Re: Help needed- Family and health problems

[Guest guest]

I am sorry to hear about your mother being unsupportive. I think people

connected to mainstream medical industry can be very defensive and

unsupportive out of their ignorance and insecurity. This includes the beloved

moms and please know it is not out of maliciousness but from a kind of blind

trust our system has inductrinated many to have.

Please know that you have this group of people here and we are here to truly

support one another without judgements.

This group is where I spend most of my time with and have come to think of it

as a virtual family so feel free to vent here.

Haleh

--- manwithnoname37 <manwithnoname37@...> wrote:

> I posted before how I went to a gastroenterologist and he blew me off

> as being crazy. My mom's been a nurse for 30 years and she's never

> heard of any of the things we discuss on this board. " IgA, what's

> that? " She's convinced I have absolutely no health problems and it's

> all in my head. This is extremely frustrating. She said that I think

> I know more than a gastroenterologist now b/c I read a few things on

> the internet. This whole thing is EXTREMELY stressful and having no

> emotional support from my family is making it worse. I thought the

> problem was h. pylori or a parasite but now I think it might be

> something like low IgA or an antibody problem that allows these

> infections to keep coming back. There is definitely a medical problem.

>

>

>

>

>

>

>

>

>

[Guest guest]

Sorry if my response appears twice, but I it didn't seem that my post went

through. I'll keep this one short. Share this example of how the medical

community had it all wrong. The doctor who discovered H.pylori was the

subject of extreme skeptism and redicule. What he said flew in the face of

what was believed at that time. There are many more examples. Your Mom

has been in medicine for thirty years. She should be able to give you enough

examples to fill a couple of hours. Here's another example: physicians didn't

do anesthesia for infant circumcisms because they were taught that infants do

feel pain. Wrong! Now they at least give the parents the option. Here's a neat

summary of H.pylori:

" H pylori was first discovered as a cause of gastric ulcers in 1982 by

Australian physician Barry Marshall. Because his views differed from his

fellow doctors, they would not believe his discover, so in 1984 Dr Marshall

experimented on himself. He drank a solution of H pylori and became ill eight

days later. Biopsies (small pieces of tissue cut from his stomach) and

endoscopies (optical examination from a tube inserted down his throat)

showed a definite infection from the H pylori. Dr Marshall's experiment proved

to be one of the greatest medical breakthroughs in decades and by this

means he impressed his colleagues enough to generate more studies,

several of which have confirmed Dr Marshall's theories about H pylori

causing ulcers. "

http://www.holisticahealingspa.com/Helicobacter.htm

>

> I posted before how I went to a gastroenterologist and he blew me off

> as being crazy. My mom's been a nurse for 30 years and she's never

> heard of any of the things we discuss on this board. " IgA, what's

> that? " She's convinced I have absolutely no health problems and it's

> all in my head. This is extremely frustrating. She said that I think

> I know more than a gastroenterologist now b/c I read a few things on

> the internet. This whole thing is EXTREMELY stressful and having no

> emotional support from my family is making it worse. I thought the

> problem was h. pylori or a parasite but now I think it might be

> something like low IgA or an antibody problem that allows these

> infections to keep coming back. There is definitely a medical problem.

>

[Guest guest]

--- Thank you for everyone who responded. I've just been through a

week of hell and needed to discuss some of my problems with people

who are experiencing the same things. It's nice to know that

somebody doesn't completely dismiss my thoughts as ludicrous.

Tomrrow I'm going to make an appt. with my primary doctor and try to

get him to test me for immunodeficiency diseases. Pretty much all

the signs point to that being the problem. This is definitely

testing my resolve.

How long has everyone been dealing with these medical problems? For

me it's been 8 long years. I haven't shared all of my struggles with

anyone over the past 8 years so when I try to explain it now to them,

they think I'm making up excuses for why I can't do things. I always

saw that it was none of their business, but now many people have made

my life their business and so I've started telling them some of the

things I've been going through but many people just see these as

excuses. I've been through things that most people haven't been

through. Most people wouldn't think of going to a gastroenteologist

and telling him he's wrong. It can be very frustrating so I come to

places like here to share my experiences with people who are going

through the same things and learn about what's happening.

