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Hi Theresa- That has been Bridget's self-stim fave since age 2. She seems to

be growing out of it. We have a rule, only in her room under her blankets.

Did you know that about 20% of NT kids do this as well? I don't have a sure

answers for you, but I can empathize! Deanna

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Hi Theresa- Bridget just turned 6. I wouldn't say she truly understood about

privacy until just recently. I believe that it is a stress release for them

and that they are not doing it to reach any kind of climax- it just feels

good and helps get out the tension. Now she is twirling her hair and that

seems to have pretty much taken the place of the other. Usually with Bridget

she would lay down on the floor at the store or doctor's office or bank and

put her hands between her legs. Sorry I'm being so graphic, but I want you

to know that I truly do understand. It can be embarrassing and then you

wonder what pervert is watching or what social worker will decide that your

child has been sexually abused, why else would they display such

inappropriate behavior!? It make take action- as in, if she starts up at

home, physically stear her into her room and shut the door. Does she use

pecs? You could do a strip for her and so could the OT. With Bridget I

found that the more I road her about it the more she seemed to do it. Your

daughter may be getting twice the enjoyment from watching her teachers and

therapists get upset over it. Anyway, this to shall pass, I'm keeping my

fingers crossed for you! Deanna

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Hi Theresa- Bridget just turned 6. I wouldn't say she truly understood about

privacy until just recently. I believe that it is a stress release for them

and that they are not doing it to reach any kind of climax- it just feels

good and helps get out the tension. Now she is twirling her hair and that

seems to have pretty much taken the place of the other. Usually with Bridget

she would lay down on the floor at the store or doctor's office or bank and

put her hands between her legs. Sorry I'm being so graphic, but I want you

to know that I truly do understand. It can be embarrassing and then you

wonder what pervert is watching or what social worker will decide that your

child has been sexually abused, why else would they display such

inappropriate behavior!? It make take action- as in, if she starts up at

home, physically stear her into her room and shut the door. Does she use

pecs? You could do a strip for her and so could the OT. With Bridget I

found that the more I road her about it the more she seemed to do it. Your

daughter may be getting twice the enjoyment from watching her teachers and

therapists get upset over it. Anyway, this to shall pass, I'm keeping my

fingers crossed for you! Deanna

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Thanks for the empathy Deanna, I can sure use it. How old is your

daughter now and how long did it take before she understood about

privacy? I really wouldn't mind if I could explain to her that her

body needs to be privet and so forth but she just doesn't understand

much right now and we will be in the grocery store and she will just

start up UGH

Theresa

> Hi Theresa- That has been Bridget's self-stim fave since age 2.

She seems to

> be growing out of it. We have a rule, only in her room under her

blankets.

> Did you know that about 20% of NT kids do this as well? I don't

have a sure

> answers for you, but I can empathize! Deanna

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Don't worry it does get better. My daughter did that before she

was a year. There are times I can look back and a least smile

about it now. When she was about 3 at a Christmas Progam at

church and she was on the first pew! Her Grandmother noticed I

ran up and had her change to sit up, she only did it when she

was laying down. I would put her to bed and explained she had

to do that in private. When she started an all day program at

school I forgot to tell the teacher. I asked to talk to her and she

told me she already knew. The school said she had signs of

being sexual abused. With 3 sons and a father I took her to the

dr. to have it put in her records about it just in case it became a

problem with the school. My daughter is adopted so it was

believed she was( we got her when she was 11 months old) .

I'm am glad to know this is a type of stemming. She is 13 and

doesn't do it that much anymore that I know, if she does she is

private about it. I do understand but try not to let the OT make a

big thing about.

Nikki's MOM

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Don't worry it does get better. My daughter did that before she

was a year. There are times I can look back and a least smile

about it now. When she was about 3 at a Christmas Progam at

church and she was on the first pew! Her Grandmother noticed I

ran up and had her change to sit up, she only did it when she

was laying down. I would put her to bed and explained she had

to do that in private. When she started an all day program at

school I forgot to tell the teacher. I asked to talk to her and she

told me she already knew. The school said she had signs of

being sexual abused. With 3 sons and a father I took her to the

dr. to have it put in her records about it just in case it became a

problem with the school. My daughter is adopted so it was

believed she was( we got her when she was 11 months old) .

