Between a rock and a hard place

[Guest guest]

My 12 y.o. son has the regular multitude of issues.

We've chelated overly aggressively over the years. We were doing IV chelation

last year , but stopped in February after having a lot of seizures. We

continued transdermal DMPS, but took a break from that in July also due to

reoccurring seizures.

We used ALA and DMSA five plus years ago, but Liam has always battled

constipation and are concerned about redistribution issues. HE then did just

DMSA for a few years. But in hindsight the dosage was too high.

He has had a history of seizures after starting him on seizure meds after an

abnormal EEG . After we saw no benefits from the meds, we tried to pull him

off and he had his first Grand mal shortly afterwards.

In Dec. 2004, the neurologist suggested we up his dosage, due to growth. Soon

afterwards, he started a piercing scream. We lowered the dosage and the scream

went away. His seizures seemed to be under control with a depakote/kepra combo.

In July if 2005 we had another EEG, which showed low brain function, presumably

due to the meds. He also would have tremors, but no seizure activity.

In Aug. 2005 we started with another Dr. IV chelation and began to wean him off

of his seizure meds. Immediately afterwards, the high pitched scream returned

and is something we have battled consistently since then.

At times I thought it was yeast related, so I upped the yeast protocol with GSE,

Oil of Oregano and Tea Tree oil on his feet at night. That seems to help for a

while, but then we had a different type of rash. Perhaps, the GSE was too high

and created high bacteria levels?

We stopped the GSE and didn't do the Tea tree oil for a few days , then we had

a huge yeast flare up, big rash, severe mood swings,etc.

Christmas Eve through Wed., he was having a rough time. The screams were

extreme and would last 10-20 seconds. Then there was some extreme aggression.

Mostly, you could see him trying to control it, but then he just couldn't.

Although one of the instances seemed to be triggered something he ate.

Wed. night he was very clingy and couldn't fall asleep despite melatonin and was

shaky. Sure enough yesterday was filled with seizures.

I'm not sure of the next step to help him, we were using Magnesium Citrate to

help with constipation, but he is now reacting to it. We'd like to low dose

chelate with ALA, but I'm concerned with constipation, yeast and seizure

activity.

He's a viral kid and we're using OLE. He was on a fairly high dose of Virastop,

but of course built an intolerance. Whenever we try to add more than 2000 mg of

Vit. C he seems to react to the brand. We are now trying a brand that has

absolutely no corn, it is too soon to change dosage.

We were giving him Advil to help with sinus pain and allergies over the fall,

but he built up an intolerance to that as well. WE now give Tylenol when he is

in great pain, but try to avoid it. We were using some homeopathic remedies,

but we are seeing a homeopath for the seizure activity, so we aren't supposed to

introduce other remedies in the mix.

I believe he is mineral toxic, so he is on some liquid Magnesium and Selenium.

He is also on some zinc

Otherwise he is on Some B-vits., 5-HTP, Oil of Oregano and NAC. WE upped his

Depakote from 250 to 375 mg., but he has been having seizures more frequently,

since this dose.

He is Corn, Soy, Rice, Egg, and Dairy free. He has small amounts of wheat,

since he doesn't seem to react to small amounts of that (observation as well as

testing). WE limit phenols and we've tried to re-introduce some almonds with

enzymes. Currently, we give enzymes with dietary infractions.

We haven't done any testing recently and at times he is doing well. But the

scream frequency and seizures are worrisome. Any thoughts???