Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 but now his hair's longer it makes his head look even worse. what's with that?? Hanna's hair makes what's left of her flat spot look worse too!!!! kendra "Diane, Nick, & Andy" wrote: Hi Jill, the closest cranial tech center for us is 3 1/2 hours drive. do you take his twin a long? are they fraternal or identical? mine are identical though you'd never really know it. it's really strange but when andy's hair was short when he was younger and when it's wet, you can't really tell, but now his hair's longer it makes his head look even worse. what's with that?? it seems his hair won't comb "right" and is part is on the opposite side of his twin. maybe mirror image twins, but probably because of his flat spot. so most of his hair sort of cowlicks over the bulgier side making look even more eliptical than it is. we just never really noticed his flat spot though the whole right side is pretty flat when you feel around. I think my guy was also born with it. he was wedged down in my pelvis for a very long time and caused me great pain. I knew it had to be doing something to him because I hurt so badly. I'm just glad he's not braindamaged! diane Jill wrote: > Diane, > Sorry to butt in, but I had to! I strongly disagree > with the statement from one of the doctors you saw > that said Andy is too old. My son Josh is 21 months > old and got his DOC Band when he was 19 months old. > He is one of twins and was born with tort and plagio. > We have seen quite an improvement with his head shape > already, not so much with the facial asymetery, but I > think that too will improve. He will have to wear it > longer but hey that's ok! Perhaps he was talking about > a pasive helmet, one that Andy would have to grow > into. I believe he would not be a good candidate for > that kind. But a helmet or band that applies pressure > would be a benefit. If you go to plagiocephaly.org > there is an article there on treating the older child. > There are 3 successful case studies. Maybe you can > print it and take it with you to show the next one. > Just a thought, there is hope, I have living proof > of that! Hang in there...... > > Good luck, > Jill(Mom to Josh & Jarred Accord, NY) > > --- "Diane, Nick, & Andy" <nickandy@...> > wrote: > > Hi, yes of course! The doctors I've tried are Dr. > > > > (orthopaedist) whose own daughter had plagiocephaly > > without torticollis, > > and they didn't treat her. he says she's 3 now and > > "fine". It caused > > great stress for his wife, however, as he puts it. > > He is optimistic andy > > will outgrow his assymetries. Dr. Ghodsi > > (neurologist) thinks Andy's > > assymetries, head and face, were all done in utero > > and will never > > change, except maybe his head over many many years > > OR his hair will grow > > to cover up the flat side. Dr. > > (neurosurgeon) thinks it's > > positional plagiocephaly and Andy should have been > > repositioned since > > birth and since he wasn't, then it's too late to > > help him. And angrily > > added that the DOC bands are franchised like > > mcdonald's so he couldn't > > hlep me if he wanted to, and that Andy is too old > > for a helmet (he's 18 > > months) even if he did helmets. Seems he really only > > sees and deals with > > cs kids and could only offer us a ct scan to make > > sure Andy doesn't > > have that going on, though he said from his ear > > positioning and facial > > assymetry it doesn't appear to be cs, so we forwent > > the ct scan. any > > opinons on that? thanks always,, diane, nick and > > andy. > > > > bgles2@... wrote: > > > > > Diane, I have a cousin in Austin who's > > roommate is a Dr. Should I > > > try him > > > and see if he knows of anyone in area who may use > > helemts/bands? Let > > > me > > > know? Belinda > > > eGroups Sponsor > > [Click Here!] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Diane: I wanted to jump in because I also have twins (identical) and only one needed the DOC band. He has tort that started by poor positioning inutero, preemie birth, NICU time, etc. We went with our ped's recommendation of " it will round out on its own " up to 7 months and then I saw an article by CT in TWINS magazine about the band. I went around our ped and found a specialist who would write the Rx for the band. We live in Cleveland and traveled to Chicago (6hr drive, 1 hr flight) for his treatment this summer. It took 4 1/2 months, many plane trips, but was SO worth the effort. We got about 95% correction and I am so glad we did it. It seems like so long ago! We chose to fly (cheap fares, easier day) and so I only took . and his two sisters stayed at home. Luckily we have wonderful family to help out. I totally understand your wanting your identicals to look alike. People are always looking for that one small detail to tell the boys apart - I didn't want 's head or ears to be the thing people pointed out. I hope you can find someone to support your desire to treat your son. The trips to CT may not be fun, but you can make the best out of them. I found the CT staff in Chicago to be wonderful. Best of luck, Sue Luck mom to , DOC band graduate ----- Original Message ----- From: Diane, Nick, & Andy <nickandy@...