I'm am glad to know this is a type of stemming. She is 13 and

doesn't do it that much anymore that I know, if she does she is

private about it. I do understand but try not to let the OT make a

big thing about.

Nikki's MOM

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Hi Theresa,

I, too have a 6 year old daughter (7 in April) that did this. And as Deanna has

said most (if not all) 2 year olds (NT too) go through this stage.Fully

appreciate/understand what you are going through, my child seemed to be at it

good half of the day. But as she has grown older seems to be growing out of it.

Was still at it when she started school, very rarely does it now. But we too

told her it is a private thing and that she is only allowed to do it in the

privacy of her own bedroom., and probably does unknown to us. We found that the

more we went on about it, the more she did it - the same goes for NT children. I

haven't any useful tips in how you stop this, it just seems to be a thing they

all go through. Must admit I have found that friends little boys seem to do it

more than little girls, but they all do grow out of this phase. Perhaps you give

her something else to play with whilst out of the house. My child likes to carry

around a Pokemon toy (into Pokemon in a big way) and this will keep her occupied

enough to distract her from the other. She seemed to understand about the

privacy thing around the early days of hitting 6 years of age.

We all found this very embarrassing, to the point that we didn't like to take

her out of the house. But there are obviously times when this is not possible -

have tried taking a favourite thing out with her.

Best of luck. I,m sure in time this will pass.

Carol

hope someone can help

I don't mean to bring up a topic that may offend someone but I'm

having a HUGE problem with my daughter and I don't have a clue what

to do about it and I was hoping someone here could help me.

She is a 4 year old nonverbal autistic child. She is developmentally

about 18 to 20 moths old depending on the skill were talking about.

Anyway my problem is she has been masturbating, not just once in a

while but all the time. I called CARD (the center for autism and

related disabilities) and spoke with a few people there and they were

all very sweet and told me not to worry that it was a sensory related

problem and to have the OT she sees contact them and they could give

her some suggestions for way to modify Sonja's behavior.

We, unfortunately for Sonja, can't afford a private OT so we have to

rely on the school system and the OT is pretty much useless in my

opinion. Not only has the teacher asked her for help but I even

brought it up in her IEP but all I get from the OT is " re direct her

and tell her she shouldn't play with her body, and blah blah blah " I

am starting to wonder if this lady has actually even met my child,

HELLO talk to her? redirect her? Sonja is not a high functioning

child she doesn't understand the meaning of the word no at all right

now. I do try to redirect her as best as possible but it doesn't

always seem to work.

I'm sorry this is so long but please if anyone has had a similar

problem that they were able to " fix " let me know how and what you

did. I'm just about at my wit's end.

Thank you,

Theresa

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I'll jump in with the emphatizers,

is 4 and not only touches herself a lot, but hates clothes. She would

spend most of the day running around naked with one hand in front and one in

back if we let her. Mostly she just kind of grabs her crotch and holds it -

there is no stimulation involved. This seems to be directely related to potty

training - she is at 50%: she almost always uses the toilet to pee, but pooping

is still a disaster - usually on the floor latey.

At school and we are out (church store, etc) we work on keeping her clothes on

and do a pretty good job. At home we pretty much let her run naked. At

this point we are more concerned with her sticking something up there than just

holding herself.

Good Luck

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sonya, I can definitely relate. My daughter is in the category as your. She will

be 4yrs in May & seems to have the same functioning capability as your daughter.

We had to put in her overalls & sleeper bags at night. She always seemed to have

her hands down there. We have started a brushing program that seems to help. We

also make her wear xlrg onesies. Please email me directly if you would like to

discuss this any further at rlegg@....

hope someone can help

I don't mean to bring up a topic that may offend someone but I'm

having a HUGE problem with my daughter and I don't have a clue what

to do about it and I was hoping someone here could help me.

She is a 4 year old nonverbal autistic child. She is developmentally

about 18 to 20 moths old depending on the skill were talking about.

Anyway my problem is she has been masturbating, not just once in a

while but all the time. I called CARD (the center for autism and

related disabilities) and spoke with a few people there and they were

all very sweet and told me not to worry that it was a sensory related

problem and to have the OT she sees contact them and they could give

her some suggestions for way to modify Sonja's behavior.

