Re: Starting enzymes...day 2

[Guest guest]

In a message dated 6/19/2006 6:31:08 PM Eastern Standard Time,

noahsmom7898@... writes:

It sounds like you are seeing some amazing changes. If you were

doing typical GFCF it's very possible you are dealing with some

yeast, and that plus whatever other intolerances or dysbiosis you're

cleaning up will take some time to resolve probably.

I'd give it some time, but keep track if things are getting worse,

and try the charcoal.

Amy

Thanks Amy. I think that for us GFCF just made yeast worse, as it is a very

starch/sugar heavy diet. Since it is the summer I can monitor more of the

what/when he is eating and hope to get a handle on this.

We are not using No-Fenol. Is it something worth trying? Right now he is

getting one capsule of a broad spectrum enzyme with every meal or snack.

For yeast we are using a softgel of Oil of Oregano per day. Can't use GSE

anymore since it is contraindicated for SSRI use (hoping to be able to be off

even our low dose of that by the end of the summer). The thing that has really

struck me is the frequency of the BMs. While we always had loose stool, it

hasn't been more than once per day since he was in diapers...we did go through

the burning poops phase for almost a year where every BM literally burned his

bottom. That I think was yeast.

[Guest guest]

Hi ,

Just a note that scripting, which if I am not mistaken is the same as delayed

echolalia, may not be a " negative " if you look at it carefully. Here is an

article that has some interesting thoughts.

http://www.bbbautism.com/pdf/article_59_echolalia_and_autism.pdf

The article includes descriptions of various categories of delayed echolalia

(see page 2), many of which, although non-interactive, are still performing a

function. (I'm not sure how you were differentiating functional from

nonfunctional scripting.) The end of the first paragraph on page 3 and the first

sentence of the second are particularly relevant as far as echolalia/scripting

being part of many children's linguistic development and, hopefully, part of the

process of achieving increasing levels of spontaneous speech. From the verbal

behaviors you've listed, it sounds like your child is already on his/her way in

this area, so hopefully s/he will continue to progress in this area as well as

others. I don't know if any of the therapy methods described at the end of the

article would be useful for you or the professionals working with your child to

help him/her along the way.

Trish64@... wrote:

Looking for some advice from the old pros....

We are day 2 into using enzymes (having previously done nearly a year of

GFCF diet with no positive results) and this is what we are seeing:

increased scripting, some of it functional, most of it not

silliness

weepiness

much more frequent BMs, from my once a day pooper

OTOH, we are also seeing:

more functional language

increased appropriate commenting (in response to a toddler crying several

tables away... " uh oh, someone is sad "

increased verbal negotiation ( " I don't have to go to church today because I

went to mass on Friday, right? " which was not the case, btw, but an excellent

try to get out of church)

Are we on the right track? Will these negatives go away over time? Is this

just me seeing what I want to see?

__________________________________________________

[Guest guest]

Yep this is just the kind of thing I saw with my kids, and it was

right away too. Congratulations!!

> increased scripting, some of it functional, most of it not

> silliness

> weepiness

Actually this sounds more like yeast. But some people have similar

symtoms with yeast die off as yeast itself, so if you're using No

Fenol especially, I'd assume yeast die off. If that's what you

think it is, try using activated charcoal, but give it 2 hours away

from all other supps/meds - it absorbs the toxins from die off, but

also, everything else.

> much more frequent BMs, from my once a day pooper

This sounds like die off potentially, or some sort of initial good

change, but it could also be an intolerance. Are you using the

chewables?

>

> OTOH, we are also seeing:

>

> more functional language

> increased appropriate commenting (in response to a toddler crying

several

> tables away... " uh oh, someone is sad "

> increased verbal negotiation ( " I don't have to go to church today

because I

> went to mass on Friday, right? " which was not the case, btw, but

an excellent

> try to get out of church)

WOW

> Are we on the right track? Will these negatives go away over

time? Is this

> just me seeing what I want to see?

It sounds like you are seeing some amazing changes. If you were

doing typical GFCF it's very possible you are dealing with some

yeast, and that plus whatever other intolerances or dysbiosis you're

cleaning up will take some time to resolve probably.

I'd give it some time, but keep track if things are getting worse,

and try the charcoal.

Amy

[Guest guest]

> We are day 2 into using enzymes (having previously done nearly a

year of

> GFCF diet with no positive results) and this is what we are seeing:

Many times there is an adjustment period of about 3 weeks. So you

might want to wait 3 weeks before making a determination.

> increased scripting, some of it functional, most of it not

For my kids, this was caused 25% by B12 deficiency and 75% by folic

acid deficiency.

> silliness

> weepiness

> much more frequent BMs, from my once a day pooper

This can be several things, altho intolerances and yeast overgrowth

are the most common ones. Do the enzymes you use contain

papain/bromelain? If so, try switching to ones that don't.

> more functional language

> increased appropriate commenting (in response to a toddler crying

several

> tables away... " uh oh, someone is sad "

> increased verbal negotiation ( " I don't have to go to church today

because I

> went to mass on Friday, right? " which was not the case, btw, but an

excellent

> try to get out of church)

>

> Are we on the right track?

Yep, sounds great!

Dana

[Guest guest]

In a message dated 6/25/2006 11:36:10 A.M. Eastern Standard Time,

mbzoltan@... writes:

We're 5 weeks into enzymes and they have been AMAZING. We saw

increased scripting and huge ticcing/OCD (ds has Tourette's as well as

Aspergers)in the first 2 weeks, but some great emotional reciprocity

and social deepening.