I have a high school diploma and I figured out that I have candida in

my fingers and wrists and came up with a treatment for it and have

seen positive results. Most people would just go to a doctor and

accept whatever he told them. He would probably give them something

for arthritis which would just be treating the symptoms. But I

figured it out on my own what was wrong and solved it without a

doctor. That's something I'm proud of. I guess this is a test I'm

going through but it's very trying.

[Guest guest]

We are all here because we are treating autoimmune disorder for ourselves and

our children and haven't had much luck from mainstream. Some us can afford to

work with alternative health care providers and some can't but above all we

are a lucky bunch because we have taken our health and the health of children

into our own hand. Everytime you figure our how to treat and cure a problem,

you should be proud and share that with other like minded people.

Because you believe you have autoimmune issues, you should perhaps invest in a

cupy of Andy Cutler " the Amalgam Illness " Join Mercury Autism group and

consider chelation therapy.

That is next for me after I remove my mercury amalgams.

If you have amalgams and can't remove them yet, i.e. no dental insurance or a

mercury free dentist around, there is still a lot you can learn to do to help

yourself.

I wish you very best and am glad you are part of this group.

Best,

Haleh

--- manwithnoname37 <manwithnoname37@...> wrote:

> --- Thank you for everyone who responded. I've just been through a

> week of hell and needed to discuss some of my problems with people

> who are experiencing the same things. It's nice to know that

> somebody doesn't completely dismiss my thoughts as ludicrous.

> Tomrrow I'm going to make an appt. with my primary doctor and try to

> get him to test me for immunodeficiency diseases. Pretty much all

> the signs point to that being the problem. This is definitely

> testing my resolve.

>

> How long has everyone been dealing with these medical problems? For

> me it's been 8 long years. I haven't shared all of my struggles with

> anyone over the past 8 years so when I try to explain it now to them,

> they think I'm making up excuses for why I can't do things. I always

> saw that it was none of their business, but now many people have made

> my life their business and so I've started telling them some of the

> things I've been going through but many people just see these as

> excuses. I've been through things that most people haven't been

> through. Most people wouldn't think of going to a gastroenteologist

> and telling him he's wrong. It can be very frustrating so I come to

> places like here to share my experiences with people who are going

> through the same things and learn about what's happening.

>

> I have a high school diploma and I figured out that I have candida in

> my fingers and wrists and came up with a treatment for it and have

> seen positive results. Most people would just go to a doctor and

> accept whatever he told them. He would probably give them something

> for arthritis which would just be treating the symptoms. But I

> figured it out on my own what was wrong and solved it without a

> doctor. That's something I'm proud of. I guess this is a test I'm

> going through but it's very trying.

>

>

>

>

[Guest guest]

Haleh speaks for me, too. I'm seriously considering trying your GSE

protocol on the hands (and feet, too). Since I keep reading that

yeast will probably continue to be an issue until the heavy metals

are removed, I've now prioritized removing them.

I have been reading Andy Cutler's book, as Haleh recommends, and it

is such a relief to find there is a *real* cause for all the years of

suffering our family has experienced, and that there is something we

can do about it! However, before starting to chelate with his

protocol (and also concerned about the root canals and crowns still

in my mouth), I found out about the Natural Cellular Defense zeolites

(fairly new on the heavy metal detox scene).

Waiora (the company that makes NCD) says it's OK to use the zeolites

if you haven't had amalgams removed. Here is an excerpt from an

interview with Rik Deitsch, chairman of their Science Advisory Board:

Q: What about mercury fillings, stents, joint replacements–things

that people are concerned that might be affected by the NCD?

A: The zeolite in the Natural Cellular Defense attracts and traps

small, highly-charged particles that fit into the pores and channels

of the zeolite cage. Understand that this is a passive process – when

the zeolite is in close proximity to these compounds, they will be

drawn to the zeolite and either absorbed into the cage or adsorbed

onto the surface of the zeolite. There is no chemical activity in

this process. The zeolite will not be drawn to compounds in an effort

to 'rip' metals away from them. In other words, the zeolite will not

leach mercury from dental amalgams. If, on the other hand, the

amalgams have already released free mercury into the system, the

zeolite will have the ability to trap and remove it.

