Hi Jill

[Guest guest]

Hi Jill, the closest cranial tech center for us is 3 1/2 hours drive. do you

take his twin a long? are they fraternal or identical? mine are identical

though you'd never really know it. it's really strange but when andy's hair

was short when he was younger and when it's wet, you can't really tell, but

now his hair's longer it makes his head look even worse. what's with that??

it seems his hair won't comb " right " and is part is on the opposite side of

his twin. maybe mirror image twins, but probably because of his flat spot.

so most of his hair sort of cowlicks over the bulgier side making look even

more eliptical than it is. we just never really noticed his flat spot

though the whole right side is pretty flat when you feel around. I think my

guy was also born with it. he was wedged down in my pelvis for a very long

time and caused me great pain. I knew it had to be doing something to him

because I hurt so badly. I'm just glad he's not braindamaged! diane

Jill wrote:

> Diane,

> Sorry to butt in, but I had to! I strongly disagree

> with the statement from one of the doctors you saw

> that said Andy is too old. My son Josh is 21 months

> old and got his DOC Band when he was 19 months old.

> He is one of twins and was born with tort and plagio.

> We have seen quite an improvement with his head shape

> already, not so much with the facial asymetery, but I

> think that too will improve. He will have to wear it

> longer but hey that's ok! Perhaps he was talking about

> a pasive helmet, one that Andy would have to grow

> into. I believe he would not be a good candidate for

> that kind. But a helmet or band that applies pressure

> would be a benefit. If you go to plagiocephaly.org

> there is an article there on treating the older child.

> There are 3 successful case studies. Maybe you can

> print it and take it with you to show the next one.

> Just a thought, there is hope, I have living proof

> of that! Hang in there......

>

> Good luck,

> Jill(Mom to Josh & Jarred Accord, NY)

>

> --- " Diane, Nick, & Andy " <nickandy@...>

> wrote:

> > Hi, yes of course! The doctors I've tried are Dr.

> >

> > (orthopaedist) whose own daughter had plagiocephaly

> > without torticollis,

> > and they didn't treat her. he says she's 3 now and

> > " fine " . It caused

> > great stress for his wife, however, as he puts it.

> > He is optimistic andy

> > will outgrow his assymetries. Dr. Ghodsi

> > (neurologist) thinks Andy's

> > assymetries, head and face, were all done in utero

> > and will never

> > change, except maybe his head over many many years

> > OR his hair will grow

> > to cover up the flat side. Dr.

> > (neurosurgeon) thinks it's

> > positional plagiocephaly and Andy should have been

> > repositioned since

> > birth and since he wasn't, then it's too late to

> > help him. And angrily

> > added that the DOC bands are franchised like

> > mcdonald's so he couldn't

> > hlep me if he wanted to, and that Andy is too old

> > for a helmet (he's 18

> > months) even if he did helmets. Seems he really only

> > sees and deals with

> > cs kids and could only offer us a ct scan to make

> > sure Andy doesn't

> > have that going on, though he said from his ear

> > positioning and facial

> > assymetry it doesn't appear to be cs, so we forwent

> > the ct scan. any

> > opinons on that? thanks always,, diane, nick and

> > andy.

> >

> > bgles2@... wrote:

> >

> > > Diane, I have a cousin in Austin who's

> > roommate is a Dr. Should I

> > > try him

> > > and see if he knows of anyone in area who may use

> > helemts/bands? Let

> > > me

> > > know? Belinda

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