Re: Chelation/EEG/Depakote? THANK YOU!

[Guest guest]

A very special thanks to Andy and to Everyone who took the time to

answer my questions. I am very grateful for all of the excellent

advice. I will be sure to make an appointment with our neuro as

soon as possible to go over these important questions before

starting any medication. I will post again after speaking with him

to let everyone know how it went. Thanks again and a very Happy New

Year to all! Sincerely,

> >

> > Hi All! My son had an EEG done in October. The neurologist

called

> > this week and said that it was highly irregular and showed

problems in

> > the temporal and parietal lobes of the brain.

>

> Which can cause lack of speech.

>

> > He said that there was

> > a lot of " seizure activity " during sleep. I had talked to the

nurse a

> > few days earlier and she described countless episodes

of " static "

> > during the EEG.

>

> If you see it on the EEG it is real, the usual problem is they

don't catch it on the EEG but it

> really is going on.

>

> > The neurologist wants to put him on Depakote.

>

> Lamictal is the current new trendy thing to use instead. Depakote

has been around a very

> long time, at least its plusses and minuses are well understood.

It takes a lot longer to get

> someone ONTO Lamictal than Depakote. Zarontin is an older

antiabsence drug, the most

> effective for absence seizures but useless for any other type.

Depakote is hard on the

> liver, Zarontin and Lamictal aren't. Lamictal has this skin rash

problem and probably a lot

> of other nasty stuff that will become well known in a few more

years.

>

> > We

> > have never actually seen any seizures, but he does blank out at

> > times.

>

> You may well have seen seizures - find descriptions of " absence "

seizures on the web. Not

> all seizures involve flopping like a fish out of water.

>

> > We also just had a porphryn test done and it showed markers of

> > very high mercury toxicity.

>

> Which can induce seizures.

>

> > We have been doing biomed since July, and

> > he has been on a custom program since October. We started the

> > transdermal glut. We are planning on retesting his stool for

yeast

> > and also doing another urine test in January. If all was well

with

> > those tests, we were going to try chelation in February. Now

I'm not

> > so sure what to do.

>

> Get him on antiseizure medications and then chelate him so that in

a few years he may not

> need them.

>

> > I'm anxious to get the metals out, but I am very

> > worried about how abnormal his EEG results were. If anyone can

give

> > me any advice on any of this I would appreciate it very much.

Thanks

> > in advance and a Happy New Year to all!

>

> Lots more you need to do.

>

> Which meds to use or avoid depend on the seizure TYPE.

>

> Get the neuro to tell you:

>

> Is it partial or generalized onset?

>

> Are they simple or complex seizures?

>

> Are they absence seizures? Which do NOT make spikes on the EEG

(they make waves).

>

> Is more than one kind of seizure going on?

>

> What are all the choices of medications and why?

>

> What exact diagnoses or ICD 9 codes is the neuro using?

>

> Will the neuro show you what seizures (absence and not absence)

look like on EEG's, and

> what your kid's EEG looks like? Also, can you have a copy of the

written EEG interpretive

> report?

>

> Talk on the list about all this when you know it. Insist the

neuro tell you the straight

> technical stuff and get him to write it down if you need to, but

don't go leating off with " so

> you can put it on internet lists and talk with people about what

it means " or he'll try not to

> tell you anything.

>

> Andy

>