Re: Saw Neuro today>>>HELP

[Guest guest]

--

As you know, 8 months is definitely not too old! Maybe for the

passive helmet this guy can write a Rx for, but not for a DOC Band or

other dynamic device (Starband). You are the mom! You are the expert

on your son and his best advocate, certainly not this doctor. Best to

you!

Joan

> We went to Children's Hosp. today and saw one of the " countries

> finest neurosurgeons " . He looked at Sam's head, felt 'carefully' is

> sagital suture and then talked about x-rays. We told him that the

> sutures were open. (I think he was surprised) He went to look at the

> x-rays. We freaked thinking the worst because he looked very

> concerned. He came back in and told us yes they were open. He just

> has an elongated head. I told him he was NOT born this way. (This

> is from about 4 months) He said we should be happy. (We are happy

> about not having the surgery...we knew this 2 weeks ago) I asked him

> about banding and he said no for the following reasons:

>

> 1. He is 8 months old which is too old.

> 2. Banding does not correct an elongated head shape like that of the

> sagital suture cranio.

>

> He then did the unthinkable he looked at my husbands head and

> said " see, look at his head... (you can say anything my husbands head

> is NOT elongated) even he had to say " well not really " !

>

> We are willing to go to Kansas City. But this jerk would not write a

> script. (They have their own ortho that fix flat spots when they are

> really young. Not an old man at 8months)

>

> Sorry if your computer is smoking... I guess I am " a little " upset.

>

> It was almost like he was sorry it wasn't cranio " he can fix that "

>

> If ANYONE can help please give us information. I went to the Cranio

> Tech. sight and printed the specialists Singahi and Colyer, Heibert

> ar Dr.s listed on the sight. Has anyone gone to them???

>

> I just cant understand why all the dr.s are so alarmed about the

> shape until they find out the sutures are open.

>

> Please help

> Sorry I sound so mad...I am... but I'm sorry to dump on you...

> I had all these things I wanted to say, but whenever I said anything

> (like his ears being crooked) he kinda laughed.. Like I was this dumb

> woman.

>

>

> Sam with the crooked head's mom that should learn to live with a long

> skull.

[Guest guest]

,

I have defiantly walked a mile in your shoes. I am absolutely

heartbroken that mothers have to go through this type of ignorance to

seek medical attention for their children. You are doing the right

thing by seeing a Neurologist the CT site recommended. Call tomorrow,

and set up an appt. The hard part will be trying to get in as soon as

possible. When I tried I couldn't get an appt. no sooner then 4

weeks. After stating my situation, and time was of essence I found

that the Neurologist work in clinics outside of the hospital, and was

able to set up an appt. within 2 weeks time.

You are the only person that knows what is right by your child. Keep

your faith, and know it is not to late. Try to send the goofball

literature to educate him, for the next unfortunate soul that walks

through his doors. There is nothing wrong with being a proactive

parent. Stay Strong!!

Sierra 07/99

11/97

Redford, MI

> We went to Children's Hosp. today and saw one of the " countries

> finest neurosurgeons " . He looked at Sam's head, felt 'carefully'

is

> sagital suture and then talked about x-rays. We told him that the

> sutures were open. (I think he was surprised) He went to look at

the

> x-rays. We freaked thinking the worst because he looked very

> concerned. He came back in and told us yes they were open. He

just

> has an elongated head. I told him he was NOT born this way. (This

> is from about 4 months) He said we should be happy. (We are happy

> about not having the surgery...we knew this 2 weeks ago) I asked

him

> about banding and he said no for the following reasons:

>

> 1. He is 8 months old which is too old.

> 2. Banding does not correct an elongated head shape like that of

the

> sagital suture cranio.

>

> He then did the unthinkable he looked at my husbands head and

> said " see, look at his head... (you can say anything my husbands

head

> is NOT elongated) even he had to say " well not really " !

>

> We are willing to go to Kansas City. But this jerk would not write

a

> script. (They have their own ortho that fix flat spots when they

are

> really young. Not an old man at 8months)

>

> Sorry if your computer is smoking... I guess I am " a little "

upset.

>

> It was almost like he was sorry it wasn't cranio " he can fix that "

>

> If ANYONE can help please give us information. I went to the

Cranio

> Tech. sight and printed the specialists Singahi and Colyer,

Heibert

> ar Dr.s listed on the sight. Has anyone gone to them???

>

> I just cant understand why all the dr.s are so alarmed about the

> shape until they find out the sutures are open.

>

> Please help

> Sorry I sound so mad...I am... but I'm sorry to dump on you...

> I had all these things I wanted to say, but whenever I said

anything

> (like his ears being crooked) he kinda laughed.. Like I was this

dumb

> woman.

>

>

> Sam with the crooked head's mom that should learn to live with a

long

> skull.