sick kids and that

>> really helped me get through another tough afternoon. I was already

>> heading to the health food store tomorrow to get some of the coconut

>> macaroons Ronan loves. I'll look to see what ProEFAs they carry. We

>> are hoping to introduce more foods in the next months as Ronan is

>> tolerating so much more. He's starting to protest the same old same

>> old for lunch and dinner. I take that as a sign from him that he is

>> ready for a change.

>>

>> I have MB12 and folic acid in capsule form from an earlier trial

>> that went sour. Would you recommend using those or is it better to

>> try sublingual? I had asked Dr. Megson about shots back in November

>> and assume we may start those when we go back for our 3-month check

>> up next month. If I try the caps, what's a recommended dosage for a

>> 3 year old at about 30 pounds?

>>

>> Thanks again. You are a true gift to this board.

>>

>>

>>

>>

>>

>>

>>

>>

>

>

>

>

>

>

[Guest guest]

I bought mine from the Vitamin Shoppe and Wellspring

Grocery Stores. You can also got to Nordic Naturals

website, and it will give you a retail locator for

your area. Most Herbal stores have it though.

Selena

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

Haleh,

Would you recommend me to try the MB12 while pregnant? I am so

hesitant to do anything out of my eating/vitamin routine for fear of

hurting the baby. I don't even use my makeup or hair care products

anymore. I may be able to have my husband try this since he's

looking to get his own immune system up and running better again.

The last cold/sickness wiped him out for weeks.

Thanks again for your advice. Keep up the good work for you son.

It sounds like you are making strides like we are

> If you want to try the MB 12 capsules or lozenges for meanwhile,

start really

> slow at maybe 500 mcg or better yet try it on yourself first as we

often have

> similar metabolism and toxicity profile to our children.

> Since Keyon is non-verbal, I don't give him anything that I don't

test first.

>

> Best,

> Haleh

>

[Guest guest]

, Your prenatal vitamin has most likely vitamin B12 in it but not in

methyl form. Methylcobalomine is just more ready for the brain use. Have your

husband try it. I find it helpful for stress, depressive tendencies and brain

fog plus it gives me a boost of energy.

Best to you, baby inside you and your precious children.

--- catjam34 <catjam34@...> wrote:

> Haleh,

>

> Would you recommend me to try the MB12 while pregnant? I am so

> hesitant to do anything out of my eating/vitamin routine for fear of

> hurting the baby. I don't even use my makeup or hair care products

> anymore. I may be able to have my husband try this since he's

> looking to get his own immune system up and running better again.

> The last cold/sickness wiped him out for weeks.

>

> Thanks again for your advice. Keep up the good work for you son.

> It sounds like you are making strides like we are

>

>

>

> > If you want to try the MB 12 capsules or lozenges for meanwhile,

> start really

> > slow at maybe 500 mcg or better yet try it on yourself first as we

> often have

> > similar metabolism and toxicity profile to our children.

> > Since Keyon is non-verbal, I don't give him anything that I don't

> test first.

> >

> > Best,

> > Haleh

> >

>

>

>

>

>

[Guest guest]

Hello Salena,

It would be extremely helpful for you to see a DAN (Deafeat Autism Now)

doctor. But, if you want to learn a little on your own I have a few

suggestions.

First, buy the book " Children with Starving Brains " by Jacquelyn

McCandress. Without going into extreme detail, this book will be your

most important resource.

Second, take all milk products away. There is a protein in milk called

Caseinate. This protein is unable to be digested and broken down

properly in some children. It seems that kids on the autistic spectrum

are unable to manufacture enzymes that take care of the digestion of

this protein. The book above explains this in great detail. The milk

protein will stay in the system for around 4-6 days. It is the easiest

one to control in the diet. You simply make substitutions starting with

the milk your child drinks. It is a good idea to stay away from soy

based products as well as the soy protein is very similar to the milk

protein and many kids have problems with that too. Next to change over

your butter. There is a great substitute called " Earth Balance " that

are family uses. It tastes just like butter/margarine and is soft. But

there are no hydrogenated oils, and very little soy. Then you start to

make your own bread, and subtitute the milk and fats in your cooking and

before you know it you are well on your way.

Next I would purchase the book, " Special Diets for Special Kids " by

. It not only explains a great deal about our kids, it has great

recipies as well. She made a book Special Diets for Special Kids II as

well, but that one doesn't go into the detail that the first one does.

Some kids also need to have gluten removed. We are at this point. We

are trying and aren't very consistant as of yet. It is much harder to

do as gluten seems to be in everything! Gluten is in wheat, oats, rye

and barley. Well, a lot of things are made with flour. Flour is made

from wheat, and wheat is out! So it becomes difficult to substitute.

But we have learned to make gluten free/casein free breads. I don't buy

anything packaged, or rather as little as possible. We mostly eat

fruits and vegetables and some meats. Sounds boring, but it's safer and

easier to comply that way.

There are many resources on the internet.

Autism Research Institute www.autism.com/ari/

GFCF Diet www.gfcf.com

Aspergers Syndrome www.tonyatwood.com

Talk About Curing Autism TACA www.tacanow.com

Even Better Now www.evenbetternow.com

I hope those sites are useful to you.

Our son has Aspergers Syndrome. Very high functioning as well. So he

probably would also fit PDD/NOS as well. We have removed the milk

products and have seen a big difference in his demeanor and behavior in

general. We also give him supplements. The fish oil we use is by Tyler

and is called Eskimo 3. The pills are smaller than your typical fish

oil supplement and therefore easier to swallow. To meet our son you

would not know that he has any problems until you spend a significant

amount of time with him and then you would notice he is somehow

" different " .

If you would like to talk to me I would be more than happy to answer

your questions. I don't claim to know all, but I will say that I don't

trust the traditional medical establishment. They seem to think that if

something isn't published in the New England Journal of Medicine than

the study doesn't exist. The problem is that there are thousands of

studies that have been done regarding autism from mercury and vaccines

to milk and everything inbetween. It is a tough path to follow when

everyone is telling you something different. You just need to follow

your gut instincts. Once you read the book I outlined above, you'll

understand this a whole lot better.

Call me if you need to. My number is 608-326-6088

Good luck and take care. Coreen