Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 >>Keyon gets really > hyper on calcium My son also got hyper on calcium, and I learned it was because he was calcium toxic. I had to give IP6 for several months to reduce his calcium [and iron] levels. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2005 Report Share Posted December 10, 2005 Hi Haleh I noticed you said you are in California - who is your DAN doctor as we are looking for someone who does the MB12 shots. Thanks --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2005 Report Share Posted December 10, 2005 , We are in Modesto, about 90 miles south east of San Francisco and we began seeing Doctor Lynn Mielke. She is one of the two most recommended DAN Dr in the Bay Area. She is in Pleasenton and the following is her website: http://developmentalspectrums.com/ The other favorite Dr in this area is Dr. Trever. I think he is in Union City, south of SF. They both have very long waiting lists (about 9 months) but if you make an appointment, then you can call to get it moved forward as people cancel their appointments all the time. This happened to us and we got Keyon in within 4 months. I do have confidence in her. She has a seven year old ASD son with severe gut problems and though is not a very warm and fuzzy person, she is quite professional and up on all the new DAN research. If you are in southern CA, Your options are even broader as there are more good DAN Drs there. I think most DAN doctors do the MB12 shots or now nasal spray (which seem to be very effective as well). This may be true especially if you indicate that this is what you want as your child's treatment options. For me this is the advantage of a DAN who is an MD or DO verses an ND or homeopath, the fact that they can write prescriptions for MB12 and Glutathione at the compounding pharmacy. MB 12 and Glutathione cream are the first things Dr Mielke added to my son's regime as I have been doing a lot on my own. She told me to keep all that I had done already which are the following: GFCF diet Houston Trio enzymes GFCF Probiotics, Cod Liver Oil BrainChild Multi Vit & Min Amino Acid Support Zinc Melatonin Keyon has become a lot more aware and has better concentration with MB12. So much so that he no longer likes the taste of his chocolate tablets with enzymes in it. So, with improved cognition it is going to take a lot more to trick him (LOL). Dr Milke's initial appointments are 2 hrs for $650.00. At first I thought it was a lot but then figured that in the same length of time a pediatrician makes $900.00 or more by walking from one examination room to the next. Also the initial requirements are commitment to lab tests that run well over $2000.00, perhaps about $2200.00 plus the drawing fee and though this is a lot for us right now (I am the only employed person). If you have a PPO insurance, you can perhaps retrieve some of this cost. We had to go with Blue Cross HMO because of my husbands preexisting condition and can't change that until next October. I think it is worth to do the testing if it means to get to the bottom of our children's gut issues, metabolic issues, allergies, detox pathways, etc, etc... and make more directed and pointed choices about the supplements rather than just puring money into the supplements that our children do not take, tolerate or do not improve with. If you do already have a DAN Dr, maybe you can ask her/him for MB 12 shots or nasal spray. If you have an understanding pediatrician, maybe you can ask them to prescribe it. My son currently is on Nasal spray. This is what it says on the pharmacy's little slip that came with the shipped prescription. MB12 12.5MG: FA 3MG Nasal FA stand for Folinic Acid. This is a month supply and it DOES expires in 30 days. I don't know what the liquid solution is but I suspect purified water. The name of the Pharmacy is Medicine Shoppe (in San Ramon, CA) and their number is (925) 830-0555 so, if you have a willing Dr., perhaps he/she can call them an inquire more. Best, Haleh --- andrea capone <ajc888so@...> wrote: > Hi Haleh > > I noticed you said you are in California - who is your DAN doctor as we > are looking for someone who does the MB12 shots. > > Thanks > > > > > --------------------------------- > > Find Great Deals on Holiday Gifts at > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi Haleh, Did the transdermal glutathione cause yeast for your son? My DAN says it won't, but I don't know... Thanks, Why does it always seem like > Yeast? > > > > I am just curious...seems like so many people blame > yeast on gut and behavior issues. > > Why is that? > > Its just a common answer " Could be yeast or yeast > die > off! " ;-) > > BTW - My son has never had a yeast issue, yet has > major gut issues and some behaviors that seem to > mimic > yeast. > > Lori > > > > > > __________________________________ > for Good - Make a difference this year. > http://brand./cybergivingweek2005/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi , My son has had chronic yeast before and after all supplements and to answer your question, no we did not experience any yeast increase after introducing glutathione. In fact it was one of the very few supplements that I did start at full dose with no adverse reaction what so ever. However, Please note that we are using the Transdermal which does not pass through the gut. Good luck, Haleh --- jonathan cox <jjcox22@...