We, unfortunately for Sonja, can't afford a private OT so we have to

rely on the school system and the OT is pretty much useless in my

opinion. Not only has the teacher asked her for help but I even

brought it up in her IEP but all I get from the OT is " re direct her

and tell her she shouldn't play with her body, and blah blah blah " I

am starting to wonder if this lady has actually even met my child,

HELLO talk to her? redirect her? Sonja is not a high functioning

child she doesn't understand the meaning of the word no at all right

now. I do try to redirect her as best as possible but it doesn't

always seem to work.

I'm sorry this is so long but please if anyone has had a similar

problem that they were able to " fix " let me know how and what you

did. I'm just about at my wit's end.

Thank you,

Theresa

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Hi Theresa,

Our girl is now 12,and I can identify with what you're going through,

when it started our speech therapist turned us onto using visuals

with VERY simple 'social stories' to help her better understand what

we wanted her to learn regarding when, where it's appropriate to

touch oneself. One of the first visuals we made was the red circle

with the line through it (the universal NO) & included pictures of

what were her options. It's kinda weird to use perhaps, but it's

worked well for us as new things arise. Our daughter is non-verbal

also with splintered skills. If you'd like some more information

regarding using/making your own visuals to address teaching her I'd

be happy to share additional information with you to help you get

started. You can email me at: pegasus5390@... Tucker

-- In Autism_in_Girls@y..., " sonjas_mom " <sonjas_mom@y...> wrote:

> I don't mean to bring up a topic that may offend someone but I'm

> having a HUGE problem with my daughter and I don't have a clue what

> to do about it and I was hoping someone here could help me.

>

> She is a 4 year old nonverbal autistic child. She is

developmentally

> about 18 to 20 moths old depending on the skill were talking about.

> Anyway my problem is she has been masturbating, not just once in a

> while but all the time. I called CARD (the center for autism and

> related disabilities) and spoke with a few people there and they

were

> all very sweet and told me not to worry that it was a sensory

related

> problem and to have the OT she sees contact them and they could

give

> her some suggestions for way to modify Sonja's behavior.

>

> We, unfortunately for Sonja, can't afford a private OT so we have

to

> rely on the school system and the OT is pretty much useless in my

> opinion. Not only has the teacher asked her for help but I even

> brought it up in her IEP but all I get from the OT is " re direct

her

> and tell her she shouldn't play with her body, and blah blah blah "

I

> am starting to wonder if this lady has actually even met my child,

> HELLO talk to her? redirect her? Sonja is not a high functioning

> child she doesn't understand the meaning of the word no at all

right

> now. I do try to redirect her as best as possible but it doesn't

> always seem to work.

>

> I'm sorry this is so long but please if anyone has had a similar

> problem that they were able to " fix " let me know how and what you

> did. I'm just about at my wit's end.

>

> Thank you,

> Theresa

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Hi Theresa,

I had a similar problem with my 4.5 yr. old mostly when she

was sitting in her car seat with a 5 pt. harness system. We always play music

in the car for her and we would turn off the music and say " no tickle in the

car,tickle in your room. " I think how she got it was no music,not our

words.She still does it ocassionally when she sits in a swing or other thing

that gives some resistance if you know what I mean....it is very common,just

not talked about alot...good luck, Jo

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Theresa,

Do you have access to a behavior analyst? If so, you may want to work with

them to get some data to figure out why she's doing this (it sounds

sensory, but you never know -- it could be attention or some combination.)

Then you can put a behavior plan in place detailing consequences,

consistent ways to redirect, etc.

It sounds like the " professionals " you're dealing with are just hoping

it'll go away on its own! Taking an ABA approach may help extinguish (or at

least decrease) the behavior quicker.

Good luck.

joy

Joy Insinna

Director

Office: (585) 240-7483

Fax: (585) 295-4890

Element K

'the knowledge catalyst'

www.elementk.com

" sonjas_mom "

<sonjas_mom@y Autism_in_Girls

ahoo.com> cc:

02/25/02 Subject: hope

someone can help

10:40 PM

Please

respond to

Autism_in_Gir

ls

I don't mean to bring up a topic that may offend someone but I'm

having a HUGE problem with my daughter and I don't have a clue what

to do about it and I was hoping someone here could help me.

