RE: and [was new mom out there needs help]

[Guest guest]

:

Thanks. She posted on the Cranial Technologies site a few days ago, and Thursday night I responded with some questions to her, and an invitation for her to come to this site...

So ... if is reading this, please look at the questions I asked... I was wondering who RDA was and if the people who told you that you wouldn't see more than 30% correction were affiliated with Cranial Technologies...

I'm not pushing one specific product, by the way, at the time of my son's treatment, the only product out there for this type of head shape was the DOC band.... I've not heard of any helmets being able to work with this head shape, but that doesn't mean that they aren't out there. I know that 's orthotist is using a molding device that they usually use after craniosynostosis surgery, and there may be other hospitals/orthotists that can produce a similar type of device, just have never done so when the sutures weren't fused/no surgery was needed. Our neurosurgeon was of no help when asking about non-invasive methods such as helmet therapy -- and the information I received on other devices at the time did not work for scaphocephalic head shape... I do know that for any device to work it needs to give dynamic pressure, as the DOC band does in order to move the "shelf" at all.

But please contact me, tnt@... if you have questions or need to talk.

Take care.

H

Mom to Quinn (11/19/99) Graduate of DOC band for scaphocephalic head shape (10/00)

(aa Kali)

-----Original Message-----From: K [mailto:fyveboyz@...]Sent: Sunday, January 14, 2001 9:35 PMPlagiocephalyegroupsSubject: ...new mom out there needs help, (and all)I had an e-mail from a Mom who has a baby 9 1/2 months old with a head shape she thinks is like Sam and Quinns. She went to the dr. and Orthotist at CT and they say she will only get about 30% correction. Did you hear anything like this. I know Quinn was much younger, but I was wondering. We were told we may not get great results, but they did point to specific places and told us where we should see some correction (ie. the slope in the back/top and filling out of the back/sides...fix the duck look )I have not seen any posts by her, I looked in some of the arcives, but I know she is looking at the sight and want to help her anyway I can. He husband wants to turn down treatment, and I think she is very unsure and stressed (I know we've all been there)If anyone has any encouragement for her, I sure she would appreciate it. I know it's hard when you have this specific head shape because it seems no one knows what to do with you....Her name is (I won't put her last name in case she doesn't want to share that). She mentioned about columbia MO having a different band that was not FDA approved yet. Does anyone know anything about that that you could help her with? Thanks again everyone. I know you are a great help to people. and Sam