Question for Dana

[Guest guest]

I got involved with this group because I have two boys with autism but

I also have another son who has asthma, severe allergies and ecezema

and I thought I remembered you mentioning that you suffered from asthma

yourself and you thought it was from a flu shot, I believe. I was

wondering if you could share with me what supplements you took to

overcome this. I'm also considering trying enzymes with him. He's

very skinny and doesn't seem to gain weight. What do you think and

thanks in advance for all your help.

Dianne

[Guest guest]

Heidi,

I feel like we've done it all. We've been following the DAN! protocol for 2

years. My son is GFCF soy-free, egg-free. We've used every supplement known to

man and currently use: Kirkman's Spectrum Complete multi-vitamin, folic acic,

zinc, TMG, taurine, glycine, gaba, COQ10, B12 shots, brainchild minerals,

carnitine (prescription), melatonin (on occasion), CLO, probiotics,

ketaconazole, glutathione, Kirkman enzymes, DMSA and we've just started zeolite.

We've also done speech therapy (current), music therapy, special-ed preschool,

and ABA (which was a disaster). We're getting ready to start work with a new

therapist.

I don't know what else to do. My son's progress is cyclic. He starts coming

back, gains a few words (he actually gained over 40 words in 2 weeks back in

April), then he loses it all again and we're back to square one. Every few

months we see improvement and become hopeful only to watch Colin dissapear again

a few weeks later. Right now he has no words. This merry-go-round ride is

killing me. This morning I ran across pictures of Colin " before " when he hammed

it up for the camera, smiled at his sisters, interacted with all of us. I hate

that I've lost that child. If you know something I don't, please tell me. I am

so tired....

Sissy

Re:Question for Dana

Dear Sissy:

I have had great success with my children, which started in days after

treatments started. My kids are now in regular school whereas before they

could

not even do special needs schooling without psych meds. Tell me what all you

have tried and are doing, and let me give you some suggestions.

Heidi

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[Guest guest]

>

> Thanks Dana, it's 500 mg

For a young child, 500mg OLE per day would be a good dose.

Dana

[Guest guest]

Hi Maggie,

My son was diagnosed with sleep apnea at 3 yrs. old his oxygen dropped to 91%

when he slept (sleep study showed this). The x-ray showed he had minimal air

getting through, so he had his tonsils & adnoids removed. Sleep did not improve

only minimal. He would wake up every night and stay up for hours.

We started Neurofeedback last year when my son turned 5. The first thing they

addressed was his sleep. After two sessions, his sleep was fixed 99%. The

teachers started commenting on his better focus and eye contact. If his sleep

get a little crazy due to a cold or something, I ask them to do the sleep

protocol again, and it fixes it that night.

Now we are working on the expressive side of the brain.

I don't know if or when we will ever stop doing it, because it has been a

blessing to us.

He goes 2 x per week and only for 12 minutes each time. We tried to increase

the minutes recently, and he got so hyper (of course it happened on a Friday),

his sleep was crazy until we went again on the Wednesday and it was fixed that

night.

When we started Neurofeedback, they asked us not to start new supplements etc.

at the same time.

Let me know if you need any more info.

Kelley

Maggie O'rourke <maggie_orourke@...> wrote:

Kelley

I have had a friend offer to do neuro feedback for my son. I was wondering how

your son's treatments affected him. We are waiting to get some chelation time

under our belts before beginning NF, but I would love to hear your experience.

Maggie

Kelley <tjkan5@...> wrote:

Hi Dana,

I thought I read in another post, that you didn't have a DAN Dr. when you

started out with your children (not sure if you ever used one).

My question is, what tests if any did you do not your kids to monitor there

vitamin levels etc.? Did you pay for private lab test from Great Plains etc.?

I have done the Comprehensive Stool Test through Great Plains which is how I

confirmed his high yeast levels.

I give my 6 yr. old non-verbal Autistic son NCD 2x per day (so far 13 drops

a.m./12 drops p.m. only adding 1 drop per week)/3 packets of Threelac per

day/just started Trienza Enzymes/will be adding the anti fungal rotation this

week for yeast. (We also do Neurofeedback 2 x per week for the past 1 1/2 yrs.

which has fixed his sleep issues).

I like to go slow with him.

All your help and info is greatly appreciated.

Kelley

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