Re: A medical hypothesis...or hypotheses...

February 23, 2006

Kathy,

I am printing this out. Thank you for sharing this in such an easy to

understand format. If only I could understand how this affects over

and undermethylation!

Robyn

February 23, 2006

I love to hear things like this. Just the removal of milk and wheat and all

the improvements you noticed.

The diet did nothing for us, but think, for all the reasons you outlined,

everyone should give it a 2-3 week trial.

Great! Kathleen,

A medical hypothesis...or hypotheses...

> After reading all the literature that has just come out about gluten

> ataxia, I have a new hypothetical understanding about the vaccines

> and how they affect our kids, and why the GFCF diets and/or are

> helpful...in addition to all the obvious stuff about mercury

> poisoning that we know already.

>

> 1. The primary site of mercury excretion in the poisoned individual

> is in the BILE.

>

> 2. The bile is excreted, full of toxic mercury, into the SMALL

> INTESTINE.

>

> 3. The poison then destroys the normal enzyme systems of the small

> intestine, which are found in the delicate brush border of the

> villi. It is not necessary to cause villous atrophy as in celiac

> disease to do this.

>

> 4. The child on a normal American diet continues to consume gluten

> in wheat, rye, barley and casein in milk, cheese etc. But the enzymes

> that should break these down into amino acids are weak or missing

> entirely after being destroyed or inactivated by the mercury in the

> bile. There may also be trouble digesting other foods, such as

> lactose, fats, or sucrose. Chronic diarrhea, constipation or

> malabsorption may ensue, and may cause insufficient absorption of

> essential fatty acids or fat-soluble vitamins such as vitamin A or

> vitamin K.

>

> 5. One or both of the following occur:

> a. The gluten and casein are broken down incompletely into the

> opioid peptides that cause the child to act as if drugged with a

> narcotic. (This is an older suggestion for why these diets work, and

> has some substantiation.)

>

> B. The lining of the intestines is damaged in a way similar to

> celiac disease, and autoantibodies to the enzyme tissue

> transglutaminase then are produced. These autoantibodies further

> damage not only the intestinal lining, but also the Purkinje cells of

> the cerebellum. This affects the developing vestibular functioning

> of the brain and accounts for many of the sensory integration

> dysfunction symptoms that we see in our kids. Dysarthria is also seen

> in individuals with gluten ataxia, which means that it could also

> affect speech. Purkinje cells are damaged in autopsies of autistic

> individuals.

>

> 6. The mercury also has an effect on immune function and makes the

> children more vulnerable to subsequently given live virus vaccines

> and infections. This would account for latent virus infections with

> chickenpox and measles vaccines affecting the cranial nerves or the

> intestines, for example. The cranial nerves are involved with

> hearing, speech, swallowing, and nearly all the systems our kids have

> difficulty with.

>

> 7. The intestinal permeability that is produced by 5B, above, also

> gets into a vicious cycle with yeast and intestinal dysbiosis. This

> affects the neurotransmitters that we now know are produced in the

> gut as well as the brain.

>

> 8. Because of the problems with oral sensory and motor function as

> well as intestinal reactions to food, and anxiety based on inability

> to communicate, some children develop severe food aversions. This

> creates a vicious cycle with inadequate nutrition affecting development.

>

> 9. Often the persons around the child, especially in educational or

> therapeutic settings, fail to distinguish between a child who is

> sick, reacting to foods, brain-injured, doesn't understand, or

> simply frightened, and one who is " oppositional " or unwilling to

> comply. This leads to a destruction of basic trust, which causes

> more withdrawal and another vicious cycle. The parents can often

> play a large role in interrupting this cycle if their child can learn

> to trust them, at least. Note that this is the only non-biological

> factor in all of this noxious cycle of events.

>

> For those of you who may be interested in the medical literature,

> look up articles by M. Hadjivassiliou, MD, et. al. in Neurology,

> 2006:373-337, and in J. Neuro Neurosurg Psychiatry, 2003,

> 74;1221-1230., and Neurology 2002;58:1221-1226.

> Those references are for the gluten ataxia and its treatment and

> serological associations. The other ideas came from my reading over

> the past two years, and our experience with Ben. Any researchers out

> there that want to test any of this, feel free...I'm not claiming any

> of this as intellectual property...just my ideas.

