Re: To Band or Not... - seeing a specialist on the 8th!!

January 3, 2001

Hi Sue...

Thanks. We got a very quick referal to a Dr. Hoffman at Universit of

California San Francisco Hospital. He's a cranio specialist/plastic

surgeon. They seemed very interested in taking Geoffrey sooner rather

than later. I believe they moved other appointments to fit us in

because the Doctor believes in seeing plagio cases early. The nurse

says he can usually recomment treatment or therapy after the first

meeting... so hopefully our options will be narrowed down by Monday

afternoon.

The nurse had not heard of the DOC bands, but she wanted us to ask the

Doctor on Monday. He may turn out to be more of a helmet subscriber --

I don't know. We will know more about the severity or mildness of

Geoffrey's condition on Monday.

If we do have to travel to Burbank we have relatives in the LA Area we

can stay with over several days if necessary. I would never travel

back and forth from San Francisco on the same day. We are commited to

doing whatever necessary to solve this problem even if our insurance

never covers a dime... we will find a way.

Thanks for your encouragement, Sue. I'm hoping to download some

pictures of Geoffrey in the coming days for people to see.

> ,

> Welcome to the group. If you do end up with the DOC band, you will be

> using Cranial Therapies in Burbank which is where 's band was

> made. It is located about one mile from the Burbank airport and

> others have traveled from Northern California and even farther.

> There is some way to buy 2 round trip tickets 2 or 3 weeks apart and

> use different legs of the two tickets on the same day which is

> cheaper than buying a round trip ticket for one day. I know that

> doesn't make sense, but I believe it was Sue Luck who traveled by

> plane regularly and she could explain it better. Sue...please help!

> Anyway, you can also check out Stanford University's helmet clinic

> and the Starband at orthoamerica.com. You are in the perfect window

> of opportunity. Good luck with your decision. It will be the right

> one for your family. Sue & (1/21/00) Bakersfield, CA

>

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