Guest guest Posted December 31, 2000 Report Share Posted December 31, 2000 we would even have been willing to pay cash for anything and not rely on insurance if it didn't cover... but travelling weekly to dallas at this point for a band probably isn't within our ability. especially with what little changes would probably occur for andy at his age. so sad. diane "Diane, Nick, & Andy" wrote: Hi, yes of course! The doctors I've tried are Dr. (orthopaedist) whose own daughter had plagiocephaly without torticollis, and they didn't treat her. he says she's 3 now and "fine". It caused great stress for his wife, however, as he puts it. He is optimistic andy will outgrow his assymetries. Dr. Ghodsi (neurologist) thinks Andy's assymetries, head and face, were all done in utero and will never change, except maybe his head over many many years OR his hair will grow to cover up the flat side. Dr. (neurosurgeon) thinks it's positional plagiocephaly and Andy should have been repositioned since birth and since he wasn't, then it's too late to help him. And angrily added that the DOC bands are franchised like mcdonald's so he couldn't hlep me if he wanted to, and that Andy is too old for a helmet (he's 18 months) even if he did helmets. Seems he really only sees and deals with cs kids and could only offer us a ct scan to make sure Andy doesn't have that going on, though he said from his ear positioning and facial assymetry it doesn't appear to be cs, so we forwent the ct scan. any opinons on that? thanks always,, diane, nick and andy. bgles2@... wrote: Diane, I have a cousin in Austin who's roommate is a Dr. Should I try him and see if he knows of anyone in area who may use helemts/bands? Let me know? Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2000 Report Share Posted December 31, 2000 Diane, We felt the same way. We did not care about Insurance Coverage. The hard part was finding a Doctor to Believe we still had time. Sierra was finally banded at 16 months. Trust me when I say... It's not to late. We live in Michigan and travel to CT in Chicago, and believe me, it makes me madder than a hornet that they didn't diagnose her earlier, like an hour after birth. The great thing is, that we only go every three weeks due to slow growth and I have stated before there is an upside to having an older child treated. If you do not have Acrobat Reader to read the case studies on treatment with older children, please email me and I will send them. I am sure it saddens you every time you recall what they told you. I know it saddens me. Happy New Year, Sierra 07/99 11/97 Redford, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Diane, It's me again, Josh only has to go once every 2 weeks! I think that is due to his age. We went when he got the band, then we made an appt for 1 week, but after that it was once every 2 weeks! It's not that bad. It's about a 2 hour drive for us, so it's not around the corner. I feel I have to do everything I can for him. What happens if I didn't do anything and he went swimming with his friends? His hair would not hide it then, ya know? Please keep me posted! Jill ( Mom to Josh & Jarred Accord, NY) --- " Diane, Nick, & Andy " <nickandy@...> wrote: > we would even have been willing to pay cash for > anything and not rely on > insurance if it didn't cover... but travelling > weekly to dallas at this > point for a band probably isn't within our ability. > especially with what > little changes would probably occur for andy at his > age. so sad. diane > > " Diane, Nick, & Andy " wrote: > > > Hi, yes of course! The doctors I've tried are Dr. > > > (orthopaedist) whose own daughter had > plagiocephaly without > > torticollis, and they didn't treat her. he says > she's 3 now and > > " fine " . It caused great stress for his wife, > however, as he puts it. > > He is optimistic andy will outgrow his > assymetries. Dr. Ghodsi > > (neurologist) thinks Andy's assymetries, head and > face, were all done > > in utero and will never change, except maybe his > head over many many > > years OR his hair will grow to cover up the flat > side. Dr. > > (neurosurgeon) thinks it's positional > plagiocephaly and Andy should > > have been repositioned since birth and since he > wasn't, then it's too > > late to help him. And angrily added that the DOC > bands are franchised > > like mcdonald's so he couldn't hlep me if he > wanted to, and that Andy > > is too old for a helmet (he's 18 months) even if > he did helmets. Seems > > he really only sees and deals with cs kids and > could only offer us a > > ct scan to make sure Andy doesn't have that going > on, though he said > > from his ear positioning and facial assymetry it > doesn't appear to be > > cs, so we forwent the ct scan. any opinons on > that? thanks always,, > > diane, nick and andy. > > > > bgles2@... wrote: > > > >> Diane, I have a cousin in Austin who's > roommate is a Dr. Should > >> I try him > >> and see if he knows of anyone in area who may use > helemts/bands? > >> Let me > >> know? Belinda > >> eGroups Sponsor > [Click Here!] > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 & everyone, I'm just blowing off some steam here. My theory is that doctors are only taught how to get rid of the gallbladder. They don't study about what can come out of it, so they are ignorant. But for them to say a person can't pass stones is crazy. When I had my ERCP on Monday, the GI doc pushed the stone out so I could pass it. This is a crazy upside world, I think. Susie Quote Link to comment Share on other sites More sharing options...
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