>

> Benny's fecal antigliadin IgA was 24 (normal 0-9), and his antitissue

> transglutaminase and fecal anti-casein IgA tests were also positive.

> He was and is greatly helped by the enzymes, but now after one week

> on a strict gluten free diet he is potty trained, and incredibly

> improved with respect to vestibular functioning--all of a sudden

> willing to go on the carousel, the boat rides, the Tower Ride at

> Silver Springs...AND balance himself on an adult toilet. All of this

> he refused to do at all before.

>

> Thanks for letting me put together my thinking on this.

>

> Peace,

> Kathy E.

> Kathleen_E@...

>

February 23, 2006

Kathleen Eickwort wrote:

>

> After reading all the literature that has just come out about gluten

> ataxia, I have a new hypothetical understanding about the vaccines

> and how they affect our kids, and why the GFCF diets and/or are

> helpful...in addition to all the obvious stuff about mercury

> poisoning that we know already.

>

This makes perfect sense to me and it is pretty much my opinions on

this issue. I feel I am one of those people that holds onto toxic

substances and that is why I have 2 special needs kids. I have

flourodsis(sp?)-darkened teeth with white spots and to me this shows

that I do not metabolize toxic substances properly. I feel that I

passed these toxic substances on to my kids through the placenta and

through my milk. I breastfed for many years. I am pg with my third

now and I am concerned about this baby too, but what can I do?

February 23, 2006

There's lots you can do!

And, I know this is not exactly the most cheerful thought, but if your

children's problems truly do stem from your own toxic load, and there havent

been any big intervening factors (like a bunch of dental work or something)

then baby #3 is possibly in better shape than babies 1 and 2 b/c you have

passed a lot of your toxic load to the first 2 already (some people say

there is no better way to chelate a woman than to get her pregnant - I know,

not cheerful but there you have it).

Even IF the issue is your toxic load, there is still a lot you can do (or

perhaps you have already done this stuff - if so, forgive the list!):

You can go GFCF yourself and/or do it in combination with taking HNI enzymes

yourself

You can make sure your own gut is in as good a shape as possible

(probiotics/yeast killers etc)

You can make sure your anti-oxidant and mineral status is in good shape by

supplementing

You can consider taking omegas

You can avoid fish

You can eat organic when ever possible

You can take out basic toxins (aluminum deodorant, aluminum cookware, etc

etc)

You can get yourself the most intervention-free prenatal and birth care

possible

You can avoid early cord clamping

You can choose not to vaccinate

Good luck with this pregnancy!!!!

Josie

I am pg with my third

now and I am concerned about this baby too, but what can I do?

February 23, 2006

Josie, you're such a sweet, caring, upbeat person. Next time I'm feeling

down, I am going to ask you for a pick-me-up talk.

I have been feeling sad lately- I am worried about my son's future. He's 5

yrs asd. He's not toilet trained, not talking, and doesn't understand much

of what is said to him. Is the best I can hope for for him to end up in a

good group home?

I'm really worried, and saddened by what his life is, and will be. I guess

I'm asking for that pick-me-up talk sooner than you thought, hey? Thanks.

Amber.

On 2/23/06, Josie Lecraw <josie.nelson@...> wrote:

>

> There's lots you can do!

>

> And, I know this is not exactly the most cheerful thought, but if your

> children's problems truly do stem from your own toxic load, and there

> havent

> been any big intervening factors (like a bunch of dental work or

> something)

> then baby #3 is possibly in better shape than babies 1 and 2 b/c you have

> passed a lot of your toxic load to the first 2 already (some people say

> there is no better way to chelate a woman than to get her pregnant - I

> know,

> not cheerful but there you have it).

