Andy-Six year old with jra/uveitis

[Guest guest]

Hello Andy,

Our oldest child is doing fantastic and has been chelating since Feb of 2006

for his aspergers and used the invaluable support of you and the group.

I would like your opinions on our youngest child. She is six years old. I will

include her hair test and other test results. She has arthralgia in several

joints, toes, ankles, knees, wrists. The rheumatologist says it is possible

most probable the start of Juvenille rheumatoid arthritis. She has uveitis

(chronic anterior bilateral uveitis-in both eyes), just diagnosed this past

September. She has had two flares of uveitis since September, she came in with

a flare, then had another flare after she we weaned her off of pred forte for a

month. Her pediatric opthamologist is talking about using immunosuppressants

like methotrexate on her to control her uveitis when there is another flare.

The most recent development is yesterday afternoon, and eighty year old very

experienced uveitis specialist we took her to, said she may have already had her

uveitis for a very long time-around eighteen months or so since the beginning of

her footpain/toe swelling which was 6/2005. It is common for uveitis to last

two years in this situation, and there is a chance she could be heading twards

remission or on the tail end of the uveitis in his opinion. He thinks we could

try naprosin (like Aleve-only in a liquid for children, a NSAID) to control the

inflammation until she is fully in remission without methotrexate. He wants to

send us to a different rheumatologist.

She has significant scarring in her left eye, and if she would get any more

damage in her eye from inflammation, there will be vision loss. We don't have a

lot of time or a lot of wiggle room for mistakes like when we are doing

supplements on our son, there was more room for trial and error. We have been

fortunate with our son to have done his treatment with the minimum amount of

testing, hair testing only. Our daughter though, is a tougher case I think.

What she's been on:

pred forte 1% and atropine eye drops (Was 6 drops weaned down to now one drop

of each in each eye per evening)

livon laboratory lypo-spheric vit C 1000mg w/ 4,000 mg of phosphatidylhcholine

once a day

Jarrow curcumin 95 with curcumin 380mg, demethoxycurcumin 90mg,

bisdemehtoxycurcumin 15 mg, other turmeric substances, 15mg once a day

Blue bonnet super quercetin 1000mg w/bromelian 140 mg, citrus bioflavnoids

100mg, rose hips 25 mg, acerola 25mg, rutin 20 mg, and hesperidin 15mg once a

day

custom probiotics d-lactate free formula (1/2 scoop-one to three times a day

away from food)

New beginnings calcium/magnesium chewables calcium citrate 333mg/magnesium

glycinate 50 mg (two to four tablets a day)

New beginnings selinium drops (sodium selenite) 5 drops/250mcg once a day

On and now off CLO-She was taking Nortic Naturals 1 tsp 3x a day until it was

suggested by a chiropractor through kineseology that she is possibly allergic to

vit D, so we've discontinued

organic Flaxseed oil-1/2 tsp once a day

various kefir shakes and raw goat milk diets-which we went off of because the

chiropractor said dairy and gluten was her problem and the inflammation was

caused from the gut, the large intestine.

weston price diet-which we are attempting to do gf/cf currently

gluten free diet off and on (for most of the past 2 years on gf/cf-cheating with

houston's enzymes once a week) now there is no cheating. The chiropractor said

no cheating with enzymes because the gluten and casein still cause damage.

We were on the SCD when she was first diagnosed in september, we had been on

that diet 3 months, and went off of it when she was diagnosed.

Currently we are trying to decide whether she could be cf if she has goat milk

and cheese only or if goat milk and cheese is a problem. Maybe there is a test

you could recommend that would give us direction on this.

We gave her lifeline ionic liquid zinc one day and it gave her a terrible

headache just above and to the outside of her already damaged eye. We consulted

this group, and discontinued it immeadiately for possible stimulating the immune

system.

