's Story and beginning the insurance battle

[Guest guest]

My wife and I had our first son in July and immediately we knew there

were problems with 's head. Everytime we mentioned it to

someone they just told us it would correct itself and not to worry.

Needless to say it never did correct itself. The problem was

compounded when our son was diagnosed with a congenital heart

defect. He would go on to spend the first three weeks in the

hospital and close monitoring until since then. He has heart surgery

on 12/27/00 and is doing fine. All this time we were so worried

about his heart that the head issue came up infrequently. 's

cardiologist was the first to refer us to a neurosurgeon. He works

closely with the local cranial tech office. They have been helpful

so far but Coventry has been dragging there feet. Cranial Tech told

them that Coventry has never paid for a band.

The bad part is that before we even start with the mold or go any

further we must be turned down by the insurance company. We were

told that our son's head was so misshapen that he was not even on the

charts for how much he deviated. We kinda already knew that but when

they told us that to get a good shape he would need two or three

bands we were floored. I know I have read several of you folks

stories and it breaks my heart to hear them but if anyone can help me

and encourage my wife and I we sure would appreciate it.

We are ready to fight to have our sons head nice and round and if the

insurance company doesn't pay I told Robin, my wife, I was ready to

eat cold bologna and cheese sandwiches to see my son's head a normal

shape.