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Taurine questions continued...

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I've been coming across this taurine issue in many groups and the dosages I

hear about are all quite low compared to the amount our DAN! recommended -

and frankly, the discrepancy worries me.

Our 3.8 son (39.5 pounds) takes 2000 mgs of taurine daily. 1000 mgs in the

morning and 1000 mgs at night.

Anyone dosed this high with their child? Any comments/concerns about this?

Thanks,

Lynn, mommy to Cameron (ASD) and Mia (18 months)

Message: 25

Date: Sat, 11 Mar 2006 17:54:56 -0000

From: " danasview " <danasview@...>

Subject: Re: OT- Taurine...how much?

>

> Just trying to find out how much to give my 35 lb. son. Also, any

> suggestions on CoQ-10 dosages? Thanks!!

Taurine -- I started with 250mg and increased to 500mg per day.

CoQ10 -- I started with 15mg and increased to 30mg for 3 kids and 60mg

for the fourth.

Dana

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My 8 year uses 500 mg at night. 54lbs and no problems with it. Done this for 2

years.Dianne

Lynn Rodgers <ldelathouwer@...> wrote: I've been coming across this

taurine issue in many groups and the dosages I

hear about are all quite low compared to the amount our DAN! recommended -

and frankly, the discrepancy worries me.

Our 3.8 son (39.5 pounds) takes 2000 mgs of taurine daily. 1000 mgs in the

morning and 1000 mgs at night.

Anyone dosed this high with their child? Any comments/concerns about this?

Thanks,

Lynn, mommy to Cameron (ASD) and Mia (18 months)

Message: 25

Date: Sat, 11 Mar 2006 17:54:56 -0000

From: " danasview " <danasview@...>

Subject: Re: OT- Taurine...how much?

>

> Just trying to find out how much to give my 35 lb. son. Also, any

> suggestions on CoQ-10 dosages? Thanks!!

Taurine -- I started with 250mg and increased to 500mg per day.

CoQ10 -- I started with 15mg and increased to 30mg for 3 kids and 60mg

for the fourth.

Dana

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Lynn,

We are using Dr. Neubrander's supplement review form (online) and for my son

who is 60 lbs, his recommendation for him is between 633mg to 949 mg per

day. We are giving him 750 mgs per day of Taurine. You can download his

supplement review form to complete it and see if it helps you. Again, this

is based on Dr. N's recommendations and most of this is based on the use of

MB12 I believe.

Jackie---

> I've been coming across this taurine issue in many groups and the dosages

> I

> hear about are all quite low compared to the amount our DAN!

> ecommended -

> and frankly, the discrepancy worries me.

> Our 3.8 son (39.5 pounds) takes 2000 mgs of taurine daily. 1000 mgs in the

> morning and 1000 mgs at night.

> Anyone dosed this high with their child? Any comments/concerns about this?

>

> Thanks,

> Lynn, mommy to Cameron (ASD) and Mia (18 months)

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>

> I've been coming across this taurine issue in many groups and the

dosages I

> hear about are all quite low compared to the amount our DAN!

recommended -

> and frankly, the discrepancy worries me.

> Our 3.8 son (39.5 pounds) takes 2000 mgs of taurine daily. 1000 mgs

in the

> morning and 1000 mgs at night.

I have read messages of higher than 500mg per day on a-m forum, you

might want to ask your question there

autism treatment/

Dana

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Did your son do an amino acids panel where taurine showed very low?

Does your son have seizures?

2000 mg of taurine per day seems a lot, unless there were some

conditions to justify it. Maybe that's a typo and he meant 200 mg?

I read that even very high dose of taurine are safe though. You can

check in Dr. Mc Candless's book.

My son cannot even tolerate 200 mg of taurine daily. It increases the

frequence of his seizures... Each child is different.

> >

> > Just trying to find out how much to give my 35 lb. son. Also, any

> > suggestions on CoQ-10 dosages? Thanks!!

>

>

> Taurine -- I started with 250mg and increased to 500mg per day.

>

> CoQ10 -- I started with 15mg and increased to 30mg for 3 kids and

60mg

> for the fourth.

>

> Dana

>

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,

We've had the same experience with the taurine and increased

seizures even though urine aa always shows high taurine[wasting?]

and low blood levels. Any idea why?

> > >

> > > Just trying to find out how much to give my 35 lb. son. Also,

any

> > > suggestions on CoQ-10 dosages? Thanks!!

> >

> >

> > Taurine -- I started with 250mg and increased to 500mg per day.

> >

> > CoQ10 -- I started with 15mg and increased to 30mg for 3 kids

and

> 60mg

> > for the fourth.

> >

> > Dana

> >

>

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That does seem very high Lynn unless there was some very specific

call for that much. Not to get too personal here, but if your

child's bms are a chestnutty brown then it is likely his taurine

levels are high enough and megadoses wouldn't be required. Were

there problems with this before you started supplementing? In the

DAN! book Pangborn states that generally 250mg/day is sufficient. I

dose more than that for my 34 pound son, but not too much more.

Anita

> >

> > Just trying to find out how much to give my 35 lb. son. Also,

any

> > suggestions on CoQ-10 dosages? Thanks!!

>

>

> Taurine -- I started with 250mg and increased to 500mg per day.

>

> CoQ10 -- I started with 15mg and increased to 30mg for 3 kids and

60mg

> for the fourth.

>

> Dana

>

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Thanks Anita and others for your response -

Cameron started SCD and taurine the same day - just over 2 months ago

and soon after his bm's went from the yellow and orange puddings to

semi-formed dark green. Just last week they went chestnut brown. So I

wonder... I guess he needed that amount of taurine?

Still seems so high based on everyone else's amounts - however, DAN!

had run a series of tests before recommending the dose...

Lynn

> > >

> > > Just trying to find out how much to give my 35 lb. son. Also,

> any

> > > suggestions on CoQ-10 dosages? Thanks!!

> >

> >

> > Taurine -- I started with 250mg and increased to 500mg per day.

> >

> > CoQ10 -- I started with 15mg and increased to 30mg for 3 kids and

> 60mg

> > for the fourth.

> >

> > Dana

> >

>

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>

> ,

> We've had the same experience with the taurine and increased

> seizures even though urine aa always shows high taurine[wasting?]

> and low blood levels. Any idea why?

Not really. My son's has normal blood level. Most of the other amino

acids are low, so taurine is high compared to the others.

My Bioset practionner mentionned a pathway cysteine thats forks into

glutathione and taurine (it is on Amy Yasko website) and my son has

very low cysteine and glutathione per plasma test. She said he is

stuck into the cysteine -> taurine branch and we need to open the

cysteine -> glutathione branch.

Just to let you know, in case it could help, anti-oxidants (Vit C, E,

ALA) has reduced my son's absence seizures significantely. We went

from 100 absence per day to maybe 10. Antivirals have helped too but

he could not handle the side effects so I had to stop. Even anti-

oxidants have side effects, his behaviors are terrible these days...

might come from ALA and the chelation since he was/is? mercury toxic,

might come from his brain healing, I do not know...

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