> <Plagiocephalyegroups> Sent: Sunday, December 31, 2000 7:25 PM Subject: Hi Jill > Hi Jill, the closest cranial tech center for us is 3 1/2 hours drive. do you > take his twin a long? are they fraternal or identical? mine are identical > though you'd never really know it. it's really strange but when andy's hair > was short when he was younger and when it's wet, you can't really tell, but > now his hair's longer it makes his head look even worse. what's with that?? > it seems his hair won't comb " right " and is part is on the opposite side of > his twin. maybe mirror image twins, but probably because of his flat spot. > so most of his hair sort of cowlicks over the bulgier side making look even > more eliptical than it is. we just never really noticed his flat spot > though the whole right side is pretty flat when you feel around. I think my > guy was also born with it. he was wedged down in my pelvis for a very long > time and caused me great pain. I knew it had to be doing something to him > because I hurt so badly. I'm just glad he's not braindamaged! diane > > Jill wrote: > > > Diane, > > Sorry to butt in, but I had to! I strongly disagree > > with the statement from one of the doctors you saw > > that said Andy is too old. My son Josh is 21 months > > old and got his DOC Band when he was 19 months old. > > He is one of twins and was born with tort and plagio. > > We have seen quite an improvement with his head shape > > already, not so much with the facial asymetery, but I > > think that too will improve. He will have to wear it > > longer but hey that's ok! Perhaps he was talking about > > a pasive helmet, one that Andy would have to grow > > into. I believe he would not be a good candidate for > > that kind. But a helmet or band that applies pressure > > would be a benefit. If you go to plagiocephaly.org > > there is an article there on treating the older child. > > There are 3 successful case studies. Maybe you can > > print it and take it with you to show the next one. > > Just a thought, there is hope, I have living proof > > of that! Hang in there...... > > > > Good luck, > > Jill(Mom to Josh & Jarred Accord, NY) > > > > --- " Diane, Nick, & Andy " <nickandy@...> > > wrote: > > > Hi, yes of course! The doctors I've tried are Dr. > > > > > > (orthopaedist) whose own daughter had plagiocephaly > > > without torticollis, > > > and they didn't treat her. he says she's 3 now and > > > " fine " . It caused > > > great stress for his wife, however, as he puts it. > > > He is optimistic andy > > > will outgrow his assymetries. Dr. Ghodsi > > > (neurologist) thinks Andy's > > > assymetries, head and face, were all done in utero > > > and will never > > > change, except maybe his head over many many years > > > OR his hair will grow > > > to cover up the flat side. Dr. > > > (neurosurgeon) thinks it's > > > positional plagiocephaly and Andy should have been > > > repositioned since > > > birth and since he wasn't, then it's too late to > > > help him. And angrily > > > added that the DOC bands are franchised like > > > mcdonald's so he couldn't > > > hlep me if he wanted to, and that Andy is too old > > > for a helmet (he's 18 > > > months) even if he did helmets. Seems he really only > > > sees and deals with > > > cs kids and could only offer us a ct scan to make > > > sure Andy doesn't > > > have that going on, though he said from his ear > > > positioning and facial > > > assymetry it doesn't appear to be cs, so we forwent > > > the ct scan. any > > > opinons on that? thanks always,, diane, nick and > > > andy. > > > > > > bgles2@... wrote: > > > > > > > Diane, I have a cousin in Austin who's > > > roommate is a Dr. Should I > > > > try him > > > > and see if he knows of anyone in area who may use > > > helemts/bands? Let > > > > me > > > > know? Belinda > > > > eGroups Sponsor > > > [Click Here!] > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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