Again, the activity of the zeolite is entirely passive. It will not

attack dental fillings, hip replacements, breast implants, etc.. In

an entirely passive process, the zeolite will act like a magnet -

drawing high affinity atoms and compounds to itself.

I hope this information is helpful. Our family is waiting for the

zeolites like little superheroes coming to save our lives! And we

should all be very proud of ourselves for thinking for ourselves and

taking our health into our own hands instead of buying into the

ignorance the medical profession.

Very best wishes,

Lalita

On Mar 26, 2006, at 8:46 PM, haleh niazmand wrote:

> We are all here because we are treating autoimmune disorder for

> ourselves and

> our children and haven't had much luck from mainstream. Some us can

> afford to

> work with alternative health care providers and some can't but

> above all we

> are a lucky bunch because we have taken our health and the health

> of children

> into our own hand. Everytime you figure our how to treat and cure a

> problem,

> you should be proud and share that with other like minded people.

> Because you believe you have autoimmune issues, you should perhaps

> invest in a

> cupy of Andy Cutler " the Amalgam Illness " Join Mercury Autism

> group and

> consider chelation therapy.

> That is next for me after I remove my mercury amalgams.

> If you have amalgams and can't remove them yet, i.e. no dental

> insurance or a

> mercury free dentist around, there is still a lot you can learn to

> do to help

> yourself.

> I wish you very best and am glad you are part of this group.

> Best,

> Haleh

[Guest guest]

> I have a high school diploma and I figured out that I have candida in

> my fingers and wrists and came up with a treatment for it and have

> seen positive results. Most people would just go to a doctor and

> accept whatever he told them. He would probably give them something

> for arthritis which would just be treating the symptoms. But I

> figured it out on my own what was wrong and solved it without a

> doctor. That's something I'm proud of. I guess this is a test I'm

> going through but it's very trying.

You sound like an intelligent person who can figure out your issues by

yourself. Is there a reason you want to deal with mainstream medicine?

You might be better off finding a chiropractor, naturopath, or other

similar alternative practitioner.

Dana

[Guest guest]

You know, my own mother had trouble accepting the reality of my

medical problems--including not only lupus and food allergies but

also primary immunodeficiencies. I think it is partly that the

people who love us the most are in a state of denial. They don't want

anything to be wrong, so they deny that it is.

Peace,

Kathy E.

On Mar 26, 2006, at 8:33 PM, haleh niazmand wrote:

> I am sorry to hear about your mother being unsupportive. I think

> people

> connected to mainstream medical industry can be very defensive and

> unsupportive out of their ignorance and insecurity. This includes

> the beloved

> moms and please know it is not out of maliciousness but from a kind

> of blind

> trust our system has inductrinated many to have.

>

> Please know that you have this group of people here and we are here

> to truly

> support one another without judgements.

> This group is where I spend most of my time with and have come to

> think of it

> as a virtual family so feel free to vent here.

> Haleh

>

>

>

> --- manwithnoname37 <manwithnoname37@...> wrote:

>

> > I posted before how I went to a gastroenterologist and he blew me

> off

> > as being crazy. My mom's been a nurse for 30 years and she's never

> > heard of any of the things we discuss on this board. " IgA, what's

> > that? " She's convinced I have absolutely no health problems and

> it's

> > all in my head. This is extremely frustrating. She said that I

> think

> > I know more than a gastroenterologist now b/c I read a few things on

> > the internet. This whole thing is EXTREMELY stressful and having no

> > emotional support from my family is making it worse. I thought the

> > problem was h. pylori or a parasite but now I think it might be

> > something like low IgA or an antibody problem that allows these

> > infections to keep coming back. There is definitely a medical

> problem.

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>

>

[Guest guest]

So sorry you don't have family support. Maybe that's her signal to you

that this is way beyond her understanding or interest at the moment,

and you need to talk to her about other things...and talk about these

health issues with people are are keen on listening.

It's hurtful and disappointing when the people who should be supporting

you don't or won't. People are human and have their own issues and

limitations to contend with.

The internet is full of junk, for sure...but it is also full of good

stuff. You are certainly welcome here to banter about whatever.

Afterall, I don't think many of us here wanted to be our own doctor!!!

Or be doctor of our kids' health. Support is important to good health

too.

.