Re: I may have found someone from St. Louis/ need opinions

[Guest guest]

:

I was just looking at Sam's pix, but it's hard to tell anything for

certain with the angles you have posted. Is it possible for you to

post a photo from right over the top? This is the best angle to see

from. If you could get him in the tub with his hair soaked right

to his head, that would be even better (so his hair isn't obstructing the

view!)

I know it's a pain unless you have a digital camera, sorry!

Kendra

K wrote:

I am so excited. I was checking in on some

of the up-coming

surgeries on the cranio sight and found someone who had surgery

at

St. Louis Children's Hosp. I sent her alot of questions and

I hope

she responds before the 3rd. I know it is really childish

of me, but

I want to find out what this guy is like before I go to him for

the

first time.

Also, if anyone has a chance would you mind looking at Sams pics

in

the file section and tell me if they think he would be a good

candidate for a helmet or band. I'm not totally crazy about

this am

I. I guess I am just getting scared about everything.

I think of

all the things the dr. might say, and then what I will say back.

I

think if We didn't start this A month ago, I wouldn't be so NUTS

:0)

(not sooo nuts anyway :0) )

Christmas Eve, when my family all came over (I have 6 brothers and

sisters plus all their kids...yes it is loud and crazy...but fun)

no

one would even comment on Sam's head. Aferwards they all

said, I

couldn't see anything, he just has a big head. I don't know

what

they expected. Now I don't know.....maybe I am nuts)

Any input would be appreciated.

Thanks again,

Sam's MOM

[Guest guest]

I can tell you that I understand exactly how you feel. Everyone tells me

that there is nothing wrong with 's head. All of my inlaws and family

say he looks just fine and that I am looking too close. My mom and dad are

very supportive and notice everything, but it even took my husband time to

really see the problems.

I can be very frustrating and upsetting to second guess yourself, stick to

your guns and go with your instinct. Remember that after he gets the

band/helmet it is you that has to make sure he wears it. It is easy to

think, oh everyone thinks I am nuts, so I'll just let him wear it a little

while, but it only works if worn 23 hours a day. You just got to be strong

and committed. Think of Sam at 8, 12, 15 etc as he meets other boys and

girls and they make fun of him or stare because of the shape of his head.

That will make you want to be strong.

You can do it and Sam will always be greatful for your committment.

& 6/26/00, banded 12/22/00