She is a 4 year old nonverbal autistic child. She is developmentally

about 18 to 20 moths old depending on the skill were talking about.

Anyway my problem is she has been masturbating, not just once in a

while but all the time. I called CARD (the center for autism and

related disabilities) and spoke with a few people there and they were

all very sweet and told me not to worry that it was a sensory related

problem and to have the OT she sees contact them and they could give

her some suggestions for way to modify Sonja's behavior.

We, unfortunately for Sonja, can't afford a private OT so we have to

rely on the school system and the OT is pretty much useless in my

opinion. Not only has the teacher asked her for help but I even

brought it up in her IEP but all I get from the OT is " re direct her

and tell her she shouldn't play with her body, and blah blah blah " I

am starting to wonder if this lady has actually even met my child,

HELLO talk to her? redirect her? Sonja is not a high functioning

child she doesn't understand the meaning of the word no at all right

now. I do try to redirect her as best as possible but it doesn't

always seem to work.

I'm sorry this is so long but please if anyone has had a similar

problem that they were able to " fix " let me know how and what you

did. I'm just about at my wit's end.

Thank you,

Theresa

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Wish I could help. My 8 year old verbal daughter

masterbates whenever she has her clothes off, so it's

not really a problem. Have you tried Easter Seals,

United Cerebral Palsy, ARC? You definitely need an

OT. Only other idea I have is looser or tighter

underwear.

Good luck,

Camille

__________________________________________________

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Wish I could help. My 8 year old verbal daughter

masterbates whenever she has her clothes off, so it's

not really a problem. Have you tried Easter Seals,

United Cerebral Palsy, ARC? You definitely need an

OT. Only other idea I have is looser or tighter

underwear.

Good luck,

Camille

__________________________________________________

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  • 1 year later...
Guest guest

Sharon,

I was on Peg-Intron/Rebatol. last year. I too started feeling the side effects almost immediately. My Doctor told me that they would disappear after a while. But, after 2 months, I was still nauseous all the time, could not eat, very disoriented and confused. I could not read, or watch TV, could not concentrate, was forgetting things, and at times could not remember what I was saying. After 2-1/2 months, I was almost hit by a Taxi because I did not realize I was crossing the street.

I stopped treatment and it took a good 4 to 5 months before I started feeling like my old self. My doctor did not want to understand that I was having severe side effects. He would tell me that all his other patients were doing fine, and that he had never seen side effects as sever as mine (stated his colleagues had not either) It was as though he did not believe me.

Every time I said something negative about the medication, he would get upset. I think many of these doctors are being are being compensated by the drug companies, and therefore have to produce favorable results.

I think your side effects will fade in time. Hopefully there is no permanent damage. If I ever get treated again, I will call the shots. I will not let my doctor badger me into continuing treatment if I don't feel right. Sometimes, the treatment is indeed worse than the disease.

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Guest guest

I believe you becasue everyone's body is different and treats medication differently.....Is this the one you did 3 times a week. If so, I was on that and the sides were pretty bad in me.......Now, I'm currently on Pegasys and Ribavirin and sides are there but not as severe. I just suffer from depression.

In health,

Cosy

In a message dated 8/5/2003 4:03:38 PM Eastern Daylight Time, mrzoso68@... writes:

Sharon,

I was on Peg-Intron/Rebatol. last year. I too started feeling the side effects almost immediately. My Doctor told me that they would disappear after a while. But, after 2 months, I was still nauseous all the time, could not eat, very disoriented and confused. I could not read, or watch TV, could not concentrate, was forgetting things, and at times could not remember what I was saying. After 2-1/2 months, I was almost hit by a Taxi because I did not realize I was crossing the street.

I stopped treatment and it took a good 4 to 5 months before I started feeling like my old self. My doctor did not want to understand that I was having severe side effects. He would tell me that all his other patients were doing fine, and that he had never seen side effects as sever as mine (stated his colleagues had not either) It was as though he did not believe me.

Every time I said something negative about the medication, he would get upset. I think many of these doctors are being are being compensated by the drug companies, and therefore have to produce favorable results.

I think your side effects will fade in time. Hopefully there is no permanent damage. If I ever get treated again, I will call the shots. I will not let my doctor badger me into continuing treatment if I don't feel right. Sometimes, the treatment is indeed worse than the disease.

