Re: The Austin, Tx docs we've seen...

[Guest guest]

Diane,

Sorry to butt in, but I had to! I strongly disagree

with the statement from one of the doctors you saw

that said Andy is too old. My son Josh is 21 months

old and got his DOC Band when he was 19 months old.

He is one of twins and was born with tort and plagio.

We have seen quite an improvement with his head shape

already, not so much with the facial asymetery, but I

think that too will improve. He will have to wear it

longer but hey that's ok! Perhaps he was talking about

a pasive helmet, one that Andy would have to grow

into. I believe he would not be a good candidate for

that kind. But a helmet or band that applies pressure

would be a benefit. If you go to plagiocephaly.org

there is an article there on treating the older child.

There are 3 successful case studies. Maybe you can

print it and take it with you to show the next one.

Just a thought, there is hope, I have living proof

of that! Hang in there......

Good luck,

Jill(Mom to Josh & Jarred Accord, NY)

--- " Diane, Nick, & Andy " <nickandy@...>

wrote:

> Hi, yes of course! The doctors I've tried are Dr.

>

> (orthopaedist) whose own daughter had plagiocephaly

> without torticollis,

> and they didn't treat her. he says she's 3 now and

> " fine " . It caused

> great stress for his wife, however, as he puts it.

> He is optimistic andy

> will outgrow his assymetries. Dr. Ghodsi

> (neurologist) thinks Andy's

> assymetries, head and face, were all done in utero

> and will never

> change, except maybe his head over many many years

> OR his hair will grow

> to cover up the flat side. Dr.

> (neurosurgeon) thinks it's

> positional plagiocephaly and Andy should have been

> repositioned since

> birth and since he wasn't, then it's too late to

> help him. And angrily

> added that the DOC bands are franchised like

> mcdonald's so he couldn't

> hlep me if he wanted to, and that Andy is too old

> for a helmet (he's 18

> months) even if he did helmets. Seems he really only

> sees and deals with

> cs kids and could only offer us a ct scan to make

> sure Andy doesn't

> have that going on, though he said from his ear

> positioning and facial

> assymetry it doesn't appear to be cs, so we forwent

> the ct scan. any

> opinons on that? thanks always,, diane, nick and

> andy.

>

> bgles2@... wrote:

>

> > Diane, I have a cousin in Austin who's

> roommate is a Dr. Should I

> > try him

> > and see if he knows of anyone in area who may use

> helemts/bands? Let

> > me

> > know? Belinda

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[Guest guest]

Diane, I haven't forgotten about you. I emailed my cousin and I am waiting for a reply. His friend is a general MD. I asked if he would be willing to take a new patient. I don't know if you would want to do that or if your insurance will allow it. Belinda