>

> Even IF the issue is your toxic load, there is still a lot you can do (or

> perhaps you have already done this stuff - if so, forgive the list!):

>

> You can go GFCF yourself and/or do it in combination with taking HNI

> enzymes

> yourself

>

> You can make sure your own gut is in as good a shape as possible

> (probiotics/yeast killers etc)

>

> You can make sure your anti-oxidant and mineral status is in good shape by

> supplementing

>

> You can consider taking omegas

>

> You can avoid fish

>

> You can eat organic when ever possible

>

> You can take out basic toxins (aluminum deodorant, aluminum cookware, etc

> etc)

>

> You can get yourself the most intervention-free prenatal and birth care

> possible

>

> You can avoid early cord clamping

>

> You can choose not to vaccinate

>

> Good luck with this pregnancy!!!!

>

> Josie

>

> I am pg with my third

> now and I am concerned about this baby too, but what can I do?

>

February 23, 2006

Hey Amber:

What a nice message. Thanks so much!!!

Listen, the best pick-me-up I can give you (or anyone) is this:

Get yourself a box of tissues and go directly to www.danwebcast.com

<http://www.danwebcast.com/> , register if you haven't already (it's free)

and watch the videos of recovered kids. Then watch it again. And again.

Then watch all the OTHER videos if you haven't already. It is great

inspiring stuff!!!

There is nothing easy about any of this. You wouldn't be normal if it

didn't get to you sometimes. Hang in there!!!

Josie

Re: Re: A medical hypothesis...or hypotheses...

Josie, you're such a sweet, caring, upbeat person. Next time I'm feeling

down, I am going to ask you for a pick-me-up talk.

I have been feeling sad lately- I am worried about my son's future. He's 5

yrs asd. He's not toilet trained, not talking, and doesn't understand much

of what is said to him. Is the best I can hope for for him to end up in a

good group home?

I'm really worried, and saddened by what his life is, and will be. I guess

I'm asking for that pick-me-up talk sooner than you thought, hey? Thanks.

Amber.

On 2/23/06, Josie Lecraw <josie.nelson@...> wrote:

>

> There's lots you can do!

>

> And, I know this is not exactly the most cheerful thought, but if your

> children's problems truly do stem from your own toxic load, and there

> havent

> been any big intervening factors (like a bunch of dental work or

> something)

> then baby #3 is possibly in better shape than babies 1 and 2 b/c you have

> passed a lot of your toxic load to the first 2 already (some people say

> there is no better way to chelate a woman than to get her pregnant - I

> know,

> not cheerful but there you have it).

>

> Even IF the issue is your toxic load, there is still a lot you can do (or

> perhaps you have already done this stuff - if so, forgive the list!):

>

> You can go GFCF yourself and/or do it in combination with taking HNI

> enzymes

> yourself

>

> You can make sure your own gut is in as good a shape as possible

> (probiotics/yeast killers etc)

>

> You can make sure your anti-oxidant and mineral status is in good shape by

> supplementing

>

> You can consider taking omegas

>

> You can avoid fish

>

> You can eat organic when ever possible

>

> You can take out basic toxins (aluminum deodorant, aluminum cookware, etc

> etc)

>

> You can get yourself the most intervention-free prenatal and birth care

> possible

>

> You can avoid early cord clamping

>

> You can choose not to vaccinate

>

> Good luck with this pregnancy!!!!

>

> Josie

>

> I am pg with my third

> now and I am concerned about this baby too, but what can I do?

>

February 24, 2006

Our children certainly are each a puzzle, and I offered the hypothesis e-mail

not to

pressure anyone to try any particular intervention but because it does offer

multiple

avenues for intervention. Please let me illustrate what I mean by that, I can't

get the Rich

Text Editor to work for me so I put the suggestions between asterisks like

***this***.:

> 1. The primary site of mercury excretion in the poisoned individual

> is in the BILE.

>

> 2. The bile is excreted, full of toxic mercury, into the SMALL

> INTESTINE.

***Avoid giving vaccines containing thimerosal whenever possible. If it's too

late, see

below.***

>

> 3. The poison then destroys the normal enzyme systems of the small

> intestine, which are found in the delicate brush border of the

> villi. It is not necessary to cause villous atrophy as in celiac

> disease to do this.

***Test for lactase deficiency (a stool test is available). Ask your doctor

about using

Lactaid or digestive enzymes if the child is lactose deficient or if he or she

has abdominal

pain, discomfort, or flatulence after drinking milk. Or avoid cow's milk and use

Darifree or

something the child tolerates instead.***