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Just to make a clarification, It was Mike, not Sharon who had the problems with the doctor shilling for the drug company. Sorry for any misunderstanding.

Mike

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Sharon wrote: "I think many of these doctors are being compensated by the drug companies, and therefore have to produce favorable results...".........Don't THINK it, KNOW it!! This is the WHOLE ball of wax. For one thing, It's your life you're playing around with when you put tx poison in your body. But that's a personal choice you have made and I respect that. BUT--If you have side effects and the doc evades your questions and concerns, FIRE THE BASTARD! He doesn't care about you! GET A CLUE PEOPLE!!! The medical industry is an INDUSTRY, --a BUSINESS--all you are is a way to their means (wealth for themselves). In case you hadn't noticed, THEY DON'T CARE!!!! Just my humble opinion, taken from lengthy personal experience with the "business" of western medicine. Good luck in your recovery, mrzoso68---don't give up until you find some doc (and it won't be easy), who is more responsive to your needs. I don't know your medical situation (how sick you are with the virus), but in my opinion, one can have a wonderful quality of life using natural therapies to control hep c-- as all of you know, I am personal testament to this. Everyone is different. What works for me may not work for you. The important thing here is that you take full responsibility for your health, do your research, and don't trust ANY western physician with your health decisions. It's your body; it's your life--if you feel comfortable playing Russian Roulette with your life, then just keep on trusting the Western Medical INDUSTRY with your very precious life----Om Shanti, much peace and blessings, Satya

Re: [ ] Hope someone can help

Sharon,I was on Peg-Intron/Rebatol. last year. I too started feeling the side effects almost immediately. My Doctor told me that they would disappear after a while. But, after 2 months, I was still nauseous all the time, could not eat, very disoriented and confused. I could not read, or watch TV, could not concentrate, was forgetting things, and at times could not remember what I was saying. After 2-1/2 months, I was almost hit by a Taxi because I did not realize I was crossing the street. I stopped treatment and it took a good 4 to 5 months before I started feeling like my old self. My doctor did not want to understand that I was having severe side effects. He would tell me that all his other patients were doing fine, and that he had never seen side effects as sever as mine (stated his colleagues had not either) It was as though he did not believe me. Every time I said something negative about the medication, he would get upset. I think many of these doctors are being are being compensated by the drug companies, and therefore have to produce favorable results.I think your side effects will fade in time. Hopefully there is no permanent damage. If I ever get treated again, I will call the shots. I will not let my doctor badger me into continuing treatment if I don't feel right. Sometimes, the treatment is indeed worse than the disease.

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Hi Satya and Sharon, Satya...I agree with you 1000% it is an absolute

crime the damage that has been done to so many people, my Son included. A perfectly healthy young man...until "the treatment."

Greed, what a beast.

Sharon,

listen to Satya, Fire the Bastard...they don't care. In Good Health,Margie.

Re: [ ] Hope someone can help

Sharon,I was on Peg-Intron/Rebatol. last year. I too started feeling the side effects almost immediately. My Doctor told me that they would disappear after a while. But, after 2 months, I was still nauseous all the time, could not eat, very disoriented and confused. I could not read, or watch TV, could not concentrate, was forgetting things, and at times could not remember what I was saying. After 2-1/2 months, I was almost hit by a Taxi because I did not realize I was crossing the street. I stopped treatment and it took a good 4 to 5 months before I started feeling like my old self. My doctor did not want to understand that I was having severe side effects. He would tell me that all his other patients were doing fine, and that he had never seen side effects as sever as mine (stated his colleagues had not either) It was as though he did not believe me. Every time I said something negative about the medication, he would get upset. I think many of these doctors are being are being compensated by the drug companies, and therefore have to produce favorable results.I think your side effects will fade in time. Hopefully there is no permanent damage. If I ever get treated again, I will call the shots. I will not let my doctor badger me into continuing treatment if I don't feel right. Sometimes, the treatment is indeed worse than the disease.

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Guest guest

My fault, Mike, sorry,,,,

Re: [ ] Hope someone can help

Just to make a clarification, It was Mike, not Sharon who had the problems with the doctor shilling for the drug company. Sorry for any misunderstanding. Mike

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  • 2 years later...
Guest guest

Some suggestions to control/rid yeast.... probiotics, Candex (enzyme) and

GSE drops. These are items we use to prevent yeast (except for the GSE....

use only when yeast symptoms appear). Is there another doctor that is more

understanding to your circumstances.... like your family doctor that will

order this for you?

