question to Chris sen

[Guest guest]

Hi

I'm very impressed with DOC band pictures, but we live in Daly City

and will have to fly to LA or PH to get one. Can you tell a little

bit about the helmet you got through Stanford? Or can you give their

phone number please? This would be a big help.

-Thanks a lot,

Alena

[Guest guest]

Alena, I don't have the number for Stanford with me. The Orthotist

we use is Halloway, and the number for his center is 650

237-9217. I am sure they can give you the number for Stanford

Craniofacial clinic. Or look up Lucile Packard Childrens Hospital Web

page. I have it at home, so can bring it to work tomorrow.

The helmet we have is fairly similar to the Doc Band/Star Band in how

it works. We were casted and then the helmet was made from the

casting. It took about 3 weeks to get the helmet once it was cast.

I understand that is partly because of the number of children they

are seeing ( 1 - 2 per day). I am told it is an FDA approved

helmet, but don't have a specific name. The top opening is smaller

than the Doc Band, and it splits down both sides. There is a screw at

the top on each side that holds the front and back together, yet

allows it to pivot open to put babies head in and out. There are

velcro closures on each side to hold it tight. There isn't a chin

strap or anything else. It really looks a little more like a

football helmet, but similar to the other bands. Our helmet weighs 7

oz. Because it is hinged on both sides, it has fit longer than it

appears some people can wear the doc band, we've had it nearly 3

months, and will finish in another month. The orthotist has

tightened, loosened, and changed the fit over time.

One thing I like about it is there are air holes all over it, which

allows Tyler's head to breathe better. You are welcome to come meet

my son if you want to see the helmet first hand. If you send me your

direct e-mail, I will try to send you some pictures.

We have seen tremendous correction in the 3 months. In fact, his head

looks pretty darn round. When I bathe him, I can still see flatness.

We had very little facial assymmetry, but the ears were off a bit. I

can't really tell if that has corrected or not.

> Hi

> I'm very impressed with DOC band pictures, but we live in Daly City

> and will have to fly to LA or PH to get one. Can you tell a little

> bit about the helmet you got through Stanford? Or can you give their

> phone number please? This would be a big help.

> -Thanks a lot,

> Alena

[Guest guest]

Hi

thank you very much for the information.

my e-mail alena_trifonenko@...

please send me the picturtes.

Alena

> > Hi

> > I'm very impressed with DOC band pictures, but we live in Daly

City

> > and will have to fly to LA or PH to get one. Can you tell a

little

> > bit about the helmet you got through Stanford? Or can you give

their

> > phone number please? This would be a big help.

> > -Thanks a lot,

> > Alena

[Guest guest]

Alena, every note I get has your e-mail truncated. I have pictures

posted on Shutterfly, but need to send you a note from there to give

you access. Send me a note directly at cjj408.hotmail.com, so I get

your whole e-mail. Even when you typed it in here, somehow egroups

truncated it.

> > > Hi

> > > I'm very impressed with DOC band pictures, but we live in Daly

> City

> > > and will have to fly to LA or PH to get one. Can you tell a

> little

> > > bit about the helmet you got through Stanford? Or can you give

> their

> > > phone number please? This would be a big help.

> > > -Thanks a lot,

> > > Alena