> wrote: > Hi Haleh, > Did the transdermal glutathione cause yeast for your son? My DAN says it > won't, but I don't know... > Thanks, > > > > Why does it always seem like > > Yeast? > > > > > > > > I am just curious...seems like so many people blame > > yeast on gut and behavior issues. > > > > Why is that? > > > > Its just a common answer " Could be yeast or yeast > > die > > off! " ;-) > > > > BTW - My son has never had a yeast issue, yet has > > major gut issues and some behaviors that seem to > > mimic > > yeast. > > > > Lori > > > > > > > > > > > > __________________________________ > > for Good - Make a difference this year. > > http://brand./cybergivingweek2005/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 It was helpful because otherwise we would have never known about his CMV which obviously has been raging havoc in his system. Other than that we found out his other abnormalities. For us it has been well worth it as I see this as a long term investment in my son's future and every bit of info helps a bunch. It is so expensive though and I understand that you need to prioritize. Best, Haleh --- jjcox22 <jjcox22@...> wrote: > Haleh, > I saw you did the Immunosciences viral panel. Can you share with me > how this helped you? > > We are thinking of doing it but not sure it's worth the money. > > Thanks-- > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Thanks Haleh. What is CMV? How have you treated it? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Cytomegalio Virus. Treating with Immune Factor # 8, a transfer factor by Chisolm Lab. H --- jjcox22 <jjcox22@...> wrote: > Thanks Haleh. > What is CMV? How have you treated it? > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi dear Haleh, I've come across a couple of your recent posts regarding the high dose Vit A protocol you did with Keyon, and the improvements you've seen thereafter and I was just wondering if the Immunoscience testing was done prior to the high dose vit A protocol, and whether it showed high titers for the measles virus? Thanks and kind regards, PS I'm so happy for all the improvements you've been seeing with Keyon lately. And thanks for sharing your successes with everyone here, you're giving us much hope!! > > It was helpful because otherwise we would have never known about his CMV which > obviously has been raging havoc in his system. Other than that we found out > his other abnormalities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hi , Immunoscience test was done prior but he had low titers for measels. However, his ION test shoed very low vitamin A despite eight months of CLO supplementation. Since his regression also had started after the MMR and he had a history of cyclical viral infections, as well as he was burning through vtamin A, his DAN recommended to do this despite of the test showing low titers. Best, Haleh --- michelletin2003 <michelletin2003@...> wrote: > Hi dear Haleh, > I've come across a couple of your recent posts regarding the high dose > Vit A protocol you did with Keyon, and the improvements you've seen > thereafter and I was just wondering if the Immunoscience testing > was done prior to the high dose vit A protocol, and whether it showed > high titers for the measles virus? > Thanks and kind regards, > > PS I'm so happy for all the improvements you've been seeing with Keyon > lately. And thanks for sharing your successes with everyone here, > you're giving us much hope!! > > > > > > > It was helpful because otherwise we would have never known about his > CMV which > > obviously has been raging havoc in his system. Other than that we > found out > > his other abnormalities. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Thanks Haleh. We haven't yet done the Immunosciences testing which we are currently organising, and we are yet to try the high dose Vit A protocol for lack of courage We didn't really pinpoint our son's regression as starting around the time of his MMR, he seems to have regressed a few months after the MMR, following a couple of gastro illnesses. But his vitamin A was quite low when we first tested about 10 months ago (1.1 from a ref range of 1.6 - 2.3) and even now after 10 months of twice daily supplementation with CLO (1/2 teaspoon twice a day) his most recent blood test showed a good 1.9 (ref range 1.6 - 2.3) but considering the amount of vitamin A he's been getting on a daily basis, we would have thought perhaps it would be a little higher. Thanks again Haleh. It gives me a little more to think about. Kind regards, > > > > > > It was helpful because otherwise we would have never known about his > > CMV which > > > obviously has been raging havoc in his system. Other than that we > > found out > > > his other abnormalities. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Haleh - Via the Immunosciences viral panel my son showed out of range #s for CMV. Just curious, does immune factor #8 suppress the virus and in effect it would bring down the #s? Any insight you have would be greatly appreciated. Martha > > > Thanks Haleh. > > What is CMV? How have you treated it? > > > > Thanks, > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 We are in the second month of this supplement and have not tested to see the effect. It seem to cause die off mainly with runny poop but the behavior has improved termendously. No more tantrumes, better transitions and no lining up or over OCDs. So I suspect it is very effective but in terms of clinical results, I couldn't shed light into your question. Best, Haleh --- marthawerling <marthawerling@...> wrote: > Haleh - Via the Immunosciences viral panel my son showed out of > range #s for CMV. Just curious, does immune factor #8 suppress the > virus and in effect it would bring down the #s? > > Any insight you have would be greatly appreciated. > > Martha > > > > > > > > Thanks Haleh. > > > What is CMV? How have you treated it? > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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