Jackie---

> My 14yr old son has aspergers, OCD and tourette. He has had a cronic

> problem with his sinus and that started him picking and now his spetum

> has a hole and the infection got worse. The ENT has had him on a real

> strong dose of antibotics. I did try and argue this with him and

> insisted on nystatin for candidas issues. His response was that no

> adult ever has those issues. We of course know that is not true. My

> problem now is that he has horrid tic's. I don't know what to do his

> whole body is in motion, he has to constantly lift his legs back and

> forth like he's doing a jig etc. Has anyone else faced a similar

> problem and what did you do to correct/help it?

>

> Any feedback will be greatly appreciated.

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Hi

Just posting as my daughter has had similar tics..and since you say

your son has ocd and also tourette's...does he have strep..either

active/throat swab or inactive/stool-gut? He may have pandas or high

strep titres that can cause all of these symptoms.

Do you have a DAN that can run titres and do an immune panel? We just

started a homeopathic 10 days ago that has lessened the tics

dramatically. Strep is a hard one to get rid of.

>

> My 14yr old son has aspergers, OCD and tourette. He has had a cronic

> problem with his sinus and that started him picking and now his spetum

> has a hole and the infection got worse. The ENT has had him on a real

> strong dose of antibotics. I did try and argue this with him and

> insisted on nystatin for candidas issues. His response was that no

> adult ever has those issues. We of course know that is not true. My

> problem now is that he has horrid tic's. I don't know what to do his

> whole body is in motion, he has to constantly lift his legs back and

> forth like he's doing a jig etc. Has anyone else faced a similar

> problem and what did you do to correct/help it?

>

> Any feedback will be greatly appreciated.

>

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Guest guest

Also..to add yes, the antibiotics can increase yeast..another

tic/tourettes issue, so getting some nystatin or diflucan on board

would help. Probiotics would be good but do run an immune panel as

our kids with tics/tourette behaviors have lots of viral issues.

You may want to read up on natural antivirals...as some here do them too.

Hope he gets better...

> >

> > My 14yr old son has aspergers, OCD and tourette. He has had a cronic

> > problem with his sinus and that started him picking and now his

spetum

> > has a hole and the infection got worse. The ENT has had him on a

real

> > strong dose of antibotics. I did try and argue this with him and

> > insisted on nystatin for candidas issues. His response was that no

> > adult ever has those issues. We of course know that is not true. My

> > problem now is that he has horrid tic's. I don't know what to do his

> > whole body is in motion, he has to constantly lift his legs back and

> > forth like he's doing a jig etc. Has anyone else faced a similar

> > problem and what did you do to correct/help it?

> >

> > Any feedback will be greatly appreciated.

> >

>

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Guest guest

Do they know for sure he has a bacterial infection?

This is my reaction to antibiotics I'm intolerant of, or when yeast

gets extremely severe. I don't know if it's the same type of tics,

but mine are myclonic jerks, and facial ones, particularly in the

eye area.

I would stop the antibiotics unless you need them for an infection.

Nystatin, GSE in tablet form, oil of oregano, garlic capsules, plain

organic kefir, Threelac, and not eating any fruit, sugar or

carbohydrates for a few days have all been helpful to me with yeast.

If you can't get a prescription for Nystatin, I am told you can

order it online, although insurance won't pay for it without a

doctor's prescription.

Amy

>

> My 14yr old son has aspergers, OCD and tourette. He has had a

cronic

> problem with his sinus and that started him picking and now his

spetum

> has a hole and the infection got worse. The ENT has had him on a

real

> strong dose of antibotics. I did try and argue this with him and

> insisted on nystatin for candidas issues. His response was that

no

> adult ever has those issues. We of course know that is not true.

My

> problem now is that he has horrid tic's. I don't know what to do

his

> whole body is in motion, he has to constantly lift his legs back

and

> forth like he's doing a jig etc. Has anyone else faced a similar

> problem and what did you do to correct/help it?

>

> Any feedback will be greatly appreciated.

>

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