After 2-3 weeks the negative effects wore off. We also switched to

AFP from Peptizyde and it got even better this past week. So good

luck to you.

I am glad to hear that..the scripting is driving us crazy...but on the

flipside I am seeing more awareness and increased social language. I really

hope

that this scripting dies down in a couple of weeks like it did for you. It

is driving me nuts!

[Guest guest]

We're 5 weeks into enzymes and they have been AMAZING. We saw

increased scripting and huge ticcing/OCD (ds has Tourette's as well as

Aspergers)in the first 2 weeks, but some great emotional reciprocity

and social deepening.

After 2-3 weeks the negative effects wore off. We also switched to

AFP from Peptizyde and it got even better this past week. So good

luck to you.

[Guest guest]

In a message dated 6/26/2006 10:45:03 A.M. Eastern Standard Time,

danasview@... writes:

> I am glad to hear that..the scripting is driving us crazy...

For my son, scripting was eliminated about 25% with mB12 and 75% with

folic acid.

Dana

Thanks Dana.

I have my son on MB12 shots and folinic acid. It has not affected the

scripting that I can tell...the scripting had stayed at the same level for a

long

time...it seemed to increase right around the time we started enzymes.

[Guest guest]

> I am glad to hear that..the scripting is driving us crazy...

For my son, scripting was eliminated about 25% with mB12 and 75% with

folic acid.

Dana

[Guest guest]

How much folic acid?

Tami

Re: Starting enzymes...day 2

> I am glad to hear that..the scripting is driving us crazy...

For my son, scripting was eliminated about 25% with mB12 and 75% with

folic acid.

Dana

[Guest guest]

In a message dated 6/26/2006 11:12:15 A.M. Eastern Standard Time,

tjdoran5@... writes:

How much folic acid?

Tami

he gets 800 mcg. Is that not enough?

[Guest guest]

For us, the negatives did go away, for the most part. We have some underlying

bacterial, viral and yeast issues, so things are not completely healed up, but

they are way way better. Different worlds better. No, the improvements are not

in your mind, they are real. Enjoy. Congratulations.

Starting enzymes...day 2

Looking for some advice from the old pros....

We are day 2 into using enzymes (having previously done nearly a year of

GFCF diet with no positive results) and this is what we are seeing:

increased scripting, some of it functional, most of it not

silliness

weepiness

much more frequent BMs, from my once a day pooper

OTOH, we are also seeing:

more functional language

increased appropriate commenting (in response to a toddler crying several

tables away... " uh oh, someone is sad "

increased verbal negotiation ( " I don't have to go to church today because I

went to mass on Friday, right? " which was not the case, btw, but an excellent

try to get out of church)

Are we on the right track? Will these negatives go away over time? Is this

just me seeing what I want to see?

[Guest guest]

In a message dated 6/30/2006 9:42:43 A.M. Eastern Standard Time,

danasview@... writes:

He might not tolerate the specific enzymes you are using. Which ones

are you using?

How much folic acid do you use? Try increasing it double, see if that

helps.

Dana

He is getting 800 mcg of folinic, twice a day. We are using DPPIV from

Kirkman's. I am seeing language increasing and scripts remaining at this high

level. We are one week into enzymes today.

Thanks for all your help,

[Guest guest]

In a message dated 30/06/2006 18:10:04 GMT Daylight Time, Trish64@...

writes:

He is getting 800 mcg of folinic, twice a day. We are using DPPIV from

Kirkman's. I am seeing language increasing and scripts remaining at this

high

level. We are one week into enzymes today.

>>>I would try adding a broad range of proteases which will help the DPPIV

work

Mandi in UK

[Guest guest]

> I have my son on MB12 shots and folinic acid. It has not affected the

> scripting that I can tell...the scripting had stayed at the same

level for a long

> time...it seemed to increase right around the time we started enzymes.

He might not tolerate the specific enzymes you are using. Which ones

are you using?

How much folic acid do you use? Try increasing it double, see if that

helps.

Dana

[Guest guest]

>

> How much folic acid?

My son at first required about 8mg folic acid [10 capsules at 800mcg

each] per day. Now he is down to 4 capsules.

Dana

[Guest guest]

In a message dated 6/30/2006 1:31:28 P.M. Eastern Standard Time,

Mum231ASD@... writes:

>>>I would try adding a broad range of proteases which will help the DPPIV

work

Mandi in UK

What exactly should I be doing? This is supposed to be a broad spectrum

enzyme. Any suggestions would be appreciated.

Thanks!

[Guest guest]

In a message dated 7/1/2006 10:04:10 A.M. Eastern Standard Time,

danasview@... writes:

Try doubling the amount of folic acid. You might also want to add

mB12. EFAs might also help, I *think* I am noticing that flax oil

also helps with scripting, altho the folic acid is the most important

to eliminate scripting for my son.

Dana

Thanks Dana. I will try upping the folinic acid today and see if that

helps.

I have him on cod liver oil instead of ProEFAs. Is that bad?

[Guest guest]

> He is getting 800 mcg of folinic, twice a day. We are using DPPIV

from

> Kirkman's. I am seeing language increasing and scripts remaining at

this high

> level. We are one week into enzymes today.

Try doubling the amount of folic acid. You might also want to add

mB12. EFAs might also help, I *think* I am noticing that flax oil

also helps with scripting, altho the folic acid is the most important

to eliminate scripting for my son.

Dana

[Guest guest]

> I have him on cod liver oil instead of ProEFAs. Is that bad?

CLO is very beneficial for many children.

I think [not entirely sure] ProEFA also has other Omega, not just

Omega 3, so you can add that if you want.

Dana