Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 i live in philly too (for now) moving to cherry hill in 10 days. we have the helmet from " total care " . they are on city line avenue about 10+ minutes from the adams mark hotel. their no. is 610-924-0303.(i hope i'm allowed to do that) anyway. they are very nice and very helpful. ive gone back several times and they have never once been anything but overly nice. allison is the person who fits you baby. any questions....e-mail me. also, there are 2-3 other people on this site that go there and live locally. good luck-lisa > Hi everyone! I am so glad that I found this site! My name is Niki > and I have 5 1/2 month twins. When they were about 2 months old, I > noticed that my daughter, Kaylie's, left side of the head was flat. > I mentioned it to our pediatrician who said, like almost everyone > else's, that it will round out in time. So I used to switch what > side of the crib she slept in, put toys to the right of her, I did > everything that I could think of to get her off the flat side, but > she always squirmed around so that she was on her left side. Then > last week my mom found an article about plagiocephaly and > torticollis. The pictures I saw look like Kaylie's head! Her ears > aren't aligned and I don't know if anyone has encountered this, but > her nostrils aren't symmetrical! When I told my husband he said that > I was just looking for things and I was being too critical! But now, > because of this site I know that I'm not imaginig things! We have an > appointment with our pediatrician this Wednesday and I'm bringing him > all the articles that I could find about plagio/tort. I'm just so > mad because I lost a lot of precious time! > > Now for the questions! I live in Philadelphia, PA. Is anyone else > from here? Do you use a helmet or a DOC band? What nuerosurgeon are > you seeing? Is there anything that you can recommend to me on the > how and where to get started? And we have Blue Cross Blue Sheild > Personal Choice. Luckily, our coverage doesn't have any " pre- > existing " conditions. Has anyone had any trouble from BCBS not > paying for the treatment? Have you had any luck with appeals? I'm > sure I will have so many more questions after Wed. doctor appointment! > > I really appreciate any advice you can share! I really look forward > to getting to know you all! Thank you! Sorry it turned out much > longer than I had anticipated! > > Niki > mom to 4 1/2 > 2 > Kaylie and 5 1/2 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 HI Niki - I'm from Albany, not too terribly far away considering. We go to the Cranial Tech site in Paramus NJ. Maggie was 1 week shy of her first b-day when she got her band. Talk about wasted time!!!! The band is working and her forehead is perfectly even after 8 weeks in the band. Her ears are still asymmetrical. My husband was the same way - didn't see the plagio as much as me. I think it is a daddy's little girl thing. I am happy to help if you ave any questions. Kaycee - mom to , Mikala Gunnar and Maggie in Albany, NY > Hi everyone! I am so glad that I found this site! My name is Niki > and I have 5 1/2 month twins. When they were about 2 months old, I > noticed that my daughter, Kaylie's, left side of the head was flat. > I mentioned it to our pediatrician who said, like almost everyone > else's, that it will round out in time. So I used to switch what > side of the crib she slept in, put toys to the right of her, I did > everything that I could think of to get her off the flat side, but > she always squirmed around so that she was on her left side. Then > last week my mom found an article about plagiocephaly and > torticollis. The pictures I saw look like Kaylie's head! Her ears > aren't aligned and I don't know if anyone has encountered this, but > her nostrils aren't symmetrical! When I told my husband he said that > I was just looking for things and I was being too critical! But now, > because of this site I know that I'm not imaginig things! We have an > appointment with our pediatrician this Wednesday and I'm bringing him > all the articles that I could find about plagio/tort. I'm just so > mad because I lost a lot of precious time! > > Now for the questions! I live in Philadelphia, PA. Is anyone else > from here? Do you use a helmet or a DOC band? What nuerosurgeon are > you seeing? Is there anything that you can recommend to me on the > how and where to get started? And we have Blue Cross Blue Sheild > Personal Choice. Luckily, our coverage doesn't have any " pre- > existing " conditions. Has anyone had any trouble from BCBS not > paying for the treatment? Have you had any luck with appeals? I'm > sure I will have so many more questions after Wed. doctor appointment! > > I really appreciate any advice you can share! I really look forward > to getting to know you all! Thank you! Sorry it turned out much > longer than I had anticipated! > > Niki > mom to 4 1/2 > 2 > Kaylie and 5 1/2 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 Hi Niki! My name is Stacey and my daughter Hannah is 10 months old tomorrow and she is getting casted Wednesday for her DOC band. She too is flat (on both sides, especially the right side). I noticed she was flat by age 4 months. I told her peditrician who said to " flip " her over. I tried this, but Hannah would find a way to flip back to her right side to sleep. It wasn't until her 6 month check up that I demanded to know why she is still so flat. We were sent to have a skull x-ray (which was normal) and then to a pediatric neurosurgeon who ordered a CAT scan to make sure her sutures were open.(which they were). He mentioned something about a band, so we went to the place in our state, Missouri, who makes them and got all the information they had. It took 2 months waiting on our insurance company (Humana) to deny our claim for her to get the $3500.00 DOC band. My husband and I finally decided to bite the bullet and get it anyway and appeal the insurance (if they don't pay, we are out of pocket $3500.00...but no biggie if it works). I didn't know anything about plagiocephaly. My peditrician never uttered the word to us...I wonder if he even knew anything about it. My advice to you....Your baby is still young, if you can reposition, it may make a difference, but there may be some torticollis...if so, the neck stretches 5x a day may make a world of difference. I think that if we would have know about them when Hannah was 5 1/2 months old, she probably would not have needed the band. Her neck muscles were so tight on the left side, she compensated by sleeping on the right. Since we have been exercising her she has started sleeping on the left side and the back more....But, the research says that after age 6 months if there is still head " deformaties " the only way to correct is by the band/helmet or corrective surgery (which they don't do unless the sutures are fused). But.....talk to your doctor and a neurosurgeon if possible, and any orthostist could give you all the information you could possible want on the helmets/bands and maybe even tell you if your child would be a candidate. Our orthotist said that she only treats children who have moderate to severe plagiocephaly. If a child is mild, she does not band them. (just a bit of info). I hope it helps. My personal advice, based on my expererience....don't waste valuable time. If your child need a band, they have alot better success when the kids are young. My daughter will probably have to wear her band longer since she will be 10 1/2 months old when she gets it. Good luck and let me know if I can help. Stacey Mother of Hannah (soon to be banded) You can email me privately if you wish rchapman@... -- In Plagiocephalyegroups, irisheyes175@a... wrote: > Hi everyone! I am so glad that I found this site! My name is Niki > and I have 5 1/2 month twins. When they were about 2 months old, I > noticed that my daughter, Kaylie's, left side of the head was flat. > I mentioned it to our pediatrician who said, like almost everyone > else's, that it will round out in time. So I used to switch what > side of the crib she slept in, put toys to the right of her, I did > everything that I could think of to get her off the flat side, but > she always squirmed around so that she was on her left side. Then > last week my mom found an article about plagiocephaly and > torticollis. The pictures I saw look like Kaylie's head! Her ears > aren't aligned and I don't know if anyone has encountered this, but > her nostrils aren't symmetrical! When I told my husband he said that > I was just looking for things and I was being too critical! But now, > because of this site I know that I'm not imaginig things! We have an > appointment with our pediatrician this Wednesday and I'm bringing him > all the articles that I could find about plagio/tort. I'm just so > mad because I lost a lot of precious time! > > Now for the questions! I live in Philadelphia, PA. Is anyone else > from here? Do you use a helmet or a DOC band? What nuerosurgeon are > you seeing? Is there anything that you can recommend to me on the > how and where to get started? And we have Blue Cross Blue Sheild > Personal Choice. Luckily, our coverage doesn't have any " pre- > existing " conditions. Has anyone had any trouble from BCBS not > paying for the treatment? Have you had any luck with appeals? I'm > sure I will have so many more questions after Wed. doctor appointment! > > I really appreciate any advice you can share! I really look forward > to getting to know you all! Thank you! Sorry it turned out much > longer than I had anticipated! > > Niki > mom to 4 1/2 > 2 > Kaylie and 5 1/2 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Thank you so much for your quick answer. It helps a lot! Janette Quote Link to comment Share on other sites More sharing options...
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