Re: Getting Casted Monday

[Guest guest]

I bet you feel better. Sam turned 9 months on 1/11/01 and he is

adjusting very well. Good luck.

and Sam

> Well,...We decided to get Hannah the DOC band (after much, much

> thought and research). She is getting casted Monday. I hope that

> her age 9 1/2 months will not work against us. It was a stressful

> decision, but All your advice helped us make it.

>

> THANKS BUNCHES.

>

> Stacey

[Guest guest]

Dominika:

Thanks for the encouragement. It was a hard decision for us to make,

but I believe in my heart of hearts it is the right thing to do. I

am glad to hear you have had wonderful improvements with Aimee's

helmet. What shaped head did she have before treatment? Hannah's is

Scaphocephalic. She is flat on both sides with a protruding

forehead. The Orthotist said she should get some rounding out around

the temples and hopefully push her forehead back some...but no

guarantees. I am very nervous about the whole procedure. Its so

hard when your baby is involved in anything that may make them

unhappy. Did you have any problems with Aimee adjusting to the

helmet? I just pray eveything goes well for my Hannah. I will feel

so guilty if it doesn't.

Keep me informed on Aimee's progress.

Thanks.

Stacey

--- In Plagiocephalyegroups, " Dominika White " <dominika@d...>

wrote:

> Stacey...

> Just wanted to tell you that my daughter Aimee didn't get casted

till she

> was almost 10 months old and didn't get a helmet till she was

almost 11

> months old and we have now been in it almost 2 months and we are

seeing

> WONDERFUL improvement! I am glad that we put Aimee in a helmet and

I am

> sure that you will be glad too...don't let the age factor worry you

too

> much...you still have plenty of time!

>

> Domi and Aimee (Helmet wearer since Nov.29,2000)

> ----- Original Message -----

> From: <rchapman@d...>

> <Plagiocephalyegroups>

> Sent: Wednesday, January 17, 2001 9:20 PM

> Subject: Getting Casted Monday

>

>

> > Well,...We decided to get Hannah the DOC band (after much, much

> > thought and research). She is getting casted Monday. I hope that

> > her age 9 1/2 months will not work against us. It was a stressful

> > decision, but All your advice helped us make it.

> >

> > THANKS BUNCHES.

> >

> > Stacey

> >

> >

> >

[Guest guest]

Heidi:

Thanks for the posting. I think Hannah will have to get two bands

also. The orthostist said she didn't know for sure (I guess it is

just a guessing game)...hopefully she will just need one.

Our insurance has denied the charges for the band, so my husband and

I are going to probably have to eat the charge of $3500.00. I will

appeal the insurance (Humana) companys decision and hopefully will

have good luck. I waited 2 months to hear from the insurance just to

get where we are now....can't wait anymore since Hannah is getting

old. I have read that people have had good success with treating

older children. Hannah will be 10 1/2 months old by the time she

gets fitted for her band. I pray it works.

Good luck to you and Luke. Keep in touch.... I'll keep you all in

my thoughts.

Best success.

Stacey

> Hi Stacey,

>

> Good luck with the casting on Monday. Our son is 8 months old and

we are

> still waiting for authorization for the band. I have the feeling

by the

> time he gets it he will be 9 months. I, like you too are worried

about his

> age and the effects. Im pretty much telling myself that Luke will

have to

> wear 2 bands. Thats just what I seem to be reading and hearing

about when

> kids are older and start the band. I figure it will be a pleasant

surprise

> if he only has to wear one. Let me know how things go........

> Im very nervous about the casting.

>

> Take care,

> Heidi & Luke (still waiting)

[Guest guest]

Stacey,

After hearing your email about waiting 2 months to get where you are

now.....I think we should bite the bullet and charge it ourselves too. It's

been a week and half since Luke was diagnosed with Plagio and nothing has

happen.......just waiting. Im getting more and more frustrated with each

passing day. I'm happy for you that your day is finally here. Good luck

with casting on Monday. I can't wait to hear how it goes.

Heidi

[Guest guest]

If at all possible and you can do it, pay cash and ask for a cash

discount. They will usually give 10% off and every little bit

helps! Good luck!

Sue &

Bakersfield, CA

> > Hi Stacey,

> >

> > Good luck with the casting on Monday. Our son is 8 months old

and

> we are

> > still waiting for authorization for the band. I have the

feeling

> by the

> > time he gets it he will be 9 months. I, like you too are worried

> about his

> > age and the effects. Im pretty much telling myself that Luke

will

> have to

> > wear 2 bands. Thats just what I seem to be reading and hearing

> about when

> > kids are older and start the band. I figure it will be a

pleasant

> surprise

> > if he only has to wear one. Let me know how things go........

> > Im very nervous about the casting.

> >

> > Take care,

> > Heidi & Luke (still waiting)

[Guest guest]

Sue:

Thanks for the information. 10 percent will help a lot.

Stacey Chapman

Mother of Hannah (soon to be banded)

> > > Hi Stacey,

> > >

> > > Good luck with the casting on Monday. Our son is 8 months old

> and

> > we are

> > > still waiting for authorization for the band. I have the

> feeling

> > by the

> > > time he gets it he will be 9 months. I, like you too are

worried

> > about his

> > > age and the effects. Im pretty much telling myself that Luke

> will

> > have to

> > > wear 2 bands. Thats just what I seem to be reading and hearing

> > about when

> > > kids are older and start the band. I figure it will be a

> pleasant

> > surprise

> > > if he only has to wear one. Let me know how things go........

> > > Im very nervous about the casting.

> > >

> > > Take care,

> > > Heidi & Luke (still waiting)

[Guest guest]

Heidi:

Thanks! We are glad we are finally getting the process started for

Hannah. I do regret waiting the 2 months for the whole insurance,

doctors etc. Each day is important. The sooner you catch the

problem the better the result (I hear anyway). We are going ahead on

on own and will fight the insurance company along the way.

I have to admit, this is one of the hardest decisions we have had to

make for Hannah. I want to do the best thing for our daughter and it

is so frustrating when you get one answer from your peditrician and

another from someone else (i.e. neurosurgeon, orthotist). I did

alot, (I mean alot) of research and posting on my own to make the

decision. I feel in my heart of hearts it is the right

decision....and it is AMAZING how much relief I have had since we

have made the decision to just go ahead and get her banded. My

advice, (for what it is worth) is DO NOT WASTE valuable time. Good

Luck and let me know if I can be of any help (I will do whatever I

can).

Stacey Chapman

- In Plagiocephalyegroups, Hashworth73@a... wrote:

> Stacey,

>

> After hearing your email about waiting 2 months to get where you

are

> now.....I think we should bite the bullet and charge it ourselves

too. It's

> been a week and half since Luke was diagnosed with Plagio and

nothing has

> happen.......just waiting. Im getting more and more frustrated

with each

> passing day. I'm happy for you that your day is finally here.

Good luck

> with casting on Monday. I can't wait to hear how it goes.

>

> Heidi

[Guest guest]

Stacey

Thanks for the encouraging message. I know we made the right decision for

Luke. I just want to get the ball rolling and like you said not waste

valuable time. I will be letting you know how things go.

Heidi & Luke (still waiting)