After the zinc episode, I worried about the things we are giving. I took her

off everything but the probiotics for a week, and she had serious vision

disturbances. For six hours, she said she couldn't see white when she looked at

her white coloring page. I put her back on the Vit c, sel, cal/mag, curcumin,

and querciten, after that and her vision has been without further disturbances.

The diet was something we were doing as a family. Her only bowel symptom is

frequent constipation. We are taking her to an allergist for possible LDA (low

dose allergen therapy). Family history of severe allergies and chemical

sensitivity make us think allergies could be an underlying cause. She has no

obvious allergies to us, but the allergist found that her nasal passages were

inflamed and her nostrils made an allergic whistle sound.

Rheumatology report:

Somewhat enlarged sausage like digits on toes, come and go. ANA slightly

elevated 1:320 in a homogenous pattern;CBC normal;sedicmentation rate normal;

elecrolytes and liver funtion normal; an angiotensin converting enzyme slightly

elevated at 58 with a normal range being 7-46; P-anca and C-anca negative;

HLAB-27 negative; lyme antibodies negative; toxocara and toxoplasma negative.

Since this is kind of an emergency, would we do a more agressive form of

chelation than your method? Would now be a time to do iv or detoxomin chelation?

I was thinking because we don't have a lot of time with the eyes before they

will want her on immunosuppressors. Can we chelate while on immunosuppressors?

The other specialist saying she is on the tail end really makes me feel more

relieved that there is a chance she might not need immunosuppressors. I would

like what we are doing to keep her eyes quiet and keep her from needing

immunosuppressors. Should we supplement? because if her immune system is

attacking itself which is what they have told me...it complicates things.

I would appreciate any imput you could give. If it was your child, what tests

and treatments would you be doing? Just picking your brain, what are your

thoughts?

Hair test from last February

Age 5 Female, no vax, no mercury fillings. The most NT of all of our

five children.

Potentially toxic elements

Aluminum 15 range <8.0 yellow

Antimony 0.078 range <0.066 yellow

Arsenic 0.031 range <0.080 green

Beryllium undetected

Bismuth 0.34 range <0.13 yellow

Cadmium 0.099 range <0.10 green

Lead 0.67 range <1.0 green

Mercury 0.20 range <0.40 green

Platinum 0.003 range <0.005 green

Thallium indetected

Thorium 0.004 range <0.005 green

Uranium 0.022 range <0.060 green

Nickel 0.18 range <0.40 green

Silver 0.05 range <0.20 green

Tin 0.33 range <0.30 yellow

Titanium 1.3 range <1.0 yellow

Total toxic yellow

Essential and other elements

Calcium 697 range 140-500 yellow right

Magnesium 76 range 15-45 yellow right

Sodium 22 range 12-90 green left

Potassium 18 range 9-60 green left

Copper 15 range 10-22 green right

Zinc 170 range 100-190 green right

Manganese 0.30 range 0.20-0.55 white

Chromium 0.42 range 0.26-0.50 green right

Vanadium 0.032 range 0.030-0.10 green left

Molybdenum 0.069 range 0.048-0.13 green left

Boron 2.0 range 0.35-3.0 green right

Iodine 0.68 range 0.25-1.3 green right

Lithium 0.008 range 0.007-0.023 green left

Phosphorus 196 range 160-250 white

Selenium 0.91 range 0.95-1.7 yellow left

Strontium 2.0 range 0.19-2.0 green right

Sulfer 51700 range 45500-53000 green right

Barium 1.6 range 0.16-1.2 yellow right

Cobalt 0.027 range 0.013-0.035 yellow right

Iron 19 range 8.0-19 green

Germanium 0.033 range 0.045-0.065 yellow left

Rubidium 0.021 range 0.012-0.16 green left

Zirconium 0.50 range 0.030-1.0 green right

Ratios

ca/mg 9.17 range 4-30

ca/p 3.56 range 1-12

na/k 1.22 range 0.5-10

zn/cu 11.3 range 4-20

zn/cd >999 range >800

Thank You